Consider helping this fundraiser supporting EDS Wellness, Inc. by donating or sharing with others who'd like to help https://t.co/SrfSZp2ywi.
#GenerosityNetwork#EDSWellness,Inc.
Norris lab members with Dr.Sunil Patel, Dr. Daniel Judge, Susan Chalela, PT and Camille Schrier, Miss America 2020 for a hypermobile #EhlersDanlosSyndrome research event!
"We found her diagnosis through whole-exome sequencing. Halle suffers from myopathic Ehlers-Danlos syndrome (mEDS). I am hopeful that by spreading awareness Halle will have better treatment available to her as she reaches adulthood." https://t.co/BFXHsvGkb8 #MyopathicEDS
Hypermobile Ehlers-Danlos Syndrome (hEDS) is probably the most common condition that pharmacists have never heard of.
“Some pharmacists might be aware of the disorder through the media, but there is no formal education about it for pharmacists anywhere.”
https://t.co/RRI0ZDoWlW
“Until the narrative that hEDS is ‘rare’ shifts, ‘nothing is going to change’, she warns. ‘Primary care clinicians will not be educated on the condition; research into it will not be funded, and people will continue to fall through the cracks.’”
I feel privileged and delighted to speak at this conference #IARF21 on 19.5.21 at 12.30 approx. on #hypermobility#EDS, Why it matters for attendance and attainment in mainstream #education, #health, and #employment
Rarely am I invited to speak in this company!
@festivallar
In our review, we explain how fibroblasts play a significant role in the connective tissue, by adhering to collagen and pulling on it to control tissue tension via a mechanism called “tensional homeostasis” https://t.co/uw1LmvDPgF
Many of us have repeatedly said that COVID-19 outcomes are not only about deaths, and long-term impact on public health is vitally important. This is why our strategy shouldn't focus only on hospitalisations and deaths, but rather on controlling transmission.
Since I started calling to #CountLongCovid 9 months ago, this is the most significant prevalence analysis and it's def time to end the denial and start viewing covid infection in younger & healthy groups as bad news. It's also time to end the gaslighting of people with#LongCovid