✨❤ Laura Triplett ❤✨

✨Aloha y'all!🌺ALS Warrior🔱Happy Wife🦄Kitty&Akita Mom🐈🐕Plumeria Grower📸🐲🧜‍♀️🧘🏼‍♀️🏄🏼‍♀️Bon Vivant🥢🍸Hummingbird; Baby,I'm a⭐&Future Kama'aina🤙🏼✨

[I AM ALS @iamalsorg]

Breaking news: The FDA has approved Tofersen for SOD1 ALS! @US_FDA thank you for living up to your promise of regulatory flexibility for ALS. ALS community: YOU made this happen with your relentless advocacy. Remember that. Stay tuned for updates on access to this treatment!

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

This is why my #Synapticure neurologist is a total #rockstar
#ALS #AmyotrophicLateralSclerosis

[Jaime Martin MD PhD @DrJaimeMartin]

Let the games begin! @AANmember #AAN2023 Help me help my @synapticure patient
@LahainaLaura #LauraTriplett raise #ALSAwareness! Let’s take a pic and post!

[Jaime Martin MD PhD @DrJaimeMartin]

Look who I found! Just some @Synapticure folk hanging out! We should have taken a picture before @Teleneurology left, Dr. Faber!! 😉 @AANmember #AAN2023
#ALSAwareness @LahainaLaura #LauraTriplett #Parkinsons #LetsTalkAboutHD #Huntingtonsdisease #AANAM

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

I stand on the shoulders of giants. Sandra and Brian are my heros, I am can only dream of changing the world the way they have. @LeighWaldman 🤍

[Sandra Abrevaya @sabrevaya]

We are hitting the road again!! Join us and if you want updates on where we are screening next, sign up for emails at https://t.co/sz846iTjlR

Looking forward to continuing to bring more people into the fight!!!

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

We asking the @FDA to use the same regulatory flexiblity it does for cancer. @JohnCornyn @SenTedCruz @JoaquinCastroTX @KSATnews @LeighWaldman 🤍

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

FDA uses AA for cancer
n=84
🔹3.6%→CR (n=3)
🔹35%→PR (n=29)
🔹61%→NO RESPONSE
🔹12 mo impact

@DrCaliff_FDA @FDACBER
#SomeisEnough in cancer, why not #ALS!

#NurOwn n=189
🔹35% →1.25 pt/mo slowing
🔹70%+ →27+ scale changed how 'feel & function'
🔹34+ scale→HALT PROGRESSION

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

Day three of #Relyvrio thank you again @synapticure
Relyvrio has such a bad taste Amylyx sent Listerine strips in the welcome packet, I am like SteveO with things that taste bad, so I have never been happier to have a feeding tube!

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

Today is the third anniversary of me receiving the worst news of my life : "You have #ALS"; yet I choose to be grateful to still be here, grateful for your love and support, grateful for my awesome sleeping partners. 🤣✨🤍✨
#ALSWarrior #ALSAwareness #ALSCommunity #ALSsucks

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

Please sign
🔱 #ALSWarrior 🔱 #IAmALS #ALSAwarenes #ALSsucks #ALS #AmyotrophicLateralSclerosis #MotorNeuronDisease #MND #ItMattersThatYouDontJustGiveUp #WhatDoWeSayToTheGodOfDeathNotToday 🧜🏻‍♀️ #LahainaLaura #SanAntonio #210 #SAT #SATX #SanAntonioTexas #TX #Texas #LoneStarState ⭐

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

Thought I would share some great news with you @LeighWaldman

[Synapticure @synapticure]

We love you back, Laura! Nothing makes us happier than making life easier for our #ALS, #PLS, and #PD patients.

Quick reminder for our #ALS patients: Synapticure has a 100% success rate in Relyvrio approvals. Click here to get started today: https://t.co/6bF499y9RH

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

✨💖✨

[Synapticure @synapticure]

We love you back, Laura! Nothing makes us happier than making life easier for our #ALS, #PLS, and #PD patients.

Quick reminder for our #ALS patients: Synapticure has a 100% success rate in Relyvrio approvals. Click here to get started today: https://t.co/6bF499y9RH

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

Too many #families have #lovedones who are #DyingWaiting for a chance to try #NurOwn for treatment of #ALS help us #EndALS please
@JohnCornyn @JoaquinCastroTX @SenTedCruz @KSATnews @LeighWaldman

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Matt has #ALS
Wants to live long enough so kids remember him

Asking #FDA to give he & #MAYO neurologists chance to share evidence that #NurOwnWorks

⬇️Press Release
https://t.co/lz2fgrwxAx

⬇️Sign Petition
https://t.co/S2NhIvuD3L

#DisneyWorld50 #MickeyMouse #NurOwn #vacation

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

I have heard several stories of how #NurOwnWorks, we the #ALSCommunity would like the chance to try it, please help us by signing the #petition
@JohnCornyn @JoaquinCastroTX @SenTedCruz @KSATnews @LeighWaldman

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

33 yo Josh has #ALS
Rcvd #Nurown in trial & compassionate use from top #neurologist at #UMass

FDA Let him share evidence that #NurOwnWorks
See #Muscles
Still #Walking
Slowed #Paralysis
Needs More

⬇️Sign Petition
https://t.co/S2NhIvuD3L

⬇️Press Release
https://t.co/lz2fgrwxAx

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

My #Akitas take care of me, I dream of being able to pet them. Can you help me by signing the petition please? I would like the chance to try #NurOwn
@JohnCornyn @JoaquinCastroTX @SenTedCruz @KSATnews @LeighWaldman

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

@MaxwellFrostFL Gen-Z #Floridian needs help

▪️Kade was dx'd w fatal #ALS at 21 yo
▪️Stem cell therapy #NurOwn slowed his paralysis
▪️Need FDA to let Kade's world class MAYO #neurologists testify re how #NurOwnWorks

⬇️Sign Petition
https://t.co/S2NhIvuD3L

#Pitbull #DogsOnTwitter #DogsAreLove

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

pALS https://t.co/nho1foCjNY via @YouTube

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

I want to keep watching the #SanAntonioSpurs and the #HoustonTexans help me do so by signing the petition to get #NurOwn a hearing for #ALS from the #FDA
@JohnCornyn @JoaquinCastroTX @SenTedCruz @LeighWaldman @KSATnews

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Marcus wants to keep watching #baseball & #hockey

Help him fight #ALS by asking FDA to let top #neurologists from @UMassChanNeuro & @MGHNeurology testify re #NurOwn, a drug that helped some slow their paralysis.

⬇️Sign Petition
https://t.co/S2NhIvctPD

#HockeyTwitter #Boston

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

I have a nurse who comes to place my Radicava needle twice a month, her first #ALS patient was a #NavySEAL help #TXVets get a chance to try #NurOwn
@JohnCornyn @JoaquinCastroTX @SenTedCruz @LeighWaldman @KSATnews

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Tyler is an #Oklahoma native & #USMC #Veteran fighting ALS

#Veterans get #ALS from their service
Now Tyler needs us to fight for him

⬇️Info on #Vets with ALS:
https://t.co/EIJpRzMlkv

⬇️Help Tyler get an FDA hearing re #NurOwn
https://t.co/S2NhIvctPD

#WoundedWarrior #EndALS

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

We asking all the data for #NurOwn be considered for always fatal #ALS
@JohnCornyn @JoaquinCastroTX @SenTedCruz @LeighWaldman @KSATnews

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Former #Argentinian Senator @estebanbullrich sends letter to @POTUS @JoeBiden, asking FDA to exercise "broadest of regulatory flexibility"when considering approval of #NurOwn for fatal #ALS

Trial met clinical & statistical significance for people w ALSFRS-R scores of 27+

@WHCOS

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

#EndALS @JohnCornyn @JoaquinCastroTX @SenTedCruz #KSAT

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

With #NurOwn, progression stopped.
Without NurOwn, decline resumed.

@FDACBER @DrCaliff_FDA
These patient reported outcomes deserve to be heard at a transparent public #FDA hearing. Let Gayle's #neurologist testify re how #NurOwnWorks.

#NoAdComNoVoice
@TexasLawyer #EndALS #ALS

[✨❤ Laura Triplett ❤✨ @LahainaLaura]

#EndALS @JohnCornyn @JoaquinCastroTX @SenTedCruz #KSAT

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

In US, #Veterans get 100% fatal #ALS from serving our country.

Asking @US_FDA to remember #GenMik's words & give #Vets a public hearing & #MedicalArsenal to fight for their lives!

We know #NurOwnWorks

#NoAdComNoVoice
#EndALS #NurOwn

⬇️PRESS RELEASE:
https://t.co/fyreATfwQO