MayRo

Chief Operating Officer @RareBeacon 🔥 | Diet Coke Addict🥤 | West Wing Aficionado📺 | Eurovision Fanatic🎤 | Keele Grad 2014🎓 | Views Are Mine 🗣

[MayRo @MRoseRoberts]

@cmutena @RareBeacon Hi back at you Christine! ❤️

[MayRo @MRoseRoberts]

@Ataxia_and_Me @RareBeacon @sookio @RickSThomp So pleased you were able to meet Blayne in person 😀

[MayRo @MRoseRoberts]

Excited to be in #Newcastle today with the @RareBeacon team, hosting the Final Conference on behalf of MCDS Therapy!

Really interesting to hear from everyone who has been involved in delivering this project and clinical trial over the past 5 years. 💊

[MCDS-Therapy @MCDS_Therapy]

It’s almost time for the MCDS-Therapy Final Conference!!

Lights, camera…almost action 😜

Get here safely!

#McdsTherapy

[MayRo @MRoseRoberts]

ONE WEEK TO GO #eurovision

[Beacon for Rare Diseases @RareBeacon]

Calling patient group leaders! 📢

Beacon is looking to team up with @GeneticAll_UK to design specialised training for rare disease patient groups.

With a general election coming up, would you be interested in free policy, advocacy and campaign training?

[MayRo @MRoseRoberts]

@DebbieClapham So pleased you enjoyed it 😄 Thank you so much for coming along!

[MayRo @MRoseRoberts]

Already seen over 170 turn up for todays #RareShowcase23! Our biggest in-person turnout ever!! Looking forward to what promises to be an amazing day 😁

[Beacon for Rare Diseases @RareBeacon]

Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳

[Beacon for Rare Diseases @RareBeacon]

Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳

[MayRo @MRoseRoberts]

@Panther_Taxis @RareBeacon Beacon for Rare Diseases! 🔥

[MayRo @MRoseRoberts]

Absolutely loved meeting Christine! 😄

[Beacon for Rare Diseases @RareBeacon]

One of the best parts of this year’s #WODC has been meeting @cmutena in person! 🧡

Christine runs Rare Disorders Kenya and has been part of our Patient Group Engagement Committee for the last 2 years - so pleased we could finally meet outside of a computer screen!

[World Orphan Drug Congress @orphan_drugs]

Say hello to our supporting partner, @rarebeacon booth 123!

#WODC

[MayRo @MRoseRoberts]

Come say hello to me and my team! 👋

[Beacon for Rare Diseases @RareBeacon]

Come find us on stand 123 at #WODC!

We’ve been told we’ve got some of the best swag of the conference! 👀🌟

[MayRo @MRoseRoberts]

@cmutena @RareBeacon @REMEDi4ALL @orphan_drugs

[MayRo @MRoseRoberts]

@cmutena @RareBeacon @REMEDi4ALL @orphan_drugs Are you going to be here Christine?? This has made my day! 😃

[MayRo @MRoseRoberts]

Heading to London bright and early for @RareBeacon’s #RareWorkshop on #DigitalFundraising! 💸

Looking forward to seeing some real life faces today!😄

#Tired #5amAlarm

[explore.org @exploreorg]

Heavy is the rump that wears the crown. Introducing your Fat Bear Week 2023 champion, 128 GRAZER!!

[Beacon for Rare Diseases @RareBeacon]

If you have no experience in the charity world and want to expand your knowledge on areas that matter most to rare disease patient groups, create a FREE account on The Resources Hub! 📚

💡Discover what you can achieve today!

Sign up:
https://t.co/sKZJmHpGEc

[Metabolic Support @MetabSupport]

@rarebeacon are looking for an experienced fundraising manager to join their team!

View the full job description here and apply or share today: https://t.co/tmhx3Dnnz2

[MayRo @MRoseRoberts]

@Ataxia_and_Me @RareBeacon

[MayRo @MRoseRoberts]

309 days to go

[Eurovision Song Contest @Eurovision]

Welcome back to Malmö! 🇸🇪

Malmö will host #Eurovision for the third time on 7, 9, and 11 May 2024 🥳

All the details here ➡️ https://t.co/9BPywblwx7