#fdssuk - Twitter Hashtag

almost 6 years ago

First week of swim practice completed since surgery to remove some hardware in the right leg. Can’t use her legs while swimming for 3 more weeks but she’s glad to be back in the water! #fibrousdysplasia #fdysplasia #rareconnect #fdssuk #rarediseases #fdwarriors #usaswimming

LisaBurleson12's tweet photo. First week of swim practice completed since surgery to remove some hardware in the right leg. Can’t use her legs while swimming for 3 more weeks but she’s glad to be back in the water! #fibrousdysplasia
#fdysplasia
#rareconnect
#fdssuk
#rarediseases
#fdwarriors
#usaswimming https://t.co/Qu2keFlheH

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Lisa Burleson @LisaBurleson12

almost 6 years ago · Houston

How rare is rare? A child with a polyostotic bone disease + a competitive swimmer. No other like individuals to which she can relate. However, a huge shoutout to a coach at USA Swimming for helpful guidance. #fdysplasia #usaswimming #rareconnect #fdssuk #RareDisease #fdwarriors

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Association MASFD @assoMASFD

over 6 years ago

#FDMAS #fibrousdysplasia #mccunealbright #ADF #EAMAS #FDSSUK #fibreuzedysplasie

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Line Caes @LineCaes

about 7 years ago

Although it is weekend, today marks the official start of my @news_RSE Sabbatical Research Grant. Kicking off tomorrow with a presentation at #FDSSUK aimed to support families of a child with Fibrous Dysplasia. Super excited for what the year ahead will bring!

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Adam Pearce @adampearceuk

over 8 years ago · Birmingham

@AlisonBoyceMD thank you for your talk today Alison. Gutted I had to leave at Lunchtime today. It was my 1st FDSS UK meeting and found it so helpful and informative. Thank you #FibrousDysplasia #FDSSUK

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Adam Pearce @adampearceuk

over 8 years ago · Birmingham

So so lucky to be in Birmingham with the tour and just by chance the Fiberous Dysplasia Support Society Annual Conference is here Too! #FibrousDysplasia #FDSSUK

adampearceuk's tweet photo. So so lucky to be in Birmingham with the tour and just by chance the Fiberous Dysplasia Support Society Annual Conference is here Too!
#FibrousDysplasia
#FDSSUK https://t.co/tySYhOCak0

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