Co-founder of @LetsDoIt4ME campaign to support @Invest_in_ME charity's work on establishing a UK Centre of Excellence for Myalgic Encephalomyelitis @CofEforME.
@DanBarratt@Invest_in_ME@ChinbeardBooks Dan, seeing your Dalek banner, you may enjoy my #DressForME charity challenge for @Invest_in_ME where I spent the day dressed as a Dalek! :D
I’m working on a Tardis & 4th Doctor outfits for next year.
https://t.co/DXChZpcXCl
"Thank you so much for what you’re doing to help #pwme."
https://t.co/USXrSUS9a7
Raising #meawareness across Europe and vital biomedical #meresearch funds for @Invest_in_ME charity!
With the need to cancel their 15th International ME Conference Week this year due to Covid-19 @Invest_in_ME are using some of the time now available to continue releasing past conference videos to @YouTube
https://t.co/5ocrWVbzYv
#MEawareness#MEawarenessweek#MEawarenessmonth
@BBCRadio4 Or...let’s ask an ME patient, or their carer ….. far more experience!
https://t.co/5Azc6CMtTE
https://t.co/QGJ17mf9KM
https://t.co/HQsNTYEKWp
https://t.co/j8pPOsSADW
https://t.co/WdUxYs3mEW
https://t.co/qqUcxtZ1j7
#mecfs#isolation
Oh, the irony of it! @richardhorton1 who has aggressively defended the whitewashing of the #PACEtrial for #MECFS now demands transparency concerning #COVID19. Maybe the government found the requests for data vexatious?—Sorry folks. Dark humour in dark times.
#InternationalWomensDay
How appropriate
Happy Birthday Ellen Piro
Gratulerer med dagen
Thank you for all you have done to raise awareness of myalgic encephalomyelitis and for your great friendship & support - from all at IiMER
https://t.co/zxHEfd1agk
#mecfs#Norge@MEforeningen
This has happened to me. Please beware fellow #pwME or #mecfs dx that rare diseases can be easily overlooked esp. if signs are subtle or progressive and as many symptoms overlap with multi-system diseases like #MyalgicE lacking standard tests and insufficient diagnostic pathways.
In solidarity #RareDiseaseDay#rarediseaseday2020
Myalgic Encephalomyelitis is not rare, but rate of misdiagnosis is high, and some of us are found to have #rarediseases either missed or misdiagnosed.
We support @Invest_in_ME to establish tests for early differential diagnoses.
If you ever wondered whether #gut microbiome diversity is important, this study shows it can be a matter of life and death.
>1300 patients w/ bone marrow transplant at 4 centers
https://t.co/fMCFQaUeTX @NEJM@tsonipeled@vandenBrinkLab@DrMvandenBrink @sloan_kettering and collabs
I love working with scientists to help with audience engagement and communication of cutting edge science 😀 Here's a fab video explaining about some of the innovative work the work @TheQuadram and @NNUH are doing #healthcare#scienceday#scicomm#fmt
In solidarity #RareDiseaseDay#rarediseaseday2020
Myalgic Encephalomyelitis is not rare, but rate of misdiagnosis is high, and some of us are found to have #rarediseases either missed or misdiagnosed.
We support @Invest_in_ME to establish tests for early differential diagnoses.
Mine went into my spam folder so worth checking, if you are also subscribed to receive the charity's free e-newsletter and don't see it in your inbox 🧐
#MyE#MyalgicE#MyalgicEncephalomyelitis
https://t.co/PZeSb0Ymxv although shocked to receive this it is a great platform to make invisible disabilities to get more recognition so if you support the work I do to raise awareness especially for M.E. etc please vote for me on link above means a lot 🥰
@LetsDoIt4ME
15th International ME Conference
#London 30th May 2020
2020 Vision for ME
Earlybird Registration- https://t.co/lzS5L2RIx1
Chairman welcome message- https://t.co/US6XIQeitf
Conference news- https://t.co/XF2gcoRyjm
#mecfs#research#MEConferenceWeek2020#IIMEC15#BRMEC10#TtF2020