Apologies if this has already been pointed out but, last year, as predicted by patients, all three of the NIH RECOVER Initiative's large-scale brain retraining trials failed to improve cognition in #LongCovid patients. #MECFS
https://t.co/F6Gdz3XhUi
Please watch this short video & engage your MPs if able.
Tag them, write to them, this is urgent.
https://t.co/m2lpdXMIQy...
@meactionuk “people with SevereME have no treatment, no hospital beds, no specialist, no NHS service.
Stop the deaths. Stop the harm. Start the service.”
The economic illiteracy of this government in not putting serious funding into research and education of post-viral illnesses such as #ME and #LongCovid is staggering. If a treatment and cure was found we would rush back to work, the very best, most joyful of employees/employers.
Lighting up the darkness for ME.
#MEAction UK took to the streets of London to urge @james4ealing, the Secretary of State for Health and Social Care, to listen to the most severely ill people with ME.
@subversivepsych That’s interesting about feeling super chilled. In my conscious moments I did feel rather anxious as I was worried what was wrong with me but most of the time I just felt like death warmed up.
I've lived through decades of 'yuppie flu', 'mind/body', lifestyle this n that, positivity, lightning process, gupta... plus seen tired, determined sick people slowly fund the research needed to challenge these attitudes.
Just for it to be ignored.
I AM SO BORED.
The report into NHS antisemitism by @LordJohnMann begins with the words:
‘The levels of anti-Jewish racism in the UK constitute a national emergency. The Heaton
Park Synagogue attack of 2 October 2025, the abhorrent terrorist, arson and other attacks
on members of the Jewish community that took place in April 2026 in Golders Green, and
across London all point to a worsening of the situation. No sector is untouched by it. The
criminal cases, taken together with the data drawn from the Home Office, from the NHS
and from various community organisations, and the cases reported to the General Medical
Council and other health and care professional regulators, have highlighted allegations of
antisemitic behaviour perpetrated by UK doctors and other healthcare professionals. It is
within this context that I was asked to undertake a review into tackling antisemitism in the
NHS.’
The NHS has an extremism problem.
Jewish patients should not have to worry about whether they will receive proper medical treatment (or worse, if they will be intentionally harmed) because they fear a doctor or nurse may deem them an acceptable target.
It is only right that NHS staff leave their political opinions at home, not flaunt them at the bedside. They should not be wearing foreign flags or any other political symbols while at work.
The NHS has a responsibility to ensure that all of its patients feel safe.
Yes, that includes Jews.
https://t.co/oW4h4CcTMU
Hi @TravelodgeUK,
What is going on here?
Still no word on why two identifiably Jewish guests were met with a “Free Palestine” message on their television screens when they checked into their room in your London Manor House branch yesterday?
Do you provide this sort of greeting for all of your guests, or only the Jewish ones?
You need to investigate this at once and ensure that whoever was responsible is fired.
The painful truth about psychosomatic hypotheses is that patients, doctors and the public are willing to suspend rational thinking and believe in miracles when they can't cope with the negative emotions they experience when confronted with unexplained disabling illness. #mecfs
Nearly 12 hours sleep. I realise to all the insomniacs this sounds like pure heaven but when you’ve struggled with hypersomnia it’s a worry. Hope I’m not drifting back to my 23 hours a day stage. Wouldn’t be able to work.
“People with ME have sadly had to endure far too much disbelief and delay.”
Clip of Dr Hans Kluge, WHO Regional Director for Europe, opening the @Invest_In_ME 2026 International ME Conference #IIMEC18.
Lena writes about 'hope'. She shares her experience of how it changes as experience and circumstances change.
Powerful insights for #therapists#counsellors and others who support people with chronic illlnesses, particularly ones that are hard to diagnose.
@UKPoTS
You are pushing a false narrative that is not based in science. Please read my paper to educate yourself on these disorders. In summary, "they cannot move forward" because patient care and therapeutics did not move forward. It's not on "them," it's on "us." Read my paper.
https://t.co/qsZet122NQ
New blog post from Bateman Horne Center @BatemanHorne talking about orthostatic intolerance. Just because you don't have POTS doesn't mean you don't have some other form of orthostatic intolerance.
https://t.co/OEEAmDw6QF
#MEcfs#OrthostaticIntolerance
You are pushing a false narrative that is not based in science. Please read my paper to educate yourself on these disorders. In summary, "they cannot move forward" because patient care and therapeutics did not move forward. It's not on "them," it's on "us." Read my paper.
https://t.co/qsZet122NQ