Jenny Cochrane

Promoting ME Awareness. ME is a debilitating neurological illness affecting 250,000 in UK plus families & carers. 17 million suffer worldwide. There is no cure.

[Jenny Cochrane @JennyCochrane]

@DafoeWhitney Dear Whitney I thought of you the moment I saw the sad news. Always difficult for you to lose a severe ME friend but even harder when you shared using creative talents to express the harsh realities. As with James, your words and efforts to share them are highly valued. 🫂

[Jenny Cochrane @JennyCochrane]

@DafoeWhitney Thank you for continuing to advocate in every way you can. I felt so much love reading the letter to the coroner- your lived experience is so challenging. I am full of admiration for your ability to articulate clearly and succinctly and for your willingness to take on the fight

[Jenny Cochrane @JennyCochrane]

Do you remember when you joined X? I do! #MyXAnniversary
I joined to raise awareness of ME/CFS, Long Covid is now in the mix too. 12 YEARS ON - Still NO treatment. Still NO cure.

[Jenny Cochrane @JennyCochrane]

@MEActNet Please read Whitney Dafoe’s letter and advocate further re potential damage by NG Tube. https://t.co/fqnU8uXzXu

[ME Research UK @MEResearchUK]

Sadly, some healthcare professionals still perceive ME/CFS as a psychological disease. A recent article provides a clear summary of why this view is inconsistent with the results of biomedical research https://t.co/U3W7wLJ2YQ

[Janet Dafoe @JanetDafoe]

I read Whitney’s tweet and fb post today and this @PutrinoLab thread fits my mood EXACTLY!

[Jenny Cochrane @JennyCochrane]

@ChronicMyalgicE Results are normal because they haven’t created the right test(s) yet. Researchers are needing to develop technology. Research has highlighted the inadequacy of existing tests. How can Doctors think that they know it all when medical knowledge is always evolving.

[Lucinda Bateman @LBatemanMD]

Tragically, the more severe the ME, the more the invisible the afflicted person becomes, especially to the medical community. This must change.
To those with severe and very severe ME: your life matters. Please don’t give up hope. 2/3

[M.E. Awareness NZ @MEawareNZ]

Prof Danny Altmann, a world leading immunologist, is to be interviewed about the "unfathomable" burden of #longCOVID on Saturday 9:05am on @radionz .

Listen live and text your questions to 2101.
https://t.co/AEp00nkDC2

[Action for ME @actionforme]

Chris Ritchie has lived with #MECFS for 15 years, & we are so grateful that he has shared his powerful experiences of #LivingWithME to raise awareness of this devastating disease.

Chris talks eloquently about his experience of #MECFS.

[M.E. Awareness NZ @MEawareNZ]

People with #LongCOVID are dramatically impacted every day by their illness.

Yet they are still waiting for support from #nzhealth system.

https://t.co/jwv5Hn2747

#LongCOVID #longhaulers #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#health #ChronicIllnessLife

[Jenny Cochrane @JennyCochrane]

If in New Zealand, please sign this petition. Improve the Education of ME/CFS (chronic fatigue) within Medical schools https://t.co/5Q0jOoa4l9 via @Change

[#MEAction Network @MEActNet]

#MillionsMissing-May 12th, 2023 was an emotional day for those attending the art installation in person or at home. Hundreds of passersby, many who had no idea what ME was, were stunned with the image of 300 beds beside the Washington Monument & most importantly, the pillowcases.

[M.E. Awareness NZ @MEawareNZ]

When you have #MEcfs, even catching up for coffee with a friend, is likely to trigger PEM.

PEM is an abnormal response to normal activity - a broken energy system - and it makes people sicker for days, weeks or longer.
#WorldMEDay #LearnFromME #MyalgicE #ChronicFatigueSyndrome

[M.E. Awareness NZ @MEawareNZ]

Opportunity to participate in #research about perceptions about #MECFS in the workplace.

More info on https://t.co/XKhgbnoE6D

[Putrino Lab @PutrinoLab]

[TW: story about severe ME/CFS]

Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)

[Jenny Cochrane @JennyCochrane]

An extremely important book in the ME /CFS advocacy journey. Please pre order

[Whitney Dafoe @DafoeWhitney]

I’m excited to announce that a book has been written about Ron and myself and it is really important that you all pre-order a copy so that it has a better chance of being a bestseller.

[Jenny Cochrane @JennyCochrane]

I've voted for Art Juice: A podcast for artists, creatives and art lovers - https://t.co/8a99NgFDM4 in the @britpodawards Listeners' Choice Award. Vote for your fave: https://t.co/Jb3esBLcfG.

[M.E. Awareness NZ @MEawareNZ]

How does #MyalgicE affect someone financially?

"I had to quit my job"
"I have to decide between doctors or food"
"Can’t get new glasses, car unreliable"
"I live in poverty"
"I am homeless, so I can afford supplements that help"

#pwME, 2020 #MEAwarenessHour

[MortenGroupOxford @OxMEDiscovery]

"...I was so wrong. After twelve hours, I was completely floored. I was more exhausted than ever and could not get out of bed for three days. The sweats came back. The tinnitus. The foggy head. The headaches."

https://t.co/gcJt7Ajtv4

#MyalgicEncephalitis #MECFS #COVID19