Carla

[Carla @MECFSadvocate]

#FairGoForME
#InternationalMECFSAwarenessDay

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Snap Protest to mark ME/CFS and Fibromyalgia Awareness Month

1pm Saturday 17 May 2025 State Library, Melbourne

If you are unable to be there due to chronic illness, you can write a short message to be read out at the protest. Please send it to [email protected]

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Today is #InternationalMECFSAwarenessDay

We remind the Prime Minister that, on election night, he promised that there would be No One Left Behind.

Help us ask him to give a #FairGoForME by leaving a comment on his FB page!

https://t.co/lcWv5dwrtM?

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Join us to call on politicians to give a #FairGoToME this election! Follow your election candidates on social media and let them know that their #mecfs and #longCOVID policy will decide your vote!

[Carla @MECFSadvocate]

@EdB61 @halcionandon @criprights @CraigWtweets @SenatorJordon Your last sentence is 100% incorrect. Please don’t spread further misinformation information about ME, patients already have to deal with enough misinformation spread by people with ulterior motives.

[Carla @MECFSadvocate]

@halcionandon Done

[Carla @MECFSadvocate]

@halcionandon Are you on Facebook? If yes, there is the ME/CFS and the NDIS group. Otherwise, you can DM me, I’m not an expert but have been through the process myself so can tell you how it worked for me

[Carla @MECFSadvocate]

@halcionandon The independent OT the AAT arranged was kind and professional and his report ultimately caused me to be successful. I have seen other given a list of OTs to choose from

[Carla @MECFSadvocate]

@halcionandon Sorry, just re-read. Your legal representative should be negotiating the evidence they’ll accept.

[Jenny Meagher @JennMeagher]

🗣️The federal Health Minister Mark Butler will speak at the Parliamentary Friends of #MECFS meeting 18th Nov

👩🏻‍💻 Pls join event via zoom to ⬆️ attendee numbers
🗳️ Politicians notice numbers
🛌Cameras can be off to allow resting

Click on link to join zoom
https://t.co/VNGnoei6Ow

[Carla @MECFSadvocate]

#SevereMEDay

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Our worlds have become even smaller. The most severe of us continue to be neglected by governments about issues that threaten our lives, including COVID and cutting essential NDIS funding. Please support us by writing to MPs to ask they care about the most vulnerable in society.

[Carla @MECFSadvocate]

#GreatestMEdicalScandal

#JohnVsJonVsME

[Carole Bruce @CaroleBruce17]

#GreatestMEdicalScandal

[Carla @MECFSadvocate]

#GreatestMEdicalScandal

#JohnVsJonVsME

#BlackDressDay

[BlackDressDay @BlackDressDay1]

@MEAdvNetAu

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

[Carla @MECFSadvocate]

#GreatestMEdicalScandal

#JohnVsJonVsME

#BlackDressDay

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

#BlackDressDay

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#BlackDressDay 2024, now 31 years since Alison wrote ‘Forget Me Not’

[ME Group Australia (Rachel) @MEGroupAust]

Forget ME Not
By late Alison Hunter
Her parents founded Alison Hunter Memorial Foundation to push for biomedical research for #MyalgicEncephalomyelitis.
The spirit of Foundation is still with #NCNED @MenziesHealth

#MEAwarenessDay

https://t.co/Qmoj3BKjun

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#MAYAWARENESS2024

Please support people with #MECFS by emailing your local Federal MP with the below template covering significant issues affecting the ME/CFS community.

https://t.co/EQ6vXmHgfC

#MAY12
#WORLDMEDAY
#AUSPOL

[Carla @MECFSadvocate]

@ElizaCharley @shellchat Thank you ❤️