Jo Best

Co-founder of @LetsDoIt4ME campaign to support @Invest_in_ME charity's work on establishing a UK Centre of Excellence for Myalgic Encephalomyelitis @CofEforME.

[Jo Best @MEJoBest]

Doing it all for M.E.
#MyE #LetsCresearch #meresearch

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

UK Charity Agrees Major Funding Award for Research into Myalgic Encephalomyelitis in Norwich Research Park

https://t.co/YfZhdWiwQB
#RESTORE_ME #research #mecfs #CofEforME @NorwichResearch @euromeresearch @EUROMEALL @TheQuadram @UEAResearch @NNUH @LetsDoIt4ME

[Dress for ME Charity Challenge @DressFor_ME]

@DanBarratt @Invest_in_ME @ChinbeardBooks Dan, seeing your Dalek banner, you may enjoy my #DressForME charity challenge for @Invest_in_ME where I spent the day dressed as a Dalek! :D

I’m working on a Tardis & 4th Doctor outfits for next year.
https://t.co/DXChZpcXCl

[Let's Do It for ME! @LetsDoIt4ME]

"Thank you so much for what you’re doing to help #pwme."
https://t.co/USXrSUS9a7
Raising #meawareness across Europe and vital biomedical #meresearch funds for @Invest_in_ME charity!

[Let's Do It for ME! @LetsDoIt4ME]

With the need to cancel their 15th International ME Conference Week this year due to Covid-19 @Invest_in_ME are using some of the time now available to continue releasing past conference videos to @YouTube
https://t.co/5ocrWVbzYv
#MEawareness #MEawarenessweek #MEawarenessmonth

[Dress for ME Charity Challenge @DressFor_ME]

Happy #StGeorgesday England! #DressForME #England https://t.co/DXChZpcXCl #charitychallenge #dressformechallenge for investinmeresearch https://t.co/zXgwmigSYC

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

Happy #MothersDay to all those mothers who have ME and those who are caring for someone with ME
#mecfs #MyalgicEncephalomyelitis

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

@BBCRadio4 Or...let’s ask an ME patient, or their carer ….. far more experience!

https://t.co/5Azc6CMtTE

https://t.co/QGJ17mf9KM

https://t.co/HQsNTYEKWp

https://t.co/j8pPOsSADW

https://t.co/WdUxYs3mEW

https://t.co/qqUcxtZ1j7

#mecfs #isolation

[Sten Helmfrid 🇺🇦 🇬🇱 @StenHelmfrid]

Oh, the irony of it! @richardhorton1 who has aggressively defended the whitewashing of the #PACEtrial for #MECFS now demands transparency concerning #COVID19. Maybe the government found the requests for data vexatious?—Sorry folks. Dark humour in dark times.

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

#InternationalWomensDay
How appropriate
Happy Birthday Ellen Piro
Gratulerer med dagen
Thank you for all you have done to raise awareness of myalgic encephalomyelitis and for your great friendship & support - from all at IiMER
https://t.co/zxHEfd1agk
#mecfs #Norge @MEforeningen

[Jo Best @MEJoBest]

This has happened to me. Please beware fellow #pwME or #mecfs dx that rare diseases can be easily overlooked esp. if signs are subtle or progressive and as many symptoms overlap with multi-system diseases like #MyalgicE lacking standard tests and insufficient diagnostic pathways.

[Let's Do It for ME! @LetsDoIt4ME]

In solidarity #RareDiseaseDay #rarediseaseday2020
Myalgic Encephalomyelitis is not rare, but rate of misdiagnosis is high, and some of us are found to have #rarediseases either missed or misdiagnosed.
We support @Invest_in_ME to establish tests for early differential diagnoses.

[Eric Topol @EricTopol]

If you ever wondered whether #gut microbiome diversity is important, this study shows it can be a matter of life and death.
>1300 patients w/ bone marrow transplant at 4 centers
https://t.co/fMCFQaUeTX @NEJM
@tsonipeled @vandenBrinkLab @DrMvandenBrink @sloan_kettering and collabs

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

A Week of International Collaboration in #London

#IIMEC15 International ME Conference registration open

https://t.co/BFPshxX8i8
#research #mecfs #cpd #TtF2020 #BRMEC10 #EMECC @EMECC1 @euromeresearch @EUROMEALL

[Rebecca Osborne @rebeccavosborne]

I love working with scientists to help with audience engagement and communication of cutting edge science 😀 Here's a fab video explaining about some of the innovative work the work @TheQuadram and @NNUH are doing #healthcare #scienceday #scicomm #fmt

[Let's Do It for ME! @LetsDoIt4ME]

In solidarity #RareDiseaseDay #rarediseaseday2020
Myalgic Encephalomyelitis is not rare, but rate of misdiagnosis is high, and some of us are found to have #rarediseases either missed or misdiagnosed.
We support @Invest_in_ME to establish tests for early differential diagnoses.

[Jo Best @MEJoBest]

Mine went into my spam folder so worth checking, if you are also subscribed to receive the charity's free e-newsletter and don't see it in your inbox 🧐
#MyE #MyalgicE #MyalgicEncephalomyelitis

[Let's Do It for ME! @LetsDoIt4ME]

Invest in ME Research February 2020 Newsletter: https://t.co/JQRu2za2vY
via @Invest_in_ME #pwme #meresearch #meawareness

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

High-quality biomedical research including investigations into links between ME and gut microbiome
@TheQuadram & @UEAResearch
in @NorwichResearch a community of world-leading #research organisations

https://t.co/1CK3oK9qwk
#mecfs #CofEforME #clinicaltrials #InvestinMEresearch

[CFDA # Awareness @SharonTiday]

https://t.co/PZeSb0Ymxv although shocked to receive this it is a great platform to make invisible disabilities to get more recognition so if you support the work I do to raise awareness especially for M.E. etc please vote for me on link above means a lot 🥰
@LetsDoIt4ME

[Let's Do It for ME! @LetsDoIt4ME]

Invest in ME Research February 2020 Newsletter: https://t.co/JQRu2za2vY
via @Invest_in_ME #pwme #meresearch #meawareness

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

News of a new event in #MEConferenceWeek2020 in #London
An International ME Clinicians Workshop

Clinicians coming together to discuss and collaborate
https://t.co/7jZs2p5V0G
#research @EMECC1 #research #IIMEC15 #mecfs #IMECW1 #cpd #clinicaltrials

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

15th International ME Conference
#London 30th May 2020
2020 Vision for ME
Earlybird Registration- https://t.co/lzS5L2RIx1

Chairman welcome message- https://t.co/US6XIQeitf

Conference news- https://t.co/XF2gcoRyjm
#mecfs #research #MEConferenceWeek2020 #IIMEC15 #BRMEC10 #TtF2020