MPNAA

The Myeloproliferative Neoplasms Alliance Australia (MPN AA) was formed in 2015 by a small group of motivated patients who themselves had a diagnosis of MPN.

[MPN_Hub @MPN_Hub]

A new study published in @AjHematology found that treatment with aspirin reduced the risk of pregnancy loss in patients with essential thrombocythemia 📝
More news: https://t.co/eo5L9KoyVJ
#EssentialThrombocythemia #MedNews #MedEd

[MPNAA @MPN_AA]

Change to Pegasys access in Australia from 1 September
https://t.co/1eR51qMXfJ

[NanoTheranostics @NTheranostics]

Very proud supervisor moment 👏

[NanoTheranostics @NTheranostics]

Join us…

[Monash STM - Community and Researcher Engagement @stm_cares]

We need to do better to engage consumers in clinical research! Excellent systematic review.

[Monash STM - Community and Researcher Engagement @stm_cares]

Don’t forget to register for our #MPN event. We have a great lineup of speakers bringing their expertise and insights and how we are advancing on research and precision medicine. You can join us in person https://t.co/mR66UsuZda or online https://t.co/LryaGTSFfG

[Leukaemia Foundation @LeukaemiaAus]

#WorldMarrowDonorDay is celebrated every year to thank blood stem cell donors worldwide. It’s also a day to raise awareness about the importance of registering as a stem cell donor and the impact of blood stem cell transplantation on a patients’ life. 
https://t.co/QGC91PtCFs

[Leukaemia Foundation @LeukaemiaAus]

Today is MPN Awareness Day. Today and every day, we stand against every blood cancer and related blood disorder, like Myeloproliferative neoplasms. #ThisIsBloodCancer
Need support? Contact blood cancer support line on 1800 620 420 or via https://t.co/mbxXly6mRw
#YouAreNotAlone

[Monash STM - Community and Researcher Engagement @stm_cares]

Today marks MPN Awareness Day! We recognise the immense effort reasearchers are putting to transform disease diagnosis and treatment. We also thank those living with MPNs who have used their voices to support research and ecourage other people to share their MPN journeys.
@MPN_AA

[MPN_Hub @MPN_Hub]

There are currently limited real-world data for disease management, vascular complications, and disease transformation in young adults with #MPN. Sobas, et al. performed a large retrospective study to broaden this area of unmet need.
Find out more👉 https://t.co/gdfQQFbLey #MPNsm

[Leukaemia Foundation @LeukaemiaAus]

Damien Thompson was diagnosed with ALL in 2010 at the age of just 23. He shares pearls of wisdom about how he got through the challenging transplant. He also speaks about remembering to celebrate the small wins, as those small wins turn into big gains.💙https://t.co/c1xzjMFyw6

[Collaborative Centre for Genomic Cancer Medicine @GenCancerCentre]

#UMCCRSeminar Decision Aids are commonly used in general practice. @ShakiraMilton and the Primary Care team decided to apply this as part of their SITA (Should I Take Aspirin?) trial to communicate their research to reduce #BowelCancer

[Leukaemia Care @LeukaemiaCareUK]

🩸Fatigue
🩸Bruising/bleeding
🩸Repeated infections
🩸Shortness of breath
🩸Bone/joint pain
🩸Fever/night sweats

[Andrea Preston @AndreaDPreston1]

During Blood Cancer Awareness month this is a great reminder from the #SpotLeukaemia campaign of how we can help support earlier diagnosis👇. Many symptoms overlap with other blood cancers. Please share @adewilliamsnhs @SomersetLPC @AvonLPC

[Peter Mac Research @PeterMacRes]

@UsseglioGaudi @Aus_ScienceWeek Wonderful image and reflections. Congratulations.

[Hervé Falet 🌻 @hfalet]

Our paper on the role of megakaryocyte (MK) dynamin 2 (DNM2)-dependent Mpl-mediated endocytosis is out in @FrontOncology: Endocytosis of the thrombopoietin receptor Mpl regulates megakaryocyte and erythroid maturation in mice https://t.co/614JuwFZSG

[MediCom Medical Education @medical_medicom]

🤔How important is it to consider the mutational profile of each patient when considering a definitive treatment plan❓ @AaronGerds
1⃣ min READ➡️https://t.co/pZd15BWr5E
#bloodcancer
@VoicesofMPN @MPNVoice @MPN_AA @mpnadvocacy @MPN_Hub @MPN_RF @mpndoc @CanadianMpn @hematology999

[Ken Young @IA_Research]

Register for hybrid event here https://t.co/pTWug181NO @LeukaemiaAus @MPN_AA @GMPNAN @mpnadvocacy @MPN_RF @MPNAdvocate

[MPNAA @MPN_AA]

https://t.co/7kM42BbDSU
Disabled, invisible and dismissed—The lived experience of fatigue in people with myeloproliferative neoplasms. #livedexperience #ThisisbloodCancer #MPN @PeterMacCC

[MPNAA @MPN_AA]

Congratulations @SciSemple

[Monash STM - Community and Researcher Engagement @stm_cares]

A HUGE congratulations to the amazing @SciSemple. We are very proud of her achieving this much deserved milestone and are lucky to have as part of our committee. 👏👏👏