Lisa Burleson

Active runner and mother of two children, one of which has Fibrous Dysplasia

[Lisa Burleson @LisaBurleson12]

@musk_news13 R

[Lisa Burleson @LisaBurleson12]

@DonaldTNews I’d have him walk me to my car.

[Lisa Burleson @LisaBurleson12]

@stclairashley Ridiculous.

[Lisa Burleson @LisaBurleson12]

@AlisonBoyceMD Do you have any experience in surgically reshaping the femoral head, all FD lesion, to move better in the joint? Interested in prognosis and recovery time.

[Lisa Burleson @LisaBurleson12]

@bostonmarathon I never saw that sign!

[Lisa Burleson @LisaBurleson12]

@bostonmarathon @AbbottNews Looking like rain so …

[Lisa Burleson @LisaBurleson12]

@Starkwritten In the 35+ years I’ve run, I’ve never listened to music while running.

[Lisa Burleson @LisaBurleson12]

Eva just finished swimming finals at her Regional swim meet. Lots of pain from prelims but she pushed through! #fibrousdysplasia
#raredisease
@rarediseases
@fdysplasia

[National Organization for Rare Disorders (NORD) @RareDiseases]

Being a family member or friend to someone living with a rare disease can be challenging. Explore the latest #NORDGivesBack content on our blog that dives in the rare sibling experience. Read more: https://t.co/vHqN9nVZ29

[Lisa Burleson @LisaBurleson12]

Proud of my daughter, who has polyostotic fibrous dysplasia in her left leg, for placing well enough in her High School District meet this weekend to advance to Regionals.
#fibrousdysplasia
#raredisease
@rarediseases
@fdysplasia

[Fibrous Dysplasia Support Society @FDSSUK]

These best practice management guidelines for fibrous dysplasia/McCune-Albright syndrome have been viewed over 37,000 times now! An amazing achievement for the FD/MAS international consortium and patient groups https://t.co/lppMiEd8wr

[Lisa Burleson @LisaBurleson12]

Ever try needling for FD pain? We are seeing great success with my daughter. Will see how her leg holds up when swim practice resumes next week 😁

#fibrousdysplasia
#fdysplasia
#rareconnect
#fdssuk
#rarediseases
#fdwarriors
#usaswimming

[Lisa Burleson @LisaBurleson12]

@USASwimming Attended my first para swimming event last week in San Antonio with daughter ... amazing to see so many people with different abilities take on such a challenging sport.

[USA Swimming @USASwimming]

Swimming is a sport for people of all abilities! 🏊‍♂️

Check out our disability resource page for more information on inclusive programs, education resources, and USA Swimming's committee. 👇

#NationalDisabilityDay | #SwimClusion

[Lisa Burleson @LisaBurleson12]

First week of swim practice completed since surgery to remove some hardware in the right leg. Can’t use her legs while swimming for 3 more weeks but she’s glad to be back in the water! #fibrousdysplasia
#fdysplasia
#rareconnect
#fdssuk
#rarediseases
#fdwarriors
#usaswimming

[Lisa Burleson @LisaBurleson12]

@BAA @bostonmarathon Ugh, I’ve been waiting for September all year. Hope they get it figured out.

[Lisa Burleson @LisaBurleson12]

Biannual Texas Childrens appointment today. The 4 pesky screws in my daughters leg can come out soon. Will be nice for her to swim without that knee swelling every time. #fibrousdysplasia
#fdysplasia
#rareconnect
#fdssuk
#rarediseases
#fdwarriors
#usaswimming

[Lisa Burleson @LisaBurleson12]

@USASwimming

[Lisa Burleson @LisaBurleson12]

@TGMare @WeAreNation Trust the process ... but do a test run in October to prove to your brain that it works 😉

[Lisa Burleson @LisaBurleson12]

Want to give a shoutout to Arena for their assistance and genorosity in suggesting a tech suit that may benefit by supporting her weak leg. #arenawaterinstinct #usaswimming #fibrousdysplasia
#fdysplasia
#rareconnect #fdssuk
#rarediseases