Girl with MS

Award Winning Blogger, MS Advocate, Consultant, Certified Life Coach & MS Patient Expert. Thriving in life despite multiple sclerosis! #takethatms

[Dr. Brandon Beaber @Brandon_Beaber]

Upcoming videos:

3/5/25: 14 mistakes doctors make with MS
3/12/25: Ocrevus 9-year data
3/19/25: Curing MS: The problem
3/26/25: Is Gadolinium Safe?

Let me know if you have video suggestions. https://t.co/3lw2EkDG7I

[Girl with MS @TheGirlWithMS]

@KTLAMorningNews @KTLA we need help.
Marty Vogel Martin Vogel is missing 😢 He was last seen on December 4th in Glendale CA.

White Mercedes Benz Panel Van License Plate # 10541M1.

A missing persons report has been issued in Glendale CA Grew up La canada. Paralyzed.

[Jaime Imitola MD., FAAN @DrJim4MS]

Please share, join us at the @AANmember 2025 annual meeting, in San Diego. Course C147 #Dx and #Tx in #MS in #diverse #populations with @drruthdobson and @LilyanaAmezcua @MSNewsToday @TheGirlWithMS @IntNatlWiMS @mssociety @uconnhealth @cobanmd
@drjim4ms.bsky.social

[National MS Society @mssociety]

Open enrollment has begun! Insurance coverage is an important part of living well with MS. Whether on Medicare, Employer, or Marketplace insurance, our MS Navigators can help you assess your current plan and compare new ones this year.

Find help here: https://t.co/gOaBcUaDvE

[Dr. Brandon Beaber @Brandon_Beaber]

Christina Applegate on her multiple sclerosis pain: "I lay in bed screaming — like, the sharp pains, the ache, that squeezing. I can’t even pick up my phone sometimes because now it’s traveled into my hands..." https://t.co/uJtP8YZQpv

[christina applegate @1capplegate]

Not the best picture of the girl that apparently ate Christina Applegate. But I was just given this shirt and it makes me happy. Small things.

[Greg Duncan @GregDuncs]

https://t.co/C2wLRnCv0m

I am excited to announce our work on how myelin loss culminates in neurodegeneration has been published at Nature Communications. While I have previously covered our findings as a preprint in more detail below, our key findings are:

[Girl with MS @TheGirlWithMS]

@mariolopezviva So true

[Metro Los Angeles @metrolosangeles]

RIP Fernando Valenzuela whose talent and grace brought so many Angelenos and baseball fans together 🙏🐂⚾️🧢

Our Dodger Stadium Express is now Line 34

[ECTRIMS @ECTRIMS]

🔬 Peek into the future of #MS therapies! In our latest #podcast, Brett Drummond of @MStranslate explores this exciting topic with @hwiendl of @UniFreiburg & Prof. Ludwig Kappos of @UniSpitalBasel. 🎧 Listen now! 👉 https://t.co/5dQAGjmehe

[christina applegate @1capplegate]

On today’s MeSsy podcast we talk to this incredibly funny and wise and wonderful human. Brooke Eby. And she has ALS! Listen today wherever you get your podcasts. Then if you haven’t already, go back and listen from episode 1 xo

[MSJ @MSJ_Research]

Cesarian sections were more common in women with #MultipleSclerosis than the general population.

Canadian MS Pregnancy Study from @dr_dessa @KristenKryskoMD @UBC @stmikeshospital @UnityHealthTO @SMHNeurology @UofTNeurology ▶️ https://t.co/R4GgUpaaz3

[Rachel Horne @RachelHorne19]

A thought...
The post below looked at lifestyle risks of getting MS: lack of Vit D, teen obesity, smoking...
Do u think researchers shld start asking about early trauma?
A 2022 study found childhood sexual & emotional abuse were linked to a greater risk of getting MS later.

[Aaron Boster MD @AaronBosterMD]

Why I’m Cycling 8000 km Across Canada for MS Brain Health – The Mission ... https://t.co/N6Hv1z8kU3 via @themsguide

[Jaime Imitola MD., FAAN @DrJim4MS]

📞🎙️I'm excited to share that I'm hiring a dedicated clinical research coordinator for our team. If you are a scholar interested to work in early #MS, #risk factors and #progression please let me know. @mssociety #Progressive #MS #lifespan #MS. @GlialLab @NegarMowlazadeh

[Jaime Imitola MD., FAAN @DrJim4MS]

Yes. We are changing MS with new criteria and more effective medications. BUT, we need to more to END MS as part of the @mssociety commitment to the "Pathways to cure" STOP, RESTORE. These progress is not helping all our patients. #ruralMS #diverseMS Stay tune @AANmember .

[Matthew Dominick @dominickmatthew]

Timelapse this image was taken from:
https://t.co/6XOFOlBvHy

[Matthew Dominick @dominickmatthew]

We flew over Hurricane Milton about 90 minutes ago. Here is the view out the Dragon Endeavour window. Expect lots of images from this window as this is where I’m sleeping while we wait to undock and return to Earth.

Timelapse coming in a separate post.

1/6400 sec, f8, ISO 500

[National MS Society @mssociety]

Decades ago, it could take 4-5 years to diagnose MS. Today it’s down to months.

The Society brought together MS leaders to create the original diagnostic criteria. Since then, the criteria have been regularly updated - including last year: https://t.co/oHdGWieWLi

[MSJ @MSJ_Research]

The kappa free light chains index (cut-off 6.83) is 100% sensitive and 92% specific at differentiating paediatric #MultipleSclerosis from controls, and, if over 93.77, is 100% specific.

Study from @Hopital_Bicetre @univ_paris_cite ▶️ https://t.co/EzwnXD5r0n