We work with service users, carers, families as part of our pledge to making sure everyone can have a say in how their care is delivered and how that could be improved. Learn more here https://t.co/fEwqI6CrLW or watch our Participation video on YouTube https://t.co/4pndQsSKTa
"Dear Melson. I wanted to say thank you for all your support, your kindness, and for always being there for me when I needed you. Once again, thank you for everything."
Thank you for the difference you make to our Service users Melson!
This #VolunteersWeek we would like to introduce you to our #HuntingtonsDiseaseAmbassadors. They are community members who work with us to help raise awareness by public speaking, talking to the press and media and providing valuable assets for campaigns.
This #VolunteersWeek we're showcasing some of the opportunities that we have within the Huntington's Disease Association. One opportunity that we have is to be part of #HDVoice.
We recognise the importance of listening to and valuing the knowledge and experiences of those who use our services, their carers and supporters.
You can join our Values Based Recruitment sessions to help shape our workforce. Sign-up here https://t.co/fFiGDCmuPK
Was last QI meeting on increasing lived experience within all our current QI projects, it’s been absolute pleasure to be part of this project as a peer support worker and am so proud of what everyone has achieved🥹🫶
#NSFT#QualityImprovement#PeerSupportWorker#Participation
Lucy, who is one of our People Participation Leads and a member of our Lived Experience Network shared her experience of anxiety and depression this #MentalHealthAwarenessWeek
You can read Lucy’s experience here https://t.co/Lt8YSKzIHo
The HDA team are leaving brightly coloured Eurovision Liverpool to go to London. Tomorrow we are talking all things Huntington's with MPs at our parliament event #MindfulOfHuntingtons
Ambassador Takeover - Meet Nikola!
“Hi, my name is Nikola Krejčířová, I’m 19 years old and I’m from the Czech Republic, my dad suffers from Huntington’s disease.”
Join us all day at @hdyofeed on instagram as Nikola takes over to tell her story. @EuroHuntington @EHDN_GRANTM
HAPPY ANNIVERSARY AMBASSADORS!!!! 2 years ago, HDYO established the FIRST international group of young people to come together as ambassadors. What happened next was nothing short of magical. Immediately about 20 people signed up to start, and it now has grown to more than 60.
If you have a spare bit of time this weekend why not learn a bit more about people participation at NSFT?
Tune in here https://t.co/DoRLQ4Q4hU 🎧
Get involved with participation by emailing [email protected] or visit https://t.co/Yl83dBgBTo to find out more!
On Wednesday afternoon, we co-facilitated an inperson Values based Recruitment, the training gives you the skills to shape NSFT future workforce, having an equal say to help select the best person for the job #Positively#Respectfully#Together#peopleparticipation#cofacilitate