Mito Girl

I'm living with mitochondrial disease, dysautonomia and Ehlers-Danlos syndrome

[Mito Girl @LIVINwithMITO]

@DevinShuman @FedEx Good luck 🤞

[Mito Girl @LIVINwithMITO]

@netflix I’m disabled and spend time staying with different family members. I want to be able to continue watching my #Netflix wherever I am and cannot afford to pay more.

[Mito Girl @LIVINwithMITO]

@ChipotleTweets I wish this was real!

[Mito Girl @LIVINwithMITO]

I have been waiting months for an appointment and 2 days before it, I learned that they changed the location awhile back making it more than double the distance. Then they act like it’s a favor to get me an appointment where mine was booked for in mid November 😡

[Mito Girl @LIVINwithMITO]

Being heat intolerant during one of the hottest summers is no fun 🥵. Most of the time feel so out of it.

[Mito Girl @LIVINwithMITO]

@cvspharmacy if someone goes away for a few days and forgets a medication, is it possible to get a few pills early from a different CVS? 🤞😬

[Mito Girl @LIVINwithMITO]

@NathanMackBrown Me 🙋🏻‍♀️

[Mito Girl @LIVINwithMITO]

@DanRather High risk people still need to get from place to place. It already sucks and is isolating having a rare disease. I should be able to fly and see my parents (and I avoid public places when I get there), have also had to fly for medical care.

[Mito Girl @LIVINwithMITO]

@DanRather I’m high risk, apparently the majority of people don’t care. If the person next to me was also wearing a mask, it could help keep me safe and that shouldn’t be too much to ask 😷

[Mito Girl @LIVINwithMITO]

@Cheesecake It was you and I can pick it up tomorrow, you don’t have to deliver 😉 🍰

[Mito Girl @LIVINwithMITO]

Sometimes I’m so sick and tired of being sick and tired #chronicillness

[Mito Girl @LIVINwithMITO]

@ChipotleTweets #ChipotleBurritoBuilder

[Mito Girl @LIVINwithMITO]

@Wait_What_How I’ve waited longer, wish they would pay for parking when that happens

[Mito Girl @LIVINwithMITO]

@morethanmySLE I’m afraid to take that step and get on an app 🤦🏻‍♀️

[Mito Girl @LIVINwithMITO]

@JetBlue it’s been awhile since I flew, what’s the boarding process like now? I have trouble standing still without fainting so used to board early (before the long line), will I still be able to do that?

[Mito Girl @LIVINwithMITO]

My New Year’s resolution is to win Powerball 🤞

[Mito Girl @LIVINwithMITO]

@jeremyfaust should a 70 pound kid who turns 12 this week get the same vaccine as a full size adult or wait for the smaller dose that will soon be available (& that most of his heavier classmates will get). What would you do?

[Mito Girl @LIVINwithMITO]

Is anyone else still super afraid to do stuff? I’m vaccinated but still am not comfortable going in most places or even seeing friends inside #COVID19

[Dysautonomia Intl. @Dysautonomia]

Though most people should focus on reducing their salt intake, Dr. Satish Raj explained why living the salty life might actually help POTS patients at #DysConf2021. Register for free to see the video of his talk and other conference lectures at https://t.co/DaFm6mav4m.

[Mito Girl @LIVINwithMITO]

@RichardEngel @mitchellreports When are you getting out?