VEXAS syndrome is a newly discovered multisystemic disease affecting most organs.
A new Review provides a comprehensive overview of VEXAS syndrome, including the disease's discovery, diagnosis, and treatment: https://t.co/pZSkkGPbGJ
Education is key to patient empowerment and involvement. Yesterday, we hosted the first #VEXAS patient café at the University hospital in Dresden - bringing together patients and their partners from across Germany to learn, connect and engage!
Seltene Erkrankungen verdienen Aufmerksamkeit und Austausch:
Wir laden Patient:innen, Angehörige und Interessierte herzlich zum 2. Patiententag für ITP, SAA und PNH ein.
📅 15. November 2025 🕘 09:00 – 12:00 Uhr
📍 MTZ, Universitätsklinikum Dresden
Erfahren Sie mehr über seltene Bluterkrankungen, neue Therapien und Unterstützungsmöglichkeiten. Mit Fachvorträgen, Patient:innenberichten und Fragerunden.
✅ Kostenfreie Teilnahme
✍️ Anmeldung bis 10.11.2025:
👉 https://t.co/Zy274bFWnC
📧 [email protected]
Thanks to @BloodJournal for highlighting our study on #pregnancies after #alloHCT and to @MaryEapen for her very insightful commentary on this topic!
https://t.co/dvP9V18Ku8
#pregnancy#alloHCT @drst_data
Zehn #Hausarztpraxen erproben in Baden-Württemberg auf Basis des „#HÄPPI“-Konzepts die Versorgung der Zukunft. Was treibt Ärztinnen und Ärzte sowie das Praxisteam an? Die Ärzte Zeitung hat in zwei Pilotpraxen nachgefragt. #BaWü
https://t.co/JaHYYo3cmp
📄This research perspective thoroughly examines the impact of #UBA1 loss of function & recent advancements in #VEXAS research, focusing on inflammation, cytopenias, clonality, and oncogenic potential; highlighting in particular M41 versus non-M41 mutations https://t.co/wJRmA4AMtC
"All patients eligible for fertility preservation should be appropriately counselled... however, at least for younger women undergoing HSCT, there is hope that pregnancy is possible following this life-saving procedure" #bmtsm
NEW editorial https://t.co/w48YEDhuQq
👇Excited to share that our study “Hope for Motherhood: Pregnancy After Allogeneic Hematopoietic Cell Transplantation“ is out now @BloodJournal !
https://t.co/awvjP3qg4O
@FertiPROTEKT @CancerSurvSM
Despite treatment-related fertility challenges, female patients can become pregnant and give birth to healthy children after undergoing allogeneic hematopoietic cell transplantation.
Read the new study: https://t.co/KvEPrWA2kb @KatjaSockel @BloodJournal @Medizin_TUD
🚨New paper 🚨
#Patients may feel overwhelmed/anxious when learning about a cancer diagnosis. This lowers comprehension of health information & may cause non-adherence to therapies. To bridge this health literacy gap we used visual aids to communicating #CancerTreatment paths.
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Happy to share our latest paper by @ElNahhasOSM et al., which was just published in @NatureComms! This work presents a new method which improves the prediction of biomarkers from routine pathology slides. https://t.co/NPUhaf4tpn @tudresden_de@katherlab @Medizin_TUD
Für die nächsten 2 Jahre fördern wir ein #Forschungsprojekt der Uniklinik #Dresden und dem Klinikum rechts der Isar, TU #München: Ein multizentrisches, nationales #Register mit begleitender Biomaterialsammlung zum #VEXAS-Syndrom