We've finished the analysis! The @mssocietyuk Hampshire MS Survey results are in! How do the local #msservices in your part of #Hampshire compare to other areas? What is the impact of having or not having an #msnurse on your care? Find out ๐ https://t.co/TQPPh0hOBT @BartsMSBlog
The first step in trying to manage/treat #MECFS and #LongCovid is often overlooked. If you react to EVERYTHING now and cannot tolerate even basic interventions w/out an allergic /mcas reaction - this video is for you. @remissionbiome
It costs ยฃ581 a month more to be disabled in the U.K. (@scope) and it can sometimes be difficult for non disableds to wrap their head around thatโฆ so here are some examples last month of the #DisabilityTax Iโve had. #NEISvoid#DisabilityTwitter
"Everything can be taken from a man except one thing - the last of the freedoms - to choose one's attitude to any given circumstance, to choose one's own way" - Victor Frankel https://t.co/TSZF4M1EYF
Around 4 million people have an autoimmune disease in the UK - so around 8% of the population. But of these 4 million, 78% are women. Reporter Carolyn Atkinson talks to Professor Lucy Walker and Nina Christie, who currently lives with three conditions https://t.co/f5yKdsB6By
@ailuj_40 So nice to hear someone with a similar experience @ailuj_40. Different condition, but I can't start work until after 9:30am, takes another hr to get blood pressure up so I can move around house w/out nausea. staggering meds and food is normally a logistical nightmare if out.
Hoping the world will now call out the #ableism that we've been experiencing for so long - telling us that it's not possible to work remotely, that it's not 'reasonable' to enable us to work remotely, when it clearly IS! and leads to better productivity and inclusion! #nobrainer
@theinvisible81@Tanya_Marlow@UHP_NHS@UHSFT Thanks Shannon. Sadly, I only got diagnosis because I have scientific background so could research, and pay for a private specialist to get official diagnosis. I am privileged. So many have undiagnosed dysautonomia that can be managed for a good QoL. So desperately sad.
๐ฃ @DHSCgovuk want to hear from women across England about their experiences of health and care.
Your views will help shape a new women's health strategy to better meet womenโs needs.
Have your say ๐ฃ๏ธ
#TalkWomensHealth
Is any doctor with a special interest in #POTS looking for a clinic to head up? Dr Jamie Fulton is retiring and @UHP_NHS are claiming they have to close the clinic because of lack of someone to take over. Letโs flood their desks with CVs. #SaveTheClinic#medics#doctor
Is any doctor with a special interest in #POTS looking for a clinic to head up? Dr Jamie Fulton is retiring and @UHP_NHS are claiming they have to close the clinic because of lack of someone to take over. Letโs flood their desks with CVs. #SaveTheClinic#medics#doctor
@Tanya_Marlow@UHP_NHS This has happened to me - clinic closing at University Hospital Southampton @UHSFT after years of suffering, finally finding a #dysautonomia - savy doc in the cardio department and going from bedbound to working, Iโm now on my own again. With no recommendations 4 other docs.