@implausibleblog My concern is that Starmer didn’t know enough about his own policies to say it was wrong immediately. He knows Labour will have to raise taxes to pay for the, yet unfunded, ideas he’s come out with; he couldn’t deny it, not until his spin drs were screaming in his ear to do so!
As 2023 draws to a close, I would like to thank everyone who has supported this account.
For those new to this account, a brief synopsis:
Charlotte’s tumour was on the brain stem. As a result of its location, her tumour was totally inoperable. In terms of treatment, all that was on offer was the standard six weeks’ of radiotherapy and a course of Temozolomide (a drug developed in 1999. There has been little progress since). Charlotte was diagnosed originally with a grade three Anaplastic Astrocytoma with spinal diffusion. Two years later, this mutated into the deadly grade four Glioblastoma, for which there is currently no cure. Charlotte’s journey was, on the whole, pretty lonely. She had few friends and little to look forward to.
She was a young adult who had, before her cancer diagnosis, suffered from Generalised Anxiety Disorder. She found daily routines incredibly hard. Getting the bus on her own, for example, was beyond her. Her anxiety always got the better. She lacked confidence, considering herself ‘ugly’ and a stranger to the world.
Charlotte’s cancer diagnosis changed all that. She went from being a shy, anxiety ridden teenager, into the bravest and most extroverted of individuals. I think that the gravity of her situation – now that it was life or death – brought about a change in the way Charlotte viewed her anxiety and the world in which it manifested. In June 2014, Charlotte started her You Tube channel. She was one of the first to document her cancer journey online. After her death, in February 2016, at the age of 19, we were approached by Channel 4. We worked with a production team to make a documentary about Charlotte and two other cancer sufferers. Her channel has reached a global audience, being viewed over twenty-two million times.
We are fortunate, as Charlotte’s channel is the advertisement for the charity, we have no overheads. Miles and I have worked really hard promoting Charlotte’s BAG (Battle against Glioblastoma). The charity we founded following Charlotte’s passing (the name pays homage to Charlotte’s life-long love of handbags!). We pay all our own expenses; if, for example, we attend a meeting at Charlotte’s Lab, at King’s College Hospital, London, we pay all our own rail costs. All funds raised go directly to where they should: to research at Charlotte’s Lab. If you pop a pound in Charlotte’s BAG, 100% of that pound goes to research.
This month’s donations have totalled £1852.19. Tomorrow, following our meeting with the King’s team on 19th December, we will be announcing how the next round of fundraising will be spent. I don’t think many charities can give you a detailed breakdown of where your money goes.
RT/Follow would be appreciated
Thank you again
Alex & Miles x
@LucyLetbyTrial This whole trial has been so difficult to follow; as an experienced neonatal nurse I’ve had so many questions running around my head. My heart goes out to all the devastated families and babies that she harmed
@LucyLetbyTrial I’m finding this case so harrowing, how did all these things happen with no investigations or deep-dives,where was the governance and was the coroner involved. I’m sure there’s things we’re not hearing and the court are (you can’t include everything) but I have so many questions
1/29 We need to talk about these graphs 👇
We have nurses & junior doctors on strike & consultants potentially joining them very soon. Lets talk about inflation & pay. How to fix this car crash (& perhaps more importantly, how NOT to). Please read full 🧵 to end and share / RT
"Claps and applause don't pay our wages...don't provide incentives for people to come into the profession...don't improve staffing or patient safety."
Charlotte is joining #RCNStrike action for reasons all too familiar to the nursing profession.
Retweet to demand change.
@SfhNICU Izzy, you are and always will be a legend and you will be remembered so fondly by so many colleagues and families that you have cared for and supported over those years. Wishing you the happiest retirement, you will be missed by everyone 💕💕
@Nestteam1 have now completed 10 kangaroo cuddle transfers. All babies have remained very settled and all mothers have absolutely loved the experience. Here is a photo of our tenth transfer, very content baby post cooling therapy asleep on her sleeping mother 💕🦘
Great to meet Dr Nicola Anderton in the lovely @SfhNICU to think about @EMNODN North Hub Neonatal Psychology provision. Some really exciting posts to come out in the next little while! Watch this space.