NDPH Research

New Daily Persistent Headache - NDPH - raising awareness and money to find a cure!
*views expressed are my own

[NDPH Research @NDPH_Research]

New Daily Persistent Headache is becoming a recognized symptom in some COVID-19 patients.

https://t.co/htAYrXAE6F

[NDPH Research @NDPH_Research]

@SecretaryCarson @HUDgov RIP to a fine man who I respect so deeply

[NDPH Research @NDPH_Research]

@GavinNewsom They are trending down past six days, death rates are falling as well. What am I missing?

[NDPH Research @NDPH_Research]

Optimism & hope help kids better cope with chronic pain
https://t.co/3dGf9YRnpw

[NDPH Research @NDPH_Research]

@AnyaYork They are also looking at Nerve Growth Factor proteins.

[NDPH Research @NDPH_Research]

New hope in combating persistent infections
https://t.co/yJNzYHkCzC

[NDPH Research @NDPH_Research]

@RepThomasMassie Bubye

[NDPH Research @NDPH_Research]

@LymeBook @NBCNews https://t.co/jX3SYYPUSx

[NDPH Research @NDPH_Research]

@LymeBook @NBCNews https://t.co/28nV5md8WA

[NDPH Research @NDPH_Research]

Anecdotal reports of Bartonella involvement with some NDPH suggests the need for further research. This report of specific essential oils with greater antimicrobial properties than current antibiotics may prove helpful in battling persistent infection.
https://t.co/28nV5md8WA

[Dr. Steven Phillips & Dana Parish @LymeBook]

Dr. Phillips presented Grand Rounds to MDs at @HackensackUMC who were blown away by data on chronic #Lyme & TBD. Education is key. Most stayed to ask further q’s & many recognized #ChronicLyme in their patients. Wanted to help. Watch here & see slides. https://t.co/aFdvGsLO3Z

[NDPH Research @NDPH_Research]

Green light therapy for chronic pain
https://t.co/zj5a4nJHxU

[NDPH Research @NDPH_Research]

@Mel_L12 @TheEDSociety We don't yet have a statistical correlation, anecdotal reports of hypermobility, EDS and hEDS along with NDPH are frequent.

[The Ehlers-Danlos Society @TheEDSociety]

The Ehlers-Danlos Society is pleased to announce a further $300,000 in grant funding for #research.

We are encouraging proposals for funding from all areas of health & social care applicable to the #EhlersDanlossyndromes & #hypermobilityspectrumdisorders. https://t.co/GZhd4DQHWY

[NDPH Research @NDPH_Research]

This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself

https://t.co/U6wjD6G3LH

[NDPH Research @NDPH_Research]

CSF leaks are underdiagnosed. CSF leaks can sometimes present with non-positional headache. We intend to study this in New Daily Persistent Headache. We need your support. Please Donate
https://t.co/8u7zNmxxmF

[Medical Axioms @medicalaxioms]

What disease (or type of disease) is this?

20 year old female college student is very fatigued. Sleeping all the time for the last 6 months.

Her muscles are sore. She feels weak. She can’t ride a bike and has trouble with stairs.

Goes to the ER, LFTs elevated and CK =60K.

[NDPH Research @NDPH_Research]

There are 327,000,000 people in the USA and only 2 experts in CSF leaks

[NDPH Research @NDPH_Research]

https://t.co/WeIPXvSBqf

[NDPH Research @NDPH_Research]

@krisfobes @MBVanElzakker I want to talk to you Mr. Kris