Jasmine Hayer

#LongCovid since March 2020. Writer. Advocator. On the biggest healing mission of my life. Mainly on IG: @Jasminehayer_ Blog:

[Jasmine Hayer @JasmineHayer]

It took 11 months for me to FINALLY get a diagnosis for #LongCovid. Anxiety wasn't the cause, it was blood clots in my lungs & fluid around my heart! Thousands are going through what I did. My story needs to be heard!! @guardiannews @guardian @Telegraph https://t.co/n5adlH2vZo

[Jasmine Hayer @JasmineHayer]

@Daltmann10 Thank you so much Danny 🙏🏽

[Jasmine Hayer @JasmineHayer]

@savingmeredith Hi there - I don't use Twitter much now but what you shared really moved me. I stand with you guys in solidarity ;( Please have a look at my blog (link in bio) and perhaps it may help. I've had severe LC since March 2020 but I've come a long way, mostly because of #teamclots

[Jasmine Hayer @JasmineHayer]

@AngryTomtweets Thanks for sharing! What's the difference between this and the ready made templates that you choose on wix and square space?

[Jasmine Hayer @JasmineHayer]

@ModestMitkus ME

[Jasmine Hayer @JasmineHayer]

Thank you for sharing some of my story @BBCHughPym

Just to add - my specialists at @RBandH found that my #longcovid damage was the same as post mortem findings and covid ICU patients.

This is how serious the disease is.

We look 'okay' from the outside but you can't see inside

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

"It was this unstoppable desecration of my health"

Tonight on @bbcnews at 10 - @JasmineHayer needs answers from the @covidinquiryuk

#LongCovid

Thanks @BBCHughPym

[Jasmine Hayer @JasmineHayer]

@LongCovidSOS @BBCNews @covidinquiryuk @BBCHughPym Thank you for sharing guys 🙏🏽

[Jasmine Hayer @JasmineHayer]

@dbkell Thanks Doug!🙏🏽

[Ruth Liptrot @Ruth5News]

Finally a report that communicates how serious #longcovid is. For those who’ve been told to just get on with it/it’s probably just anxiety/try harder, this will feel like validation. Show it to everyone who didn’t listen to you. @ucl @UniofExeter @long_covid

[Jasmine Hayer @JasmineHayer]

@AXAHealth @Lucykeeffe @Jasmine Yes DM away 🙏🏽

[Jasmine Hayer @JasmineHayer]

#LongCovidAwarenessDay

To mark 3 years of having #longcovid @Lucykeeffe and I put together this video project, uniting other brave sufferers also hitting their 3 year covidversary.

You are not alone ❤
⬇️
https://t.co/vxNgZ9N4iH

[Jasmine Hayer @JasmineHayer]

@PaulBir90771241 Thanks - a lot has happened since then..I've been confirmed with microclots both in Germany and via UCL.

[Jasmine Hayer @JasmineHayer]

@organichemusic Wow, thanks so much for sharing this! More hope. My specialists are contemplating trialling this in me but said it comes with a risk of high output heart failure in people without high PVR 😳 They used it a lot in patients with covid pneumonitis, which worked successfully.

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

Today is #LongCovidAwarenessDay

This is our message:
#LongCovid can rob people of everything they once held dear...
Things need to change
We are fighting to be a lifeline for people with #LongCovid

Hear our SOS and help us be that change
#LongCovidAwarenessMonth
@LCawarenessInt

[Jasmine Hayer @JasmineHayer]

@OT_Skiff @RBandH So proud of you pal 🤗❤

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳#pwLC @doctorasadkhan]

A long list of #MECFS biomarkers.
H/T @BinitaKane 🙏🏾

You could do with having a look @nataliesurely @newrepublic @emilyecooke

Neither ME nor #LongCovid are psychogenic.
This is not a matter of opinion.
Babbling ‘mind body’ incessantly won’t change that
https://t.co/HOfQpKWXy2

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳#pwLC @doctorasadkhan]

Airing on @BBC1 at 2000 GMT today. Featuring HCWs afflicted by #LongCovid

[Jasmine Hayer @JasmineHayer]

@menschfra @LLMN80 Oh I'm sorry to hear this 😔 Can you try Vedicinals? My vo2 increased by 56% because of it! All info here: https://t.co/LLRZriWQ6M

[Jasmine Hayer @JasmineHayer]

Yesterday, marked 22 months since I first had covid. 22 months of insidious #LongCovid.

Yesterday, I discovered that my venous oxygen saturation is 23% (normal ranges are 94%+).

Pulse oximeter = always 'normal'.

Can anyone help me get this microscopic clot test in the UK?😢

[Resia Pretorius @resiapretorius]

A refreshing Zoom with our 40+ clinician and research LC group tonight:Take-home:1) COVID is not a typical flu 2) Microclots=the result of LC not the cause 3) Platelet hyperactivation = central 4) individualised care=key @dbkell @DrGrahamLJ @drclairetaylor @Sunny_Rae1 #teamclots

[Nia | The Chronic Notebook @chronicnotebook]

With chronic illness, you normalise so many things most people won't ever feel. You normalise high levels of pain, being exhausted, medical procedures and trauma, needing to rest after a shower. People see you surviving with an illness, but not all you had to normalise to do so.