Natalie Helena andre

[IPOPI @ipopi_info]

IPIC 5th Edition Day 2 has kicked off with discussions focusing on Management of Gastrointestinal and Hepatic manifestions in PIDs. #IPIC5 participants are also following through the congress web app!

[Leire Solis @LeireSolis]

Very interesting talk about #malignancy spectrum of #PIDs by Dr Ton Langerak at #IPIC5 by @ipopi_info

[Johan Prevot @JohanPrevot]

Prof Stephen Jolles opens @Medscape symposium supported by @CSLBehring at #IPIC5 on improving #PID care by outlining consequences of delayed diagnosis incl. impact of recurrent infections, end organ damage, non infectious complications, malignancy....early diagnosis is crucial!

[IPOPI @ipopi_info]

Excited to learn from @APSID_PID, @AfricanAsid, @ClinImmSoc @ESIDsociety, @LASIDimmuno & #SEAPID at #IPIC5

[Plasma Users @PlasmaUsers]

A full room to kick off the #PLUSStakeholdersConference2022! We are just starting the 2-day meeting with plenty of opportunities to discuss the current situation of #PDMPs #plasmaderivedmedicines

[Plasma Users @PlasmaUsers]

Breakup groups this morning to discuss how to collect more plasma in the EU #PLUSStakeholdersConference2022 #PLUS2022

[Natalie Helena andre @JunketerNatBoo]

@natalimorris I came to the conclusion that they are designed for ladies with small or unenhanced assets.

[IPOPI @ipopi_info]

Fresh news from #IPIC5: registration *and* abstract submission are now open!
Secure your place at this in-person #medicaleducation event & submit your abstracts for contributions to the field of #clinicalcare of #PID/#IEI.
More on IPOPI e-News: https://t.co/76IMENmw7J

[John Hurst @ProfHurst]

Primary Immunodeficiency affects people of all ages, and for those diagnosed as children and young people the transition to adult care can be worrying. Really pleased to see @ipopi_info addressing this in their latest webinar, and @MahlaouiNizar is a fantastic speaker. 👀 ⬇️ ⭐️

[IPOPI @ipopi_info]

Our colleague @JuliaNordin5 speaking about #primaryimmunodeficiencies patients' experience with #COVID19 pandemic-while they faced an added layer of burden there were also opportunities to fast forward advances such as in home treatment and raised awareness on plasma collection

[IDFA @IDFAustralia]

So pleased #Australia could be a part of this. Thank you to @ipopi_info for the opportunity.

[IPOPI @ipopi_info]

IPOPI staff are happy to take part in #WPIW2021 and marking April 22 with #GPSArt from our recent exercises🏃
Added in a few snaps on contribution to #plasmaavailability and different takes on #qualityoflife
Stay tuned for IPOPI's board members #GPSArt to be published April 29!

[Deirdre Clune @DeirdreCluneMEP]

The 17th @ipopi_info PID Forum on “Primary Immunodeficiencies, Fighting Cancer” is taking place tomorrow. MEP @IJoveva and I will be pleased to host it and to explore the relationship between #PID & Cancer. To register, please DM @LeireSolis. #BeatingCancerPlan #RareDiseases

[Jessie - PID Care China @Jessiequmeng]

The first day of World PI Week 2021. Photos from Division of Immunology - Children's Hospital of Fudan University China! @WorldPIWeek @ipopi_info

[IPOPI @ipopi_info]

We are glad to be at a medical meeting co-organised by @AEDIP_ASL & by Hospital Gregorio Marañón, in Madrid 🇪🇸 about #PID patients in #COVID19 pandemic.
Discussing our high-risk community issues: access to treatment, special recommendations & learnings from this period
#WPIW2021

[Deirdre Clune @DeirdreCluneMEP]

Thank you @IPOPI_info for organising today's event and launching important recommendations on #PIDs and #Cancer - how high-risk patient populations should be considered in #cancer policy. Let's ensure vulnerable groups are part of all upcoming EU cancer initiatives.

[Women of the Future @womenoffuture]

#WOF2020 A fantastic discussion exploring how to develop resilience in radical times featuring @nmimpact in conversation with @mathieuflamini and @JamesCollinsPN #resilience

[IPOPI @ipopi_info]

#DYK that Germany 🇩🇪 has implemented #SCID #NewbornScreening in 2019?

IPOPI and @pid_dsai are co-organising an online IPOPI PID Forum analysing the German #SCID #NBS model's applycation for other European countries.
#screeningsaveslives

[IPOPI @ipopi_info]

Thank you MEP @TomislavSokol for your contribution and support towards the 14th PID Forum on #PandemicManagement protecting to the most vulnerable such as #rarediseases and #PID patients

[IPOPI @ipopi_info]

IPOPI has been helping the #PID patient community through #COVID19 and has also learnt from their specific needs. @martinepergent points out the key issues:
Information, Communication, Cooperation, Innovation and Access to care for all #leavenoonebehind #pandemicmanagement