Plasma Users

Platform of Plasma Protein Users, a coalition of organisations of patients with rare plasma-related disorders whose lives rely on plasma proteins products.

[IPOPI @ipopi_info]

🌍 IPOPI’s First Meeting in Egypt!

We were thrilled to join PID experts and our National Member Organisation (Nada) in Cairo for IPOPI’s inaugural meeting in Egypt!

Thanks to Grifols, we explored #Grifols Egypt’s plasma collection facilities, gaining insights into public-private partnerships in plasma-derived medicines.

Special thanks to Dr @nesrineradwan and Dr Sohilla Lotfy for their dedication to the PID community in #Egypt.

We look forward to collaborating with Nada to:
✅ Raise awareness of Primary Immunodeficiencies (PIDs)
✅ Advocate for better access to diagnosis and treatments

We are grateful for the support of Grifols and our colleagues from @wfhemophilia.

#IPOPI #PIDAwareness #PlasmaForLife #Collaboration #PatientAdvocacy

[Plasma Users @PlasmaUsers]

The annual PLUS conference concludes after two highly productive days of discussions.

Our sincere gratitude goes to all participants for their valuable contributions toward improving access to plasma-derived medicinal products for patients in need.

#PLUSConference #Plasma

[Plasma Users @PlasmaUsers]

PLUS Stakeholders Consensus Conference moves into day 2.

Delegates continue discussing on PDMP and critical medicines supply, #SoHO implementation and safety and efficacy of PDMPs worldwide.

#PLUSStakeholderConsensusConference
#PlasmaDerivedMedicinalProducts

[Plasma Users @PlasmaUsers]

Today is the first day of the PLUS Annual Stakeholder Consensus Conference in Estoril, Portugal!

We are pleased to welcome representatives from @EHC_Haemophilia, @ipopi_info, @alpha1bel, @gbscidp, @PlasmaProteins, @IPFAevents, @EUBloodAlliance, @wfhemophilia, MRB, APLUS and EPA.

[IPOPI @ipopi_info]

🎥💖 Thank you for your support and for helping us spread awareness!

👉 Haven’t watched yet? Watch both videos to learn about the life-saving power of plasma therapies.

📺 Part 1 - https://t.co/1PRmvRm8R6
📺 Part 2 - https://t.co/p7rAJgEnlI

Keep sharing to help us spread the word and make a difference! 🌟

#IPOPI #Immunodeficiencies #Plasma #EssentialTherapies #yourplasmaourlives

[IPOPI @ipopi_info]

📢 Have You Seen Part 2 Yet? 📢

Our second mini documentary, "Immunoglobulins: Essential medicines to treat immunodeficiencies", is now live!

Watch, like, and share! https://t.co/H4kAUYUBKM

#IPOPI #PlasmaSavesLives #IPAW2024 #yourplasmaourlives

[IPOPI @ipopi_info]

📢 IPOPI Mini Documentaries Premiere!

🩸 "Turning Plasma into Life-saving Treatments"
https://t.co/1PRmvRm8R6 - Part 1

Thanks to all who made this possible - doctors, specialists, and our partners. Special thanks to @CSLBehring for their unrestricted grant.

📺 The mini-docs are launched during International Plasma Awareness Week, both parts are now live on our YouTube channel! 📷

#PlasmaAwareness #IPOPI #PlasmaSavesLives #IPAW2024

[IPOPI @ipopi_info]

🎥 New teaser available!

This 40 second video unveils the content of the second IPOPI mini-doc 💉

Stay tuned for the release, and be a part of raising awareness for this vital cause! 🙌

#Immunoglobulins #PlasmaSavesLives #IPAW2024 #LifeSavingMedicine #ComingSoon #MiniDocs #BeAHero #IPOPI #yourplasmaourlives

[IPOPI @ipopi_info]

🌍 International Plasma Awareness Week is almost here, and we're excited to unveil something special!

Join us on an inspiring journey to discover how plasma becomes life-saving medicines like immunoglobulins for patients with immunodeficiencies.

📅 Stay tuned for the release of our brand-new mini-docs on our Youtube channel!

#PlasmaSavesLives #BeADonor #Immunoglobulins #LifeSavingMedicine #IPAW2024 #TogetherWeAreStronger #IPOPI

[IPOPI @ipopi_info]

IPOPI welcomes the adoption of the EU Regulation on Substances of Human Origin.

We look forward to working with Member States and other stakeholders to ensure that the ultimate objective of meeting patients’ need for life saving plasma-derived medicines, such as immunoglobulin therapies, is met.

👉 Read more: https://t.co/zZMGfzqXWI #IPOPI #SoHORegulation #EURegulation #PublicHealth #EU #Brussels

[IPOPI @ipopi_info]

The SoHO Conference continues: Time to look into how the SoHO will interplay with other legislation, such as the #PharmaLegislation.

Ensuring a good interplay is key to ensure that patients access their livesaving #PDMPs such as #immunoglobulin therapies.

#sohoregulation #EU #IPOPI #EuropeanHealth #safety #quality

[Johan Prevot @JohanPrevot]

The successful implementation of the #sohoregulation will be key to optimise patient access to #PDMPs. IPOPI believes that national plans geared at boosting #plasma collection through #plasmapheresis programmes & embracing a public-private approach for plasma collection are key!

[Plasma Users @PlasmaUsers]

Ending two amazing days at PLUS Stakeholders Consensus Conference.

Big thanks to all the participants for diving into important talks on plasma-derived medicinal products, addressing the needs of patients.

#PlasmaDerivedMedicinalProducts #Immunoglobulins

[Plasma Users @PlasmaUsers]

💡 PLUS Stakeholders Consensus Conference, Estoril - Day 2! Continuing discussions on plasma-derived medicinal products. 💬

#PLUSStakeholderConsensusConference #PlasmaDerivedMedicinalProducts #Immunoglobulins

[Plasma Users @PlasmaUsers]

PLUS Stakeholders Consensus Conference in Estoril.

A great opportunity for patient representatives dependent of on #plasma-derived medicinal products with industry representatives, plasma collectors and donors on key dossiers of relevance for patients.
#PDMPs #PlusMeeting

[Johan Prevot @JohanPrevot]

Thank you Commissioner @SKyriakidesEU for listening to us. We totally agree with you that the EU must work on #newbornscreening. The efforts made so far with the @Screen4Rare ERNs workstreams with the Commission's support is a great basis to take this work to the next level!

[Martine Pergent @martinepergent]

We hereby express our gratitude to plasma donors 🙏and hope that everyone 💛💡understands the deep need that patients, children and adults, have for plasma-derived medicinal products like #immunoglobulins #YouAreMyMedicine

[Leire Solis @LeireSolis]

#YouAreMyMedicine - a fantastic way of recognising the crucial role of donors for patients depending from #immunoglobulins

Are you a patient with PIDs relying on #immunoglobulins? Join the global @ipopi_info campaign and share your story!

[IPOPI @ipopi_info]

Patients with primary immunodeficiencies in the EU need a strong #SoHORegulation, guaranteeing sustained access to immunoglobulins and adapting to advancements in science and tech.

📣 Join us in emphasising this essential call for change during #IPAW2023!

[IPOPI @ipopi_info]

We stand together during #IPAW2023, advocating for patients with primary immunodeficiencies!

Immunoglobulins are medicines derived from plasma. These therapies safeguard those with weakened immune systems, offering protection from serious illnesses - a lifeline for patients. 🫂