It is because of the gold standard research conducted at NIH that children with rare diseases are provided the opportunity of lifesaving therapies and treatments.
We are proud of our friends at @US_FDA launching a framework for accelerating the development of individualized therapies for ultra rare diseases.
Read more about FDA’s plan to accelerate cures here ➡️ https://t.co/XYRq2u0XiF @HHSGov
Been to every @GOPconvention and @DemConvention since 2004, this year the view looks a little different . . . To all those attending either or both conventions, have fun, stay safe and someone snag me an @CNN grill pint glass for my collection! 🍻 @CNNPR@POLITICOLive#RNCinMKE
@howardfineman I am so sorry for your loss. He was so kind and generous with his time when we would connect during my time at Heritage and AEI. May his memory be a blessing.
Honoring Arab Americans’ impact in shaping health care history: Alex Azar served as the U.S. Secretary of HHS from 2018 to 2021, HHS General Counsel from 2001 to 2005, and Deputy Secretary of HHS from 2005 to 2007. Thank you for your service!
#ArabAmericanHeritageMonth
@PJSkerrett@statnews@thekibosch Glad to have you back and what a testament to you and the STAT team professionally that you’d return to support your colleagues!
A very moving WSJ piece by my friend @Judy__Stecker about the potential of cures for rare diseases (and how the FDA could do less to slow down these cures) https://t.co/YwFRWYxtNx?
My dear friend who’s son is terminal with a rare disease wrote this OpEd. Please read it.
It’s infuriating that bureaucrats are making it unnecessarily hard to treat her son and other kids like him.
The FDA Could Help Save My Son From a Rare Disease https://t.co/DfQbotJHy9
My brave friend @Judy__Stecker writes about how cutting FDA red tape could help kids with rare diseases, like her brave kiddo @WheelersWarrior. They've used this flexibility bf & can again for very small groups of patients for whom time is of essence.
The pace of science is accelerating, but people struggling with rare diseases won’t see that progress if the regulatory state can’t keep up, writes @Judy__Stecker
https://t.co/tOPvG69IZd
There’s no overstating how great former @HHSGov photographer Chris Smith is — both personally and professionally.
Glad to see him getting the recognition he deserves after 38 years of federal service, 32 of which he spent at HHS.
https://t.co/FlXGnLCqdh via @FederalNewsNet