Judy Stecker

Wife of @courtneystecker - Mom of @WheelersWarrior- @HHSGov alum, @SyracuseU and @Georgetown alum -GPhiB- views=own RTs not endorsements

[NIH @NIH]

It is because of the gold standard research conducted at NIH that children with rare diseases are provided the opportunity of lifesaving therapies and treatments.

We are proud of our friends at @US_FDA launching a framework for accelerating the development of individualized therapies for ultra rare diseases.

Read more about FDA’s plan to accelerate cures here ➡️ https://t.co/XYRq2u0XiF @HHSGov

[Judy Stecker @Judy__Stecker]

Been to every @GOPconvention and @DemConvention since 2004, this year the view looks a little different . . . To all those attending either or both conventions, have fun, stay safe and someone snag me an @CNN grill pint glass for my collection! 🍻 @CNNPR @POLITICOLive #RNCinMKE

[Judy Stecker @Judy__Stecker]

@howardfineman I am so sorry for your loss. He was so kind and generous with his time when we would connect during my time at Heritage and AEI. May his memory be a blessing.

[Judy Stecker @Judy__Stecker]

Honored to have served @HHSGov under @AlexAzar leadership!

#ArabAmericanHeritageMonth

[HHS @HHSGov]

Honoring Arab Americans’ impact in shaping health care history: Alex Azar served as the U.S. Secretary of HHS from 2018 to 2021, HHS General Counsel from 2001 to 2005, and Deputy Secretary of HHS from 2005 to 2007. Thank you for your service!

#ArabAmericanHeritageMonth

[Judy Stecker @Judy__Stecker]

@PJSkerrett @statnews @thekibosch Glad to have you back and what a testament to you and the STAT team professionally that you’d return to support your colleagues!

[Judy Stecker @Judy__Stecker]

@WSJopinion @KevinMaddenDC Thank you @KevinMaddenDC for sharing and being a #batten battle buddy!

[Judy Stecker @Judy__Stecker]

@brianeharrison @WSJ @HHSGov @US_FDA Thank you @brianeharrison for being an @WheelersWarrior from the very start!

[Judy Stecker @Judy__Stecker]

@dorayemi Thank you so much @dorayemi for being an @WheelersWarrior

[Judy Stecker @Judy__Stecker]

Thank you @KSoltisAnderson for your support and for being a constant #batten battle buddy! #raredisease

[Kristen Soltis Anderson @KSoltisAnderson]

A very moving WSJ piece by my friend @Judy__Stecker about the potential of cures for rare diseases (and how the FDA could do less to slow down these cures) https://t.co/YwFRWYxtNx?

[Judy Stecker @Judy__Stecker]

Thank you @MorganOrtagus. We are so lucky to have the support of fellow moms who are tried and true #batten battle buddies. #rarediseases

[Morgan Ortagus @MorganOrtagus]

My dear friend who’s son is terminal with a rare disease wrote this OpEd. Please read it.

It’s infuriating that bureaucrats are making it unnecessarily hard to treat her son and other kids like him.

The FDA Could Help Save My Son From a Rare Disease https://t.co/DfQbotJHy9

[Judy Stecker @Judy__Stecker]

Thank you @bethanyshondark for being a warrior for @WheelersWarrior and #batten battle buddy. #raredisease

[Bethany S. Mandel @bethanyshondark]

Judy is a dear friend. I hope those on the Hill will read, share and do what they can to save Wheeler. https://t.co/Kde7SkEUpY

[Judy Stecker @Judy__Stecker]

Thank you @mkhammer for being a constant battle buddy! @WSJopinion

[Mary Katharine Ham @mkhammer]

Read about her and this fight, and pray for their family as they keep battling Batten disease.

https://t.co/cdNKY5CTb2

[Mary Katharine Ham @mkhammer]

My brave friend @Judy__Stecker writes about how cutting FDA red tape could help kids with rare diseases, like her brave kiddo @WheelersWarrior. They've used this flexibility bf & can again for very small groups of patients for whom time is of essence.

[Judy Stecker @Judy__Stecker]

@US_FDA will be hosting a #rarediseaseday virtual event today and I sincerely hope they consider the possible options in my @WSJ piece. My son can’t afford them not too. @WheelersWarrior #battendisease #RareDisease

[Wall Street Journal Opinion @WSJopinion]

The pace of science is accelerating, but people struggling with rare diseases won’t see that progress if the regulatory state can’t keep up, writes @Judy__Stecker
https://t.co/tOPvG69IZd

[Wheelers Warriors @WheelersWarrior]

It’s @rarediseaseday! #raremom @Judy__Stecker in @WSJ details the need for flexibility from @US_FDA for rare diseases.

“Every morning when he leaves for preschool, I worry it may be the last time he’ll see my face”

cc: @RareDiseases @DrCaliff_FDA @EveryLifeOrg @BeyondBatten

[Judy Stecker @Judy__Stecker]

HAIL TO THE VICTORS!!!! #GoBlue

[Michigan Football @UMichFootball]

Next Stop: Houston

We’re headed to the Natty!

#GoBlue

[Judy Stecker @Judy__Stecker]

Hail yeah! #MichiganVsEverybody

[Michigan Football @UMichFootball]

Three > The

#GoBlue

[Judy Stecker @Judy__Stecker]

@DefenseBaron @POLITICOLive @politico Congratulations!!!

[Judy Stecker @Judy__Stecker]

👀👀

[Brian Harrison @brianeharrison]

👀

[Judy Stecker @Judy__Stecker]

Could not agree more! Congratulations Chris and thank you for your service!

[HHS Assistant Secretary for Public Affairs @HHS_Spox]

There’s no overstating how great former @HHSGov photographer Chris Smith is — both personally and professionally.

Glad to see him getting the recognition he deserves after 38 years of federal service, 32 of which he spent at HHS.

https://t.co/FlXGnLCqdh via @FederalNewsNet