KidneyCancerSupportNetwork - Scotland

Patients first and foremost: we are the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006

[Action Kidney Cancer @ACTION4KC]

12 Days of Giving has launched!
Please help us win £1000 from Ecclesiastical Giving,
All you have to do is vote for us by following the link below:
https://t.co/7ITXr8t6LE

[Action Kidney Cancer @ACTION4KC]

40,000 fewer people started cancer treatment across the UK last year.
We’ve teamed up with 46 other cancer charities to demand Governments in all 4 nations direct resources to clear the backlog of cancer tests and treatments.
#OneCancerVoice

[Steve P @stokiestevep]

Tickets starting to sell well for this event for @KidneycancerSN. If Northern Soul or Motown is your thing, what a great day out. #northernsoul #motown #alldayer #music #dance #tickets #charity #kcsn

[Patient Empowerment Network @power4patients]

Renal Medullary Carcinoma can be succumbed to in as little as one year. With such an aggressive path, why aren’t we seeing more research?

#InvisibleNoMore #ENDRMC #SeeRMC #RareButNOTInvisible

[Tom Powles @tompowles1]

All you need to know about QOL assessment in cancer trials but were afraid to ask. https://t.co/It1Qqneiu0

[Action Kidney Cancer @ACTION4KC]

KCSN has joined forces with 46 cancer charities as One Cancer Voice to urge Governments and NHS leaders across the UK to campaign for a route out of the pandemic towards world-leading cancer services.
Please follow link:
https://t.co/YD9MY1TB4q
@KcsnSco

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

@missfitcreates I would add the pics Debbie, I think they would enhance your book.

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Very moving to hear the carer's perspective #kidneycancer
@maggiesaberdeen @maggiesglasgow @ScotCancerCo @CanRehabTrust @nicolat1974 @KatyGunn

[Action Kidney Cancer @ACTION4KC]

Sue a valued member of our #kidneycancer community is sharing insight into the 'Carer's perspective' in this teaser.
To watch the full video:
https://t.co/9G6QIcw5wq
@IKCCorg @mickcollins106 @stokiestevep @macmillancancer @MaggiesCentres @uroconnursing @missfitcreates

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Our latest patient advocacy opinion piece is sharing the information at the @Cancer52org CEO meeting. To read about the topics please follow link below:
https://t.co/ILfN06HnC3
@ScotCancerCo @CancerSuppScot @maggiesaberdeen @maggiesglasgow @KatyGunn @missfitcreates @nicolat1974

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Lynne's teaser talks about early stage #kidneycancer and how long she's been cancer free.
Plz watch link to see changes our community made to their lifestyle, coped emotionally,physically and what follow up they received.
https://t.co/IPqCwJVAa0
@maggiesglasgow @CancerSuppScot

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Alison is 'Talking about kidney cancer'
In the full video patients share their emotions when told they had #kidneycancer support available, how they told loved ones and implications on their work and finances.
Plz follow: https://t.co/UmbQ1SNXzL
@CancerSuppScot @maggiesglasgow

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Today's video clip is Jon one of our #kidneycancer community sharing from the video 'What can you expect after a nephrectomy' along with Steve and Andy, they talk about their stay in hospital and getting home.
To view the full video: https://t.co/2eTC5DAtzt
@KatyGunn @nicolat1974

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Plz share this teaser from the 2nd video in the series 'Patients, in their own words' Our community spoke of their experiences to help support families coping with a diagnosis of #kidneycancer
For full video follow link:
https://t.co/IPqCwJVAa0

@CancerSuppScot @maggiesglasgow

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Great #new for #kidneycancer patients. SMC have approved the combo avelumab+axitinib for treatment in NHS Scotland
@scotgovhealth @Pfizer_UK @merckgroup @laskeyj @Beatson_Charity @maggiesglasgow @GregorMcNie @ScotCancerCo @CancerSuppScot @

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Are you looking for a goal? Plz enter the free ballot for the London Marathon on the 3rd Oct 2021. The ballot closes at 17.00 on 9th Oct. Join the everyday heroes and raise funds to help #kidneycancer patients and us on the streets of London next autumn.

https://t.co/4zSBm2b2on

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Today we launched eight videos titled 'Patients,in our own words'. We are sharing 'Coping with the diagnosis of kidney cancer Part 1' where our community talk frankly about their thoughts. Plz see link below for the full video
https://t.co/oQVGISoTki @KidneycancerSN @IKCCorg

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Meet Steve a #kidneycancer champion who since being diagnosed has spent his free time supporting us and others by sharing his experiences and running zoom patient meetings. Plz follow the link to read how his life has been affected @stokiestevep
https://t.co/BU82bXXdef

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Delighted Scottish Medicines Consortium approved the combination pembrolizumab with axitinib as a new first line treatment option for patients with metastatic #kidneycancer and to be consultants in the appraisal for SMC @Pfizer_UK @MerckHealthcare @Beatson_Charity @KidneycancerSN

[KidneyCancerSupportNetwork - Scotland @KcsnScotland]

Thx for all that you do @stokiestevep one of our community, you are amazing and generous helping others diagnosed with #kidneycancer with your positive and hopeful perspective on life!
@KidneycancerSN @IKCCorgT

[Steve P @stokiestevep]

4 years ago today I was lying in a hospital bed 12 hours away from my life changing forever & being told I had #kidneycancer. Beat it that time but it came back in 2018, but beat it again! 2yrs clear. Life is so tough still @ times and a real struggle, but there is hope. #cancer

[NHS Lothian Dietitians @NHSL_Dietetics]

We agree, nutrition is SO important to health 💚. We do appreciate the advocacy of our medical and other colleagues in realising our value, this helps SO much. Thank you! 😃