Dr Melanie Hopper

Chronic illness advocate, researcher, content creator, and educator. #MS #HSD #dysautonomia. Interests: #disabilityrights #ableism #microbiome

[Dr Melanie Hopper @MellyHopper]

We've finished the analysis! The @mssocietyuk Hampshire MS Survey results are in! How do the local #msservices in your part of #Hampshire compare to other areas? What is the impact of having or not having an #msnurse on your care? Find out 👉 https://t.co/TQPPh0hOBT @BartsMSBlog

[Dr Melanie Hopper @MellyHopper]

Follow these two PhD scientists as they test out #me/CFS theories on themselves while collecting loads of data- vagal stimulation, #ketosis #antibiotics #probiotics #prebiotics

[RemissionBiome MECFS/LongCovid Patient-Led Science @remissionbiome]

New #RemissionBiome hypotheses diagram created by @mildTin!

[Dr Melanie Hopper @MellyHopper]

OMG. My dream! - two scientists with #ME/CFS, #hypermobilityspectrumdisorder, taking their theory (a theory I've had for a few years eek!) and running experiments to gather hard data! First step: calm your system by improving vagal tone #healingyournervoussystem #vagusnerve

[🕸️Dr.T, PhD @chydorina]

The first step in trying to manage/treat #MECFS and #LongCovid is often overlooked. If you react to EVERYTHING now and cannot tolerate even basic interventions w/out an allergic /mcas reaction - this video is for you. @remissionbiome

[Rachael Mole @RachaelMole]

It costs £581 a month more to be disabled in the U.K. (@scope) and it can sometimes be difficult for non disableds to wrap their head around that… so here are some examples last month of the #DisabilityTax I’ve had. #NEISvoid #DisabilityTwitter

[Dr Melanie Hopper @MellyHopper]

"Everything can be taken from a man except one thing - the last of the freedoms - to choose one's attitude to any given circumstance, to choose one's own way" - Victor Frankel https://t.co/TSZF4M1EYF

[Dr Melanie Hopper @MellyHopper]

THANK YOU @Emmabarnett!!! I was so so hoping that your superb hosting of @bbcwomenshour would bring desperately needed highlighting and discussion of #medicalmisogyny and the lack of understanding, diagnosis, and treatment of #autoimmunedisease #MECFS #pots 🙌🦸‍♀️ #PTSD

[BBC Woman's Hour @BBCWomansHour]

Around 4 million people have an autoimmune disease in the UK - so around 8% of the population. But of these 4 million, 78% are women. Reporter Carolyn Atkinson talks to Professor Lucy Walker and Nina Christie, who currently lives with three conditions https://t.co/f5yKdsB6By

[Dr Melanie Hopper @MellyHopper]

@loose_facts @TheEDSociety 😆 I love this. Perfect times.

[Dr Melanie Hopper @MellyHopper]

@ailuj_40 So nice to hear someone with a similar experience @ailuj_40. Different condition, but I can't start work until after 9:30am, takes another hr to get blood pressure up so I can move around house w/out nausea. staggering meds and food is normally a logistical nightmare if out.

[Dr Melanie Hopper @MellyHopper]

Hoping the world will now call out the #ableism that we've been experiencing for so long - telling us that it's not possible to work remotely, that it's not 'reasonable' to enable us to work remotely, when it clearly IS! and leads to better productivity and inclusion! #nobrainer

[Dr Melanie Hopper @MellyHopper]

When you discuss the pros and cons of #homeworking, do you consider how it enables many people with #chronicillness #disability to finally be able to work? Do you know what #ableism is? https://t.co/5tdcieS7nu #MyAccessiblePandemic @BBCRadio4 #youandyours @Patchworkhub

[Dr Melanie Hopper @MellyHopper]

Fantastic @BBCNews article about how homeworking means many people w/ disabilities and chronic illnesses can now work! Thanks @chr0nicallycute for raising awareness and creating this hashtag! #MyAccessiblePandemic #Ableism #remoteworking #homeworking #hybridworking #youandyours

[Ru 🌸♿️ (she/they) 🎀 @RollWithRu]

It’s me !!!! #MyAccessiblePandemic

[Dr Melanie Hopper @MellyHopper]

@chronicinclude @theinvisible81 @chronicinclude your work is PHENOMENAL! 🤩

[Dr Melanie Hopper @MellyHopper]

@theinvisible81 @Tanya_Marlow @UHP_NHS @UHSFT Thanks Shannon. Sadly, I only got diagnosis because I have scientific background so could research, and pay for a private specialist to get official diagnosis. I am privileged. So many have undiagnosed dysautonomia that can be managed for a good QoL. So desperately sad.

[Dr Melanie Hopper @MellyHopper]

@ehlersdanlosuk any updates on this? 🤞

[Dr Melanie Hopper @MellyHopper]

Call for Evidence - 6 key areas. Uk Gov Women's Health Strategy. Really hope that @UKPoTS @ehlersdanlosuk @mayadusenbery @EndometriosisUK @DrEReinhold are part of the conversation 🙏. A message to them: if I can help create evidence as a patient, please dm me .#TalkWomensHealth

[Office for Equality and Opportunity @oeogovuk]

📣 @DHSCgovuk want to hear from women across England about their experiences of health and care.

Your views will help shape a new women's health strategy to better meet women’s needs.

Have your say 🗣️

#TalkWomensHealth

[Dr Melanie Hopper @MellyHopper]

And for any doc who wants to train up for #longcovid #Fibromyalgia #me check out @TheEDSociety #projectecho - we need you!!!! #medics #specialism #medictraining #pots #dysautonomia

[Tanya Marlow @Tanya_Marlow]

Is any doctor with a special interest in #POTS looking for a clinic to head up? Dr Jamie Fulton is retiring and @UHP_NHS are claiming they have to close the clinic because of lack of someone to take over. Let’s flood their desks with CVs. #SaveTheClinic #medics #doctor

[Tanya Marlow @Tanya_Marlow]

Is any doctor with a special interest in #POTS looking for a clinic to head up? Dr Jamie Fulton is retiring and @UHP_NHS are claiming they have to close the clinic because of lack of someone to take over. Let’s flood their desks with CVs. #SaveTheClinic #medics #doctor

[Dr Melanie Hopper @MellyHopper]

@Tanya_Marlow @UHP_NHS This has happened to me - clinic closing at University Hospital Southampton @UHSFT after years of suffering, finally finding a #dysautonomia - savy doc in the cardio department and going from bedbound to working, I’m now on my own again. With no recommendations 4 other docs.

[Dr Melanie Hopper @MellyHopper]

@ehlersdanlosuk @UKPoTS @mayadusenbery @EndometriosisUK @DrEReinhold @KayJulier @KayJulier Wonderful 🙌