@ACsomenumbers@KellyMartin02@alisonisawoman It is only said to be "rare" because there has never been adequate research. Talking to patients is legitimate in the absence of such research. After all SSRI withdrawal was said to be unproblematic based on inadequate research. Harmed patients had to become vocal as a result.
@Barbara45426641 Fucking hilarious how the mask slips and they always get in some kind of pathetic insult like “patients are unusual”. The sociopaths
can’t hide their contempt.
@drannamedical@LionAdvocacy You paid a heavy price for seeing what was wrong and stopping Dr. Anna. You are doing the right thing. Please don’t beat yourself up. You are brilliant and realized in time the horrors. You could not have known.
Yes, we know it's real. We don't need your assurance about that. The 2nd paragraph is where the bs is buried. Acknowledging harm, whilst calling it "rare" and providing NO support to patients dealing with iatrogenic harm is not acceptable. But this is undeniably the situation.
@ompsychiatrist And even when you do it correctly it can still hurt people. We are most upset by the denial that iatrogenic harm happens in psychiatry and that there is no support for those of us who have been injured. It’s like guild-wide denial. It’s weird, truly.
"Sexual side effects from SSRIs affect 50-70% of users. For a subset of people, these effects (including genital numbness and anorgasmia) persist long after discontinuation, a condition known as Post-SSRI Sexual Dysfunction (PSSD)."
I've spent decades supporting people coming off benzodiazepines at UK's longest-running benzo service. This often poorly served group is why I do this work. That's not a criticism of people who find psychotropic medication helpful. Patient choice and informed consent.
@benzosarebad@DuthieAlyne@recover2renew That these attitudes exist is no surprise as we know very well what they're like. What does surprise me is how openly they show their contempt for criticism, and their self assurance that their power is untouchable.
The most important part of this title is not "ECT."
It is "open questions."
Science advances through unanswered questions, not through the assumption that debate has already ended.
For decades, patients have raised concerns about:
memory loss,
cognitive impairment,
identity disruption,
long-term outcomes,
informed consent,
and the gap between patient experiences and institutional narratives.
These concerns should not be dismissed simply because ECT is an established treatment.
History teaches us that medical legitimacy and scientific certainty are not the same thing.
The fuller picture emerges when we are willing to examine not only reported benefits, but also harms, uncertainties, limitations, and the experiences of those who believe they were injured.
Patients deserve more than reassurance.
They deserve transparency.
Open questions are not a weakness of science.
They are often where the most important discoveries begin.
@RecoveryDoctor@markhoro@angpeacock1111@BadreNicolas@DavidJuurlink The numbers are potentially alarming. All the ones in online support groups are the ones who have already connected the dots. How many are actually going through withdrawal but have been misdiagnosed by their doctor? We'll never really know the real numbers.
@RecoveryDoctor Many people in the #prescribedharm community are on SSI or SSDI disability because we're unable to work after being injured by these drugs. Not only from withdrawal but many are dealing with drug-induced neurological dysfunction. It's definitely not nonsense.
@jill_d35@ReadReadj@MalleyGlass Failure to get informed consent is also unethical. Coercion is unethical. Failing to care for the injured could also be said to be unethical
@MalleyGlass@ReadReadj Well how convenient? I tell you what else is unethical. Failing to gather data on adverse effects of ECT, such as cognitive impairment and memory loss. After 90 years of causing these harms, I think psychiatrists have a nerve to try and take the moral high ground.