On the occasion of this year’s Rare Disease Day, the ESPKU/EP Cross-Party Alliance on PKU underline the need to ensure that people living with PKU and their loved ones have the best possible access to the full spectrum of care, support and innovation. #PKU#RareDiseaseDay2023
Buongiorno, collaborando ormai da diversi mesi con Helaglobe abbiamo trattato molteplici tematiche in merito alle malattie rare tra cui il supporto psicologico.
Qui sotto trovate il link da compilare.
[https://t.co/rzDK4Zpoiv ](https://t.co/6hu0EXWHrh)
Watch and share Irish Bernadette Gilroys' remarkable TEDx Talk about the traumatic event of receiving the PKU diagnosis for her now 10 year old daughter! She talkes about being grateful for dietary therapy, but asks wheter gratefulnes limits progress. https://t.co/lnPwl2uwqZ
#espkuconference2022#espku#pku
We are happy to announce that the registration for this year`s ESPKU Conference has begun. To be part of this unique event click the link below:
https://t.co/K8X7YtQxLg
Tomorrow, 24th August 2022, Recording of ESPKU Conference 2021 will premiere on our YouTube Channel!
To be part of the premiere go to:
https://t.co/uGQ0YDoLlb
Be part of this year`s face-to-face E.S.PKU Conference to not miss the lectures and discussions on the topics below! Register today!
https://t.co/K8X7YtyWmG
#ESPKU#ESPKUConference2022@Metabolicos_es
#PKUDay2022#PKUDay#PKU#PKUMEPALLIANCE
Remember the ESPKU/EP Cross-Party Alliance on PKU’s Call to Action on unmet needs in PKU? International PKU Day serves as a useful reminder
https://t.co/0pEHSJSD96