JoHD Brain Study-University of Iowa

Our research is centered around young people who have been diagnosed with Juvenile Onset Huntington Disease (JoHD).

[Help4HD @Help4HDI]

"The Warriors - Fighting the Incurable Juvenile Huntington's Disease" is now available to watch for FREE at https://t.co/9jNB9fP4MK
#JuvenileHuntingtonsDisease

[HDSA's NYA @HDSANYA]

Another day.. Another #TeamHope!!
Join the fight against #HuntingtonsDisease!! Learn more at https://t.co/qKs0z7zD5Q

#HDSA #LetsTalkAboutHD #NYA ##ohanaforever

[HuntingtonStudyGroup @HuntingtonSG]

PROOF-HD update:
Participant enrollment has been completed ahead of schedule! We are so grateful to all the amazing participants, families, and the #HuntingtonsDisease community in helping to achieve this study milestone!

Full release: https://t.co/c2NlGfEayr

[HuntingtonStudyGroup @HuntingtonSG]

🚨🚨🚨👇
FAMILY DAY at HSG 2021 is just one month from today! Join us virtually on November 6.

It is FREE to attend but make sure you register in advance.

--> https://t.co/oeNAqPCJKW

#HSG2021 #UnmaskingHD #Huntingtonsdisease #conference

[Jordan Schultz @Schultz_Lab]

Looking forward to answering some medication-related questions for families impacted by HD and JHD! @JoHD_Iowa @ChANGE_HDstudy

[HuntingtonStudyGroup @HuntingtonSG]

FAMILY DAY at #HSG2021... You don't want to miss this! #UnmaskingHD #Huntingtonsdisease

Register today for FREE access to all the sessions and content on November 6!

https://t.co/oeNAqPl8mm

[HuntingtonStudyGroup @HuntingtonSG]

KINECT-HD2 is an open-label study of valbenazine for chorea in #HuntingtonsDisease. KINECT-HD2 is currently recruiting subjects in the United States and Canada to participate in the #clinicaltrial on study drug. To learn more, visit the study website – https://t.co/B5EdZR9CoX

[HDYO @HDYOFeed]

14 blinded procedures have now been completed, with no significant safety concerns observed. We continue to be very pleased with the enrollment of this important study and look forward to having the trial fully enrolled by middle of next year." https://t.co/5B0GJWeuzT

[Brian Dlouhy MD @thebraindocMD]

Congrats to @IowaNeurosurg resident Scott Seaman @uiowa @uihealthcare @UIchildrens @UIowaNeuro on this month's cover image @TheJNS Peds for a new radiographic marker for Chiari 1 malformation @PedsSection https://t.co/JvtJbGhZ23

[Iowa Neuroscience Institute @UIowaNeuro]

“Our main focus is to think about neurodevelopmental disorders across the lifespan” @TedAbelneuro discussing the new Hawk-IDDRC with @TheDailyIowan

[Everyday is #HDAwareness day @AwarenessHD]

JHD Initiative – Welcome To https://t.co/BDTusfD6aA Where You Can Read These Kids Stories And Learn More Families Alike The Juvenile Onest Of Huntington's Disease Sharing Personal Stories And Faces Of Kids For Awareness Helping Relating And Understanding https://t.co/6Cr2oF261Q

[Patient Worthy @PatientWorthy]

NORD Summit to Take Place October 18-19, 2021 https://t.co/LgIjH2vzJ7 #nordsummit #raredisease #patientadvocacy #medicalresearch #rarediseasepatients @RareDiseases

[Jordan Schultz @Schultz_Lab]

Congrats, @HarshmanLyndsay!! So thankful to have the opportunity to collaborate with you and your lab on this very important work!

[JoHD Brain Study-University of Iowa @JoHD_Iowa]

Neurofilament Light Protein (NfL) is emerging as a potential biomarker for Adult Onset Huntington's- researchers suggest the NfL may also play a role in JoHD and pre-manifest HD. https://t.co/feLPzPGTAj @LaurenByrne7337 @Schultz_Lab @filipebrodrigue

[HDYO @HDYOFeed]

Check out the following update from uniQure:
"Two more patient procedures have been completed in the higher-dose cohort in our #genetherapy trial of AMT-130 for #Huntingtonsdisease following a positive recommendation by the independent DSMB.

[JoHD Brain Study-University of Iowa @JoHD_Iowa]

Meet Dr. Jordan Schultz, PharmD @Schultz_Lab! While heading up his own research lab, he's also a member of the Nopoulos Lab! Check out one of his most recent publications about CAG repeat length and cognitive performance in young adults. https://t.co/JWHF4erIfO

[bubba fly :)-))))!!! @00kev0000]

JHD CAG Expansion https://t.co/A1Pgnlyvro via @YouTube

[Lauren Holder @laurencurehd]

This article is amazing. What @BJsView says is so spot on: "I can’t keep looking down the hall and thinking, 'Well, those people are working on it.' I need to find new ways to get involved and creative ways to speed up this process.
https://t.co/u3u4RNuTcZ

[HDBuzz @HDBuzzFeed]

A new system has been developed that allows researchers to fine-tune gene expression with oral drugs, work that provides a powerful tool for gene editing. https://t.co/6qSq2ztooE

[HuntingtonStudyGroup @HuntingtonSG]

KINECT-HD2 is actively recruiting 30 participants in the U.S. & Canada for an open-label study of valbenazine in #HuntingtonsDisease #chorea. Enrolled participants will receive the study drug, valbenazine. To learn more about the study, visit https://t.co/B5EdZR9CoX