IPIC 5th Edition Day 2 has kicked off with discussions focusing on Management of Gastrointestinal and Hepatic manifestions in PIDs. #IPIC5 participants are also following through the congress web app!
Prof Stephen Jolles opens @Medscape symposium supported by @CSLBehring at #IPIC5 on improving #PID care by outlining consequences of delayed diagnosis incl. impact of recurrent infections, end organ damage, non infectious complications, malignancy....early diagnosis is crucial!
Fresh news from #IPIC5: registration *and* abstract submission are now open!
Secure your place at this in-person #medicaleducation event & submit your abstracts for contributions to the field of #clinicalcare of #PID/#IEI.
More on IPOPI e-News: https://t.co/76IMENmw7J
Primary Immunodeficiency affects people of all ages, and for those diagnosed as children and young people the transition to adult care can be worrying. Really pleased to see @ipopi_info addressing this in their latest webinar, and @MahlaouiNizar is a fantastic speaker. 👀 ⬇️ ⭐️
Our colleague @JuliaNordin5 speaking about #primaryimmunodeficiencies patients' experience with #COVID19 pandemic-while they faced an added layer of burden there were also opportunities to fast forward advances such as in home treatment and raised awareness on plasma collection
IPOPI staff are happy to take part in #WPIW2021 and marking April 22 with #GPSArt from our recent exercises🏃
Added in a few snaps on contribution to #plasmaavailability and different takes on #qualityoflife
Stay tuned for IPOPI's board members #GPSArt to be published April 29!
The 17th @ipopi_info PID Forum on “Primary Immunodeficiencies, Fighting Cancer” is taking place tomorrow. MEP @IJoveva and I will be pleased to host it and to explore the relationship between #PID & Cancer. To register, please DM @LeireSolis. #BeatingCancerPlan#RareDiseases
We are glad to be at a medical meeting co-organised by @AEDIP_ASL & by Hospital Gregorio Marañón, in Madrid 🇪🇸 about #PID patients in #COVID19 pandemic.
Discussing our high-risk community issues: access to treatment, special recommendations & learnings from this period
#WPIW2021
Thank you @IPOPI_info for organising today's event and launching important recommendations on #PIDs and #Cancer - how high-risk patient populations should be considered in #cancer policy. Let's ensure vulnerable groups are part of all upcoming EU cancer initiatives.
IPOPI has been helping the #PID patient community through #COVID19 and has also learnt from their specific needs. @martinepergent points out the key issues:
Information, Communication, Cooperation, Innovation and Access to care for all #leavenoonebehind#pandemicmanagement