Movie About M.E.

A documentary that seeks to shine a light on and tell the stories of those suffering with myalgic encephalomyelitis and Long COVID.

[Movie About M.E. @Movie_About_ME]

A warm hello to everyone. I would like to apologize for any miscommunication around the purposes of this awareness campaign and would like to provide some context. Thank you for your patience as I am just joining Twitter.

#MECFS #LongCovid #ChronicEBV

https://t.co/lcLXuhMkrh

[Solve ME/CFS Initiative @PlzSolveCFS]

Last month Solve M.E. CEO Oved Amitay participated in the launch of the One Name Campaign, which seeks to identify the best single medical name for a group of long-ignored, infection-associated chronic illnesses such as #MECFS, #LongCovid, &#ChronicEBV.
https://t.co/RkQaZOHgUy

[Billy Hanlon @bhanlon15]

The Mystery of Long COVID Is Just the Beginning

At Yale’s clinic, medical sleuth Lisa Sanders is trying almost everything

Long-COVID patients, generally speaking, have been very miserable for a very long time...they bounce from specialist to specialist..
https://t.co/jIndUVIY4D

[Jennifer Brea🦒 @jenbrea]

My friend, James, is in a bad state due to tethered cord syndrome. He is having constant seizures at night and the onset of new neurological symptoms. Please support his GoFundMe. SHARE this post and give, if you can. Every dollar helps! https://t.co/aapI2rL2OK

[#MEAction Network @MEActNet]

More from @edyong209 on PEM/fatigue with @HannaRosin for @TheAtlantic.

"People with long COVID and ME/CFS experience a fatigue that is much more severe. They feel leaden. They feel weighed down as if they’ve got weights on all of their joints."

https://t.co/DuP4ReaPPD

[#MEAction Network @MEActNet]

Find the agenda for this meeting and upcoming webinar topics here: https://t.co/Z1dPdP6cKn

[Movie About M.E. @Movie_About_ME]

This is a very important topic for me personally. I am happy to share more in the future and am also happy to speak by phone or Zoom.

To clarify, this is not a SolveME initiative.

[Movie About M.E. @Movie_About_ME]

A warm hello to everyone. I would like to apologize for any miscommunication around the purposes of this awareness campaign and would like to provide some context. Thank you for your patience as I am just joining Twitter.

#MECFS #LongCovid #ChronicEBV

https://t.co/lcLXuhMkrh

[Solve ME/CFS Initiative @PlzSolveCFS]

Last month Solve M.E. CEO Oved Amitay participated in the launch of the One Name Campaign, which seeks to identify the best single medical name for a group of long-ignored, infection-associated chronic illnesses such as #MECFS, #LongCovid, &#ChronicEBV.
https://t.co/RkQaZOHgUy

[Movie About M.E. @Movie_About_ME]

He interviewed doctors from around the world to memorialize the seriousness of Long COVID early on and give patients a book to share with family and friends to help validate their experiences.

[Jennifer Brea🦒 @jenbrea]

@White_Kaay I found the opposite––that the aural history often involved the doctor inaccurately recording my history or misrepresenting what I said. It was also quite challenging to give a history of a complex case in a 15 minute appointment.

[#MEAction Network @MEActNet]

The first NIH ME/CFS Research Roadmap webinar will occur on August 25 from 10:00 am – 2:00 pm ET. This webinar will focus on how ME/CFS impacts the nervous system. There is an impressive line-up of speakers. No registration info yet.
https://t.co/Z1dPdP6cKn
#pwME #NIH #MECFS

[charlos @loscharlos]

The fact that we still have prominent public health & medical professionals trying to reassure folks a Covid spike is no big deal because the infection will not hospitalize you — is a shocking & deliberate act of erasure of #LongCovid.

[#MEAction Network @MEActNet]

Research news: https://t.co/3NsYS6dXOl

What: “Researchers have identified a protein that’s present at unusually high levels in the muscles of people with ME/CFS and that disrupts cells’ ability to generate energy.” Protein: WASF3

@ScienceMagazine #pwME #MyalgicE #MECFS

[charlos @loscharlos]

“Snyder-Cappione was particularly intrigued by #LongCovid overlap with the symptoms reported in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),

Studying those syndromes in parallel may bring insights about shared or similar mechanisms underlying these disorders.”

[charlos @loscharlos]

“..and certain herpes viruses, as well as nonviral pathogens such as Borrelia, one of the organisms that causes Lyme disease.”

“This resemblance was one of the first things that caught the attention of many researchers studying #LongCovid”

[charlos @loscharlos]

“For example, recurrent clots, fatigue, decreased exercise tolerance.. could all arise from ongoing low-grade inflammation… this can be fueled by several pathways — low levels of circulating virus, reactivation of dormant infections, immune dysfunction” https://t.co/VVQ53nMbO8

[Eric Feigl-Ding @DrEricDing]

9) I do believe we are at the frontier to witnessing a mass-disabling wave of #LongCovid patients in the years and decades to come…

“Long COVID patients are quite possibly experiencing the early stages of neurodegeneration”

HT @phil_fink

https://t.co/KnIvib0DEW

[Movie About M.E. @Movie_About_ME]

@did_40 A warm hello to everyone. ♥️ I would like to apologize for any miscommunication around the purposes of this awareness campaign and would like to provide some context. Thank you for your patience as I am just joining Twitter.

#MECFS #LongCovid

https://t.co/tVJ8x8bPh8

[Movie About M.E. @Movie_About_ME]

A warm hello to everyone. I would like to apologize for any miscommunication around the purposes of this awareness campaign and would like to provide some context. Thank you for your patience as I am just joining Twitter.

#MECFS #LongCovid #ChronicEBV

https://t.co/lcLXuhMkrh