Megan620

MND/ALS advocate

[Megan620 @Megan6202]

@alsassociation @ALSAMA @calaneet. Could you please respond to this. If not Leadership employees, than previous or present board members

[Nancy Homan @NancyHoman5]

VIEW Video-Why does ALSA & FDA allow this to Happen? ALS-Fatal disease needs #NurOwn Now! ⁦@realDonaldTrump⁩ ⁦@VP⁩ ⁦@SecAzar⁩ ⁦@FDACommissioner⁩ ⁦⁦@US_FDA⁩ @SenRonJohnson⁩ ⁦@SenRickScott⁩ ⁦@SenRubioPress⁩ https://t.co/aDflCDMfC7

[Megan620 @Megan6202]

@CoreyPolen @alsassociation @momfrates @alsassociation @MLB @Lance4good Explainplease

[Megan620 @Megan6202]

@FinishALS @mcsquar86988114 Her life has in no way been impacted. Only with a huge salary and title

[mcsquared @mcsquar86988114]

One can't see this tweet too many times. If @alsassociation hadn't hoarded the money intended to finance treatments, we would have nurown, treg cell therapy, and c u a t s m. Thousands have died needlessly because of this reprehensible Behavior.

[Megan620 @Megan6202]

@alsassociation Dr Dreskin was ignored by @alsa.

[Megan620 @Megan6202]

@alsassociation It was known in the community that you ignored his asks for research help. Yet once again you are using his story for donations. Very sad.

[Megan620 @Megan6202]

@dbellina3 Unblocked 👍

[Megan620 @Megan6202]

If @alsassociation @alsama say that it is 250,000 a year for care. Why did one person receive 1 Million? Charities are not allowed to do pass through donations benefiting one person @washingtonpost @iamals

[Megan620 @Megan6202]

@alsassociation what ever became of the home care initiative? It only was given for one year 1 Million. Then nothing else. You say care is 250,00 a year and give a pALS 1 Million for @momfrates while she was a trustee.

[Megan620 @Megan6202]

@TimTMcDaniel Heard it

[EndALS @FinishALS]

This needs to be retweeted by everyone. Get this out.

[Megan620 @Megan6202]

@cadawno @alsassociation They were aware they of this 2 years ago, never mentioned it until a group of people with ALS shined the light on it

[Megan620 @Megan6202]

@alsassociation your community is finally finding out what many were aware. You bullied patients into submission who were benefiting from Brainstorm. Calling them paid/liars. @momfrates why didn’t you help? You were begged for help. @AdyBarkan @bsw5020

[Megan620 @Megan6202]

@FinishALS @Calaneet @alsassociation has been bullying people for years. Now they have other BElLOVED patients and spouses doing it for them. Everyone share Bobby Forster words.

[Megan620 @Megan6202]

@MGHNeurology Brilliant

[Megan620 @Megan6202]

@alsassociation what do you have to say to Bobby Forster? He told the truth.

[Megan620 @Megan6202]

@JanePet16957549 @BrainstormCell ALSA is the blame. They never funded it. 9 years or so waiting.

[Megan620 @Megan6202]

@JamesOKeefeIII I hope you will take a look at the National ALS Association next. Still sitting on almost 100 million from ice bucket challenge

[Megan620 @Megan6202]

@alsagoldenwest I think that charity navigator should have asked the community that this chapter serves. For the true rating

[Megan620 @Megan6202]

@alsagoldenwest Could someone explain how?? Compensation of 40 percent of budget.

[Megan620 @Megan6202]

@momwithwheels @als_now @alsassociation They are dangling the carrot. They could have funded this to the max years ago. They did not