Kendra Neilsen Myles

Author/Speaker/Mom of 3/#Yoga/Health Education Specialist/#EDS Advocate/Movement • Mindfulness • Nutrition/@Wellapalooza/@SFHEDS/@MastCellHelp/@EDSWellnessSol

[Kendra Neilsen Myles @KNMyles]

Consider helping this fundraiser supporting EDS Wellness, Inc. by donating or sharing with others who'd like to help https://t.co/SrfSZp2ywi.
#GenerosityNetwork
#EDSWellness,Inc.

[Norris Lab @NorrisLab]

It’s official! We have a website: https://t.co/TqlunogVbA

[Norris Lab @NorrisLab]

Norris lab members with Dr.Sunil Patel, Dr. Daniel Judge, Susan Chalela, PT and Camille Schrier, Miss America 2020 for a hypermobile #EhlersDanlosSyndrome research event!

[The Ehlers-Danlos Society @TheEDSociety]

"We found her diagnosis through whole-exome sequencing. Halle suffers from myopathic Ehlers-Danlos syndrome (mEDS). I am hopeful that by spreading awareness Halle will have better treatment available to her as she reaches adulthood." https://t.co/BFXHsvGkb8 #MyopathicEDS

[Lisa Jamieson @LoveInYourTummy]

Hypermobile Ehlers-Danlos Syndrome (hEDS) is probably the most common condition that pharmacists have never heard of.

“Some pharmacists might be aware of the disorder through the media, but there is no formal education about it for pharmacists anywhere.”
https://t.co/RRI0ZDoWlW

[Kendra Neilsen Myles @KNMyles]

@chronicallycaty 👏👏👏

[Chronically-ill Caty @chronicallycaty]

“Until the narrative that hEDS is ‘rare’ shifts, ‘nothing is going to change’, she warns. ‘Primary care clinicians will not be educated on the condition; research into it will not be funded, and people will continue to fall through the cracks.’”

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

Delighted to featured in this article on #ehlersdanlossyndromes #EDS #HSD #JHS in INews today for May awareness month. Late diagnosis yet maybe not so rare
@sedshsd @BendyBrain @HannahPopsy https://t.co/GvH1eUVdyy

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

I feel privileged and delighted to speak at this conference #IARF21 on 19.5.21 at 12.30 approx. on #hypermobility #EDS, Why it matters for attendance and attainment in mainstream #education, #health, and #employment
Rarely am I invited to speak in this company!
@festivallar

[Anne Maitland, MD @asktheallergist]

Your Immune System Could Be Hurting You as a Way of Signalling to Others https://t.co/vrJHLe2KN5

[Lisa Jamieson @LoveInYourTummy]

I have some news about my nutrition research in hypermobile Ehlers-Danlos Syndrome (hEDS)

[Sabeeha Malek, PhD @SabeehaMalek]

Please also see the blog on @hEDStogether for a shorter and more easier-to-read lay summary of the main findings! https://t.co/3OlgvP5KLb

[Sabeeha Malek, PhD @SabeehaMalek]

In our review, we explain how fibroblasts play a significant role in the connective tissue, by adhering to collagen and pulling on it to control tissue tension via a mechanism called “tensional homeostasis” https://t.co/uw1LmvDPgF

[Hypermobility MD: Dr Linda Bluestein @BluesteinLinda]

@LoveInYourTummy @lunettaporchett @roomcmoo @cyberjennifer @EmLyWill @DrEReinhold @GemmaSPearce @SallyPezaro @barnes_johnson @TheEDSociety @wirebird50 @H2OhTwist @Asher_Wolf @DrEmBurnsEDS And although we say it again and again that hypermobility spectrum disorders are no less serious than Ehlers-Danlos syndromes, that is simply not how most medical professionals view the situation.🤯😳🤮🤕

[OhTWIST.bsky.social now too @H2OhTwist]

SO MUCH THIS. 🧐🥺🤬👇

[Hypermobility MD: Dr Linda Bluestein @BluesteinLinda]

@BendyBrain Me too!!!!!

@HMSACharity @EDSawareness1 @EDSWellnessSol @ehlersdanlosuk @healthydancerca @HBMastCells

Bendy folks,
Have you heard about the intersection between Hypermobility, autonomic dysfunction, and neurodevelopmental disorders?

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

#UKEdConf21 Tomorrow talk on #hypermobility issues with pupils in primary and secondary #schools and impending launch of the new #SchoolToolkit for #EDS #HSD #hypermobility #edutwitter
time: 11.36 am CPD
@KayJulier @ehlersdanlosuk @HMSACharity
https://t.co/m1jWhcYNBD

[All of them snollygosters... @OnlyEnnui]

@dgurdasani1 https://t.co/aNUDYRC7MU

[Dr. Deepti Gurdasani @dgurdasani1]

Many of us have repeatedly said that COVID-19 outcomes are not only about deaths, and long-term impact on public health is vitally important. This is why our strategy shouldn't focus only on hospitalisations and deaths, but rather on controlling transmission.

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

Since I started calling to #CountLongCovid 9 months ago, this is the most significant prevalence analysis and it's def time to end the denial and start viewing covid infection in younger & healthy groups as bad news. It's also time to end the gaslighting of people with#LongCovid