Lode Dewulf

Physician, passionate about people and person-centered care. Former Chief Medical and Patient Affairs Officer at UCB. Views expressed here are mine.

[Lode Dewulf @LodeDewulf]

@acbeal @Delta Excellent idea to put an AirTag in your checked in bag 👍

[Lode Dewulf @LodeDewulf]

@PFMDwithPatient @eupatientsforum @eupatients Bravo!! Welcome JPPaC. 🙏

[Lode Dewulf @LodeDewulf]

#PEOF2022 is where we actually work WITH each other to advance systematic involvement of patients in both development & care. Leaders from different stakeholders bundle brains and forces together, in a wonderful demonstration of purpose-driven equi(al)ty, diversity and inclusion.

[Lode Dewulf @LodeDewulf]

@BMJPatientEd @KaisaBxl @KaisaBxl Happy to help as well. Also refer to @PFMDwithPatient resources

[Lode Dewulf @LodeDewulf]

@enedis Après votre demande répétée pendant 55 minutes de “patientez et restez en ligne”, la ligne a été coupée à 17:00. Bravo pour ce service!

[AnjeeDavis @AnjeeDavis]

1 in 41 black males die from CRC, seeing a group of men raise a #strongarmselfie to say they are in the fight against #colorectalcancer is a picture worth sharing. Get screened! @NFLhallofFamers @jerrykelly13pga @leebrice @rogerclemens @FightCRC #CologuardClassic #Golf

[Lode Dewulf @LodeDewulf]

@drmarkporter Of which year Mark? ;-)

[Lode Dewulf @LodeDewulf]

@brennahughesmd @setu4in @CDCgov @acog @MySMFM @idsog_org Fantastic work to start getting data in this historical taboo. Science will always need/want more, but real life can’t wait. Let a pregnant mom get both the available data and the last word about her vaccination or not. Well-intended paternalism is still just that: paternalism.

[Lode Dewulf @LodeDewulf]

@ideapharma @sciencescanner @meghanconroy @JohnNosta @akalali @jhoronjeff @GoldsackJen @Frank_S_David Agreed

[Tatiana Prowell, MD @tmprowell]

Patients are not hormone receptor positive. Their cancers are. Patients are not metastatic. Their cancers are. When we write like this—in conf abstracts, in manuscripts, in protocols—it is dehumanizing.

[Made WITH Patients @PFMDwithPatient]

🗓️Mark your calendars for the 4th edition of #PEOF 2021. Let's continue advancing #patientengagement with #leadership & #cocreation. Powered by ✅@eupatientsforum ✅@eupatients & ✅@PFMDwithPatient.
Click to find out more. https://t.co/VE5dU56FHN

[Lode Dewulf @LodeDewulf]

@marklewismd Thanks Mark. The sentence we learned in medical school is incomplete. The original: « First do no harm but always support the patient.» Supporting the patient is only possible by understanding, not assuming, what matters to her/him. People hate living with peripheral neuropathy

[Lode Dewulf @LodeDewulf]

@HowStuffWorks 256

[Lode Dewulf @LodeDewulf]

@ideapharma @AstraZeneca @P_H_S_Official @Gil_Bashe @akalali @JohnNosta @JohnCendpts @the_sy_guy @matthewherper Good reminder: « efficiacy » should be co-defined with those concerned, and in any case clearly explained. Antibody titers, mortality, ICU stay, hospitalisation, getting sick: all quite different, and valued very differently by medics, hospitals, payers, politicians & the public.

[Lode Dewulf @LodeDewulf]

To all my esteemed Medial Affairs friends and (ex)colleagues: please contribute to the public consultation for the How-To Guide on Plain Language Summaries #PLS, a practical guide for multi-stakeholder co-creation. Review & contribute now. https://t.co/JJr5Ahyr6T

[Lode Dewulf @LodeDewulf]

Now more than ever, the knowledge of when and how to engage with patients is key. Take @PFMDwithPatient 15-minute introductory training on #patientengagement (now available in 6 languages) and start your PE journey 🚀 https://t.co/1huyPYXI0c

[Lode Dewulf @LodeDewulf]

Very important topic, great intent, I support the message but no clear patient sources, input or co-authorship. How can we continue to see articles published about patients without patients?
https://t.co/yCaJMLji7N

[Lode Dewulf @LodeDewulf]

@AppleBelgique With the Xe iPhone dual sim function, can one sim be from a Belgian provider and the second sim from a provider on another EU country? Thanks, Lode

[Bill Gates @BillGates]

Halting funding for the World Health Organization during a world health crisis is as dangerous as it sounds. Their work is slowing the spread of COVID-19 and if that work is stopped no other organization can replace them. The world needs @WHO now more than ever.

[Maternal Equality @mhequality]

Woman, mother, or working in #healthcare?

@MaternalRights & @IMIConcePTION need YOUR help! Help them generate better information about the safety of your #medicines by answering the survey.

➡️https://t.co/3BjDqLpGq6

#maternalhealth