Autistic Mummy

Un/self/peer-dxd #ActuallyAutistic mum. Daughters dxd. Researcher by day, Autistic Mummy by day and night.

[Autistic Mummy @MummyAutistic]

I had a hard conversation with a SaLT yesterday. Chat in prep for interview and clinic visit for my youngest’s #autism assessment.

#ActuallyAutistic #ND #autistic #AutismDx

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[Autistic Mummy @MummyAutistic]

@beccajiggens Both of my kiddos were dxd at age 4, so they apparently get to stay in the ‘club’. And yet I’m still being told they’re ‘too competent’ to be autistic & disabled. As you say, utter BS & incoherent.

[Steven Kapp @drstevenkapp]

Lorna Wing pioneered spectrum concept & also presented camouflaging hypothesis for girls (1981). She worried autistic females "may continue to go unrecognised or misdiagnosed" in DSM-5.
https://t.co/3RBOcfqCMX
Suggesting autistic women are simply hyper-emotional is classic sexism

[Extraordinary Links @Extraor57879073]

We know of at least one family that has waited a year for the needs assessment to be completed, and it still hasn't gone to panel. @BristolCouncil what are you playing at? #EHCP #SaveOurChildrensRights

[Chopsy Bristol @ChopsyBristol]

This is utterly shocking. Bristol Labour Councillor Susan Kollar is basically telling families that they need to be patient for their unlawfully delayed EHCPs. I’m stunned #send #ehcp #bristol #disability

[Autistic Mummy @MummyAutistic]

@cix_stormrage Absolutely. So many late diagnosed that has nothing to do with ‘not being autistic enough’ it’s us (professionals/society) not recognising it early. Wishing the best for you and your family.

[Rightful Lives @RightfulLives]

Let’s not forget that the revised Mental Health Act should make it harder for autistic people to be detained under s3. Frith’s words will just make it easier for some psychiatrists to justify removing a person’s autism diagnosis.

Vested interests are crawling out of the woodwork.

[Autistic Mummy @MummyAutistic]

@Dmdav1 @milton_damian Incidentally, the ring leader of denying ME is Sir Simon We$$ley, now heavily involved in denying ADHD & in the incredibly weak position (sarcasm) of being on the board of NHS England.

[Autistic Mummy @MummyAutistic]

@Dmdav1 @milton_damian Reminds me of the discourse around #MEcfs. Patients (v ill & vulnerable & majority women) painted as controlling narrative & silencing/abusing/threatening good faith (bad faith, eminent, powerful) researchers who claimed their (physiological) illness was psychosomatic.

[Damian Milton @milton_damian]

Dear me, where to start?

[Autistic Mummy @MummyAutistic]

@KBGreyhoundlady @Cyberbloke @BenKentish @DrRobBedson You mean you just weren’t aware of it. My dad receiving corporal punishment & regularly getting into low grade trouble for things he could do nothing about was one. I dare say you wouldn’t have realised even if you were in his class. His sister hid it better.

[Ben Kentish @BenKentish]

32 experts from across the UK have published a detailed scientific paper this morning concluding there is “no evidence that ADHD is over-diagnosed in the UK”.

No doubt all the Westminster career politicians who insisted recently that it is (without providing any evidence whatsoever) will now be issuing apologies….

[Becca Jiggens's viva will be in June♿️ 🇵🇸 🇱🇧 @beccajiggens]

You'd be amazed at the number of Employment Judges who decide that although X is a common consequence of autism, that the specific autistic claimants before them exhibit X but not because of autism so that unfavourable treatment because of X isn't unlawful.

[Autistic Mummy @MummyAutistic]

@blackthugcat @realdoll03 @naomicfisher initially & superficially as being ‘too competent to be autistic’ 5/

[Autistic Mummy @MummyAutistic]

@blackthugcat @realdoll03 @naomicfisher Our shared experiences, the similarities in our ways of being, thinking & understanding of the world & people in it, was all the more striking for our apparently very different levels of ‘functioning’. We both recognised each other as autistic, although he judged me very 4/

[Autistic Mummy @MummyAutistic]

@blackthugcat @realdoll03 @naomicfisher at home in private that no one sees. We comfort, we counsel, we remove stress, we communicate without spoke. Language, we scaffold, we hold through meltdown & shutdown, while outsiders call them ‘characters’. It’s not a different conversation. 2/

[Autistic Mummy @MummyAutistic]

@blackthugcat @realdoll03 @naomicfisher No, it’s not a different conversation. What do you mean by ‘mostly function independently’? ‘Mostly’ is doing some heavy lifting here. I’m sick of ppl (teachers) telling me how my kiddos are functioning well. Our lives revolve around picking up the - very broken - pieces at 1/