Lisa Emrich

Living with MS and RA. Patient Advocate/Activist. Writer. Musician. BikeMS Cyclist. RA and MS Community Leader and Moderator.

[Humana @Humana]

This year marks the 10th anniversary of the Humana Game Changer program—a way for us to spotlight National Senior Games athletes who break senior stereotypes, exemplify healthy aging and provide encouragement and inspiration for all to live a healthy and active lifestyle.

[Lisa Emrich @LisaEmrich]

I still have symptoms and struggle with overwhelming fatigue. But I am doing really well and plan to continue sitting in the infusion chair 4 times each year for many years to time. #fatiguesucks #butyoudontlooksick #chroniclife #winning

[Lisa Emrich @LisaEmrich]

I received my 50th infusion of #Rituxan, the monoclonal antibody therapy that depletes b-cells. 13 years on RTX so far. It is working quite well to keep my RA and MS in check. #takethatms #multiplesclerosis #rheumatoidarthritis #infusionsrock

[Lisa Emrich @LisaEmrich]

I still have symptoms and struggle with overwhelming fatigue. But I am doing really well and plan to continue sitting in the infusion chair 4 times each year for many years to come. #fatiguesucks #butyoudontlooksick #chroniclife #winning

[Lisa Emrich @LisaEmrich]

I meant every word when I wrote it, and still do!

[MultipleSclerosis.net @MS_HealthUnion]

Pain is pain! When we are in the middle of it, we don’t really care so much what is causing it, we just want it to be gone. https://t.co/hCqeDeWGki #ms #MultipleSclerosis

[Lisa Emrich @LisaEmrich]

@TheSeatedView @lkay54 @CathyChes @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @chroniceileen That sounds really good!

[Lisa Emrich @LisaEmrich]

I'm a fan of black beans and a fan of sweet potatoes. What do you think about putting them together? We may try this once temps drop again.
@lkay54 @CathyChes @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @TheSeatedView @chroniceileen

[Humana @Humana]

Chef Nino’s Sweet Potato and Black Bean Chili is packed full of antioxidants, plant-based protein and diabetes superfoods. Bonus: Learn how to safely cut a sweet potato as Chef Nino heats up the kitchen at our NOLA #NeighborhoodCenter 💚 → https://t.co/COmpE4qAt3

[Lisa Emrich @LisaEmrich]

@CathyChes @lkay54 @DanJenDig @TheGirlWithMS @sboston_pr @AaronBosterMD @MustStopMS @pettigrew66 @TheSeatedView @chroniceileen I would be very sad to have to give up using garlic in cooking. Onions, peppers, garlic, and ginger are the base for curry Rob and I make regularly. But very thankful that they are still an option. ❤️

[Humana @Humana]

Chef Nino says, “Get to cooking!” Bursting with flavor, Southwest Organic Chicken Fajita Sauté is on the menu at our NOLA #NeighborhoodCenter as Chef Nino encourages getting healthier one ingredient at a time. 🥗 → https://t.co/nnsxFWlVMG

[Aaron Boster MD @AaronBosterMD]

B cell repopulation dynamics and drug pharmacokinetics impact SARS-CoV-2 vaccine efficacy in anti-CD20-treated multiple sclerosis patients - PubMed https://t.co/32lk0RlusM

[Laura Kolaczkowski 😷😷😷😷 @lkay54]

MS diagnosis Journey podcast now has 13 episodes to hear. Please check it out at https://t.co/KRlUvxjec7
Hear from these people - @stevedomino @LisaEmrich @pettigrew66 Anita Williams @dizzythedonkey Sue Casey, Shari Short, @TheMSWire 1/2

[Aaron Boster MD @AaronBosterMD]

The 3-m backward walk test: reliability and validity in ambulant people with multiple sclerosis - PubMed https://t.co/td4DYXwqCM

[Laura Kolaczkowski 😷😷😷😷 @lkay54]

#WeHaveMS community - have you caught the MS DIAGNOSIS JOURNEY podcast ? If not, start here with the introduction and listen to the stories from @stevedomino @LisaEmrich Anita Williams, @dizzythedonkey and @pettigrew66 In total there will be 30 podcasts so be sure to subscribe

[Lisa Emrich @LisaEmrich]

@lkay54 I share my story in this MSDiagnosis Journey podcast hosted by @lkay54 . Check it out. #wehavems

[Lisa Emrich @LisaEmrich]

.@RepDonBeyer @MarkWarner @TimKaine can we count on you to support the MS Research Program at the Department of Defense in FY 2023? https://t.co/whUHc7fE6p #MSActivist #MSResearch

[Lisa Emrich @LisaEmrich]

.@RepDonBeyer @MarkWarner @TimKaine will you work with us to help make insurance and prescription drug prices more affordable and accessible? The median annual price for an MS disease modifying therapy: $94,000! https://t.co/U7ulMbyAn5 #MSActivist

[Lisa Emrich @LisaEmrich]

@RachelHorne19 I want to have all the information! MRI reports need to be thorough and I want my neuro to share the significance of findings. Don't hold back. BTW, I always see my images and the MRI report well before the next time I talk to my neuro at a follow-up.

[Lisa Emrich @LisaEmrich]

@GavinGiovannoni After 12 yrs on RTX, I have no idea how long B-cell repopulation would take. Covid vaccine (non)response is <0.4 U/ml. My drs (neuro/rheum) still rec'd not to skip RTX in Aug (not knowing boosters would become available). Feeling stuck in a vicious cycle.

[Lisa Emrich @LisaEmrich]

@AaronBosterMD @Brandon_Beaber @drbarrysinger @mssociety @MS_Focus What is the current recommendation for timing of 3rd/booster #COVID19 vaccine following recent Rituxan/Ocrevus infusions? 4-6 months as before? Or 2+ weeks as rumored the Cleveland Clinic recommends?

[Lisa Emrich @LisaEmrich]

@Brandon_Beaber @ActiveMSer This news came one week too late. I would have absolutely canceled my RTX infusion this past Monday (and the 23rd) to get the booster. I’m in the JH study: <0.4 u/mL antibodies to the spike protein. The emotional feeling of being left behind lingers this weekend.