@RepKinsey Thank you for your service. I remember meeting you in 2018 when I came to the House to speak about sickle cell disease. You offered me your office to rest quietly in because I was in crisis. I will never forget that. Thank you for being a nice person to me. ๐๐พ
@ak_gobang I pray she gets better real soon. I remember spending Christmas in SC pain in the hospital. I came home on the 27 and we celebrated Christmas then. Itโs wasnโt the day but the time spent with family that meant the most to me. Happy Birthday to your princess ๐
@ak_gobang@Teco_Raww Iโve learned not everyone is your friend. I have 2 BFFs & 2 GFs. I havenโt had a crisis in 4 yrs. Godโs plan. Knowing my limits & triggers helps. Being the SCDAA Ambassador taught me a lot. I have SCD, it doesnโt have me. Iโd love to meet u.
@PTMcGann I pray God allows me to make it to that age. Iโm only 13 and those are my thoughts sometimes. The history of that 66 year old is priceless. I have great shoulders to stand on.
@PTMcGann I donโt agree with this. It is so easy to say that chronic pain is exaggerated when one has never experienced such pain or watched their child cringe in SCD pain. Drs have a moral & ethical obligation to help their patients. This is judgmental.
@bluebirdbio I am glad that we have encouraging stories like Treyโs to read about. Having SCD is difficult, but having strong shoulders to stand on and look up to for encouragement often makes a difference.
@SCDAAorg ๐ข๐ข๐ข I know I am too young to understand this, but I am just so sad about this news. I love Mrs. Beverley! She supported and loved me since day one! Wherever she goes, I know she will be great. @BeverleyFranc19 I will always be your Child Ambassador! โค๏ธ