Chronic Illness Inclusion

We are a voice for disabled people with energy limiting conditions and chronic pain. Join Us

[John Urquhart 𓅿 @TheDryhtscipe]

ALT text for the entirety of the letter:

Dear Mr Timms,

Following the furore over Darren Jones and Rachel Reeve's comparison of the forthcoming disability benefit cuts to "pocket money," it is with astonishment that I see that you have referred to being unable to cut up food, needing assistance to wash or shower, and needing supervision to use the toilet as "low level functional" problems that can be dealt with by "small interventions" on April 7 in your reply to a question by Richard Burgon MP. At the same time, you defended the decision to change the eligibility for the Daily Living element of PIP to require 4 points in at least one category.

The problem with the approach to disability benefits that you, your department, the chancellor, and the Prime Minister are taking is that you appear to be willfully using provocative language, misinformation, and downright lies in order to persuade the public at large that those of us with problems that are spread over a wide range of daily tasks are somehow not disabled enough to be worthy of a benefit. With this in mind I ask of you why you have only come to this conclusion since you have been in the party of government. After all, on June 8th, 2016, you voted against reductions in disability benefits when you were in opposition. Perhaps you would be good enough to tell us what has changed your mind?

But let us return to those "low level" problems, those tiny inconveniences, of not being able to wash, cut food, or go to the toilet. I am sure I don't have to remind you that the dozen questions on the PIP form are there for the purposes of deciding whether we should get the benefit or not. Those questions, and the answers we give to them, are not the sum of the problems we have to deal with on a daily basis.

If we need help with those things, it is highly likely that it is because of pain, discomfort, and restricted movement. That does not start and end with dressing and washing. It is there for every moment of every day, from the time we get up in the morning until the time go to bed at night. What is more, you appear to ignore the costs associated with that.

Let us look at just one example: if we can only use a microwave to prepare meals, one would assume that means eating ready meals. Two ready meals a day is around £8-10. We know that cooking from scratch is considerably cheaper than that. So yes, using the microwave is a "small intervention," but it costs anyone who does that every day probably 50% more to eat than those who don't have to.

That's an extra £28 a week for that "small intervention" alone. But you don't want PIP to cover that? Why? THAT is what PIP is there for - to pay for the things that cost us more because we are disabled.

I might have some respect for your position if I thought that it was one that you actually believe in, but your previous voting record suggests that it isn't. I have psoriatic arthritis. I am in pain from the moment I get up in the morning until the moment I go to bed. I suffer from fatigue, as many do who have inflammatory conditions of this kind. Beyond that, I'm taking extra strong codeine three or four times a day that makes my brain foggy and makes me generally tired. And you want me - and others like me - to go to work. My biologic medication costs the NHS £650 every four weeks. Do you raelly think I would be given it by my consultant if my condition wasn't severe?

And my consultant says I shouldn't work. But you say I should, and either way, you're going to take my PIP away from me because I'm just not disabled enough. Oh, and when you take that, you're also going to take away my LCWRA UC when the WCA is scrapped because it's somehow going to cause a "behavioural change" (according to Keir Starmer) and I'll be miraculously fit and able to go to work.

What's more, you are not even allowing those of us with the mobility element of PIP to get that higher element of UC. Are you REALLY of the belief that those who can't walk more than one metre are not disabled enough to get the health element of UC?

What you are suggesting is insane. It has no basis in reality. The disabled community knows this. The medical profession know this. And the worst of it all is that YOU know this. So does Liz Kendall, and Darren Jones, and Rachel Reeves, and Keir Starmer, and every member of your party who doesn't have the guts to stand up for those of us that need their help right now.

What you're suggesting isn't just insane, it's insulting. It is patronising, pathetic, and puerile, and it is trivialising what we, the disabled community, have to go through every day of our lives, and through no fault of our own.

How dare you tell us that what we have are merely "multiple low-level functioning needs" that need a "small intervention" just because your government has decided that we are collateral damage for your budgetary failures.

Your position is no better than that of Boris Johnson who thought that COVID was "nature's way of dealing with old people." In the future, people will look back and view what you are doing as the Labour government's way of "dealing with the disabled." The results will be the same. People will die.

I look forward to your reply,

Yours faithfully

S L Brown.

[Disability Rights UK @DisRightsUK]

🚨DR UK's Statement on planned benefits cuts🚨

📢 We are shocked and appalled by the Government’s planned cuts to disability benefits. These changes will push millions into deeper poverty.

We refuse to stay silent - read our full statement below.

[#MEAction Network @MEActNet]

We are celebrating the women in our community for Women’s History Month! This week, we are focusing on a woman we admire and how they are powerful. We have some lovely shares for you in writing and in videos!

https://t.co/uprhGmTN9Q

#WomensHistoryMonth

[WorkingAndNotWorkingWithLongCovid @WorkingWithLC]

Many people with #LongCovid are told " you look well" or on phone " you sound well"
As @chronicinclude revealed with #EnergyLimitingConditions there is #Disregard & #Disbelief happens in healthcare, workplaces, education settings, #Benefits #LongCovidAwarenessDay2025

[Chronic Illness Inclusion @chronicinclude]

It is categorised as a chronic condition in ICD-10-CM. But, I’m aware of medical professionals who would disagree because of the occasional nature of Gilbert’s Syndrome and the few presenting symptoms.

[Lakeside Ambassador @Jerel_Stackup]

@chronicinclude Is Gilbert Syndrome considered a chronic illness?

[Chronic Illness Inclusion @chronicinclude]

Many WASPI women have disabilities that have been exacerbated by having to work extra years before being able to
claim their pension.

[Chronic Illness Inclusion @chronicinclude]

Congratulations @Debbie_abrahams - looking forward to working with you!

[Disability News Service @johnpringdns]

This looks like a win for those who want to hold #DWP properly to account over the next few years. @Debbie_abrahams has been elected as the new chair of the Commons work and pensions committee @CommonsWorkPen

[Chronic Illness Inclusion @chronicinclude]

Happy to help. Please email [email protected] with more details including phone number & we’ll respond ASAP

[Provide Aimovig for migraine on the NHS @PutAimovigOnNHS]

@chronicinclude do you know (or know who might know) about Access to Work in the context of energy-limiting disability?

[Chronic Illness Inclusion @chronicinclude]

You will be much missed @vickyfoxcroft

[Disability News Service @johnpringdns]

Sad to see it confirmed that after 4 years of incredibly hard work building bridges between @UKLabour and disabled people/the disability movement, @VickyFoxcroft will not be minister for disabled people. She's been appointed as a government whip: https://t.co/LVQg7pdI2L

[Chronic Illness Inclusion @chronicinclude]

So true for our lives

[@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 @JCeoltaSmith]

@sunsopeningband @ScribblerPen @CounsellingSam
@crr7310 @WorkingWithLC
@JBKid7 @HappyHoundHouse
@clarejdaly
@SupportingHH_UK
@BenClaimant
@chronicinclude
@HealthHubris
@MEFoggyDog

[Chronic Illness Inclusion @chronicinclude]

Great to see this important report.

[@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 @JCeoltaSmith]

👇 from @WorkFoundation
@UKVRA
@somceo
@CIPD
@The_TUC
@TUCEquality
@RCOT_Work
@Hybrid_Working
@WorkingWithLC
@tonywilsonIES
@chronicinclude
@acasorguk
@gmlawcentre
@BenClaimant

#SecureFlexibleWorking

[Chronic Illness Inclusion @chronicinclude]

Delighted to ask our followers @ their friends to take part in this important questionnaire

[AccessAble @AccessAbleUK]

2/2 As well as helping to inform powerful research, anybody who takes part in the survey also has the chance of winning a prize!

Your insights will help us to shape the future of accessibility information and the work we do.

Take part today: https://t.co/Fd1v08n6d8

[AccessAble @AccessAbleUK]

In 2018 we conducted a survey about Accessibility and You. This year, we're going even bigger!

Video Description: A purple background with a white search box, text appears as though typed reading "How can I change the future of accessibility?"

1/2

[Chronic Illness Inclusion @chronicinclude]

Yes, @JCeoltaSmith, we agree with you!

[@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 @JCeoltaSmith]

Do you agree with me 👇 @theRCOT @thecsp @theRCN @BMA_GP @rcgp
@BDA_Dietitians @RCSLT
@The_HCPC ?
#CleanAir #MasksWork
#DutyOfCare
@SupportingHH_UK
@LCD4A
@LCNMUK
@LongCOVIDPhysio
#AHP #OT

[Chronic Illness Inclusion @chronicinclude]

A team at KCL has developed a new online peer support platform in collaboration with people living with long-term physical health conditions. They are interested in finding out what people think about the new intervention. Want to get involved? https://t.co/lQFlBkyUPt

[Chronic Illness Inclusion @chronicinclude]

Solidarity with everyone protesting today #NoMoreBenefitDeaths

[Paula Peters @paulapeters2]

#NoMoreBenefitDeaths

Cuts Kill

In 2010 when austerity began, we were accused of scaremongering when we said the cuts would Kill. Sadly & tragically that’s become grim reality

Banner says
Cuts Kill
Disabled People Against Cuts

Today we yet again take to the streets

[@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 @JCeoltaSmith]

Stats #PIP : https://t.co/IodiiJHlJf Seem low to me???
12,841 claims =infectious disease as of October 2023
10,975 people awarded PIP for viral illness includes 5,808 claimants for #COVID19
October 2022 4,712 PIP recipients = #LongCovid
#DWP captured LongCovid March 2021

[Chronic Illness Inclusion @chronicinclude]

Please share this important survey on #Disabled #RemoteWorking

[@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛 @JCeoltaSmith]

Please check out and share this U.K. survey 👇on #Disabled #RemoteWorking
#HybridWorking
It’s still open …
@long_covid
@DrBEvans
@chronicinclude
@UKVRA
@somceo
@WorkingWithLC
@TUCEquality
@RCOT_Work
@octoberpoppy
@ScribblerPen
@crr7310
@JoD66
@alitwy
#LongCovid

[Chronic Illness Inclusion @chronicinclude]

This is beyond punitive, deliberate targeting of the sick & vulnerable. Cruel and dehumanising. Created by people with no conscience or moral compass.

[Prof. Bethan Evans @DrBEvans]

@JCeoltaSmith @Starseeker1986 @johnpringdns @chronicinclude @UKVRA @BenClaimant @BenBaumberg2 @FoxNikkiFox @HealthHubris It’s absolutely dreadful