Cure NF2 Foundation

Cure NF2 Foundation is a patient-led nonprofit dedicated to funding research and supporting those affected by NF2-related schwannomatosis

[Cure NF2 Foundation @NF2BioSolutions]

Signing up directly with runDisney can be difficult. Register with Cure NF2 Foundation instead, and we’ll make it simple.

✅ April races are open: 5K, 10K, and 10 miles
❌ February and March races: sold out

Sign up here: https://t.co/8hxeQuRSZc

[Cure NF2 Foundation @NF2BioSolutions]

Thank you, Julia! We’re so grateful to all of our runners at Wine & Dine 2026 for running with us.

Want to run or walk with us? Whether you prefer a short race or a long one, we have tickets for you.

Hurry, April spots are going fast! Sign up here: https://t.co/8hxeQuRSZc

[Cure NF2 Foundation @NF2BioSolutions]

We’re excited to share that Donorbox, the platform we use for online giving, now accepts DAF donations. We also accept DAF gifts through PayPal.

Your gift supports gene and cell therapy research for NF2-related schwannomatosis, led by patients determined to find a cure.

[Cure NF2 Foundation @NF2BioSolutions]

Read the FDA announcement: https://t.co/iMa97gyzrg

[Cure NF2 Foundation @NF2BioSolutions]

Congratulations, Glenn and Dr. Cara O'Neill! The FDA has approved Fayuvi, the first-ever treatment for Sanfilippo syndrome type A. This milestone is also a reminder of what patient-led advocacy and gene therapy can do for rare disease communities, including ours.

[Cure NF2 Foundation @NF2BioSolutions]

What a weekend for the Halloran family! On August 7th, at the NF Symposium in Minneapolis, twins Alanna and Lizzie joined their mom, Danette, on the family panel "Living Between Answers," sharing their journey with families and researchers in the room.

[Cure NF2 Foundation @NF2BioSolutions]

Along with our new name, Cure NF2 Foundation, we’ve launched a brand new website. Click here to visit: https://t.co/wyVnSjnpjs

Designed to better serve our community, the new site makes it easier to explore research, share stories, and get involved in the mission to cure NF2.

[Cure NF2 Foundation @NF2BioSolutions]

Living with NF2 brings unique challenges, but new strategies can help. Discover how psychological approaches and neuroscience-based tools empower individuals to manage stress and find meaning.

Watch our latest webinar and read the full one-pager: https://t.co/m63QC1BDkE

[Cure NF2 Foundation @NF2BioSolutions]

Join us in moving research forward.

Donate today:
US: https://t.co/XaRnKr6jcS
Facebook: https://t.co/0IUoFEQDIg
PayPal: https://t.co/iLSmDBQqZh
UK: https://t.co/dPeo9mn9j3
Canada: https://t.co/ASM5sCohuK
Europe: https://t.co/ij905Z06DJ

[Cure NF2 Foundation @NF2BioSolutions]

NF2 impacts entire families, and for Lizzie and Alanna, the journey has included surgeries, scans, specialist visits, and constant resilience.
Behind every appointment and every procedure are real people fighting to hold onto their health and their futures.

[Cure NF2 Foundation @NF2BioSolutions]

Donate today:
US: https://t.co/XaRnKr6jcS
Facebook: https://t.co/0IUoFEQDIg
PayPal: https://t.co/iLSmDBQqZh
UK: https://t.co/dPeo9mn9j3
Canada: https://t.co/ASM5sCohuK
Europe: https://t.co/ij905Z06DJ

#CureNF2 #NFAwarenessMonth #NF2Day

[Cure NF2 Foundation @NF2BioSolutions]

Every NF2 diagnosis involves a child facing extraordinary challenges. A.J. was diagnosed at 6 and continues to manage multiple tumors and ongoing monitoring, but his strength shines through daily.

[Cure NF2 Foundation @NF2BioSolutions]

In honor of Lyren and every family affected by NF2, help us continue funding research and moving closer to better treatments:
US: https://t.co/XaRnKr6jcS
Facebook: https://t.co/0IUoFEQDIg
PayPal: https://t.co/iLSmDBQqZh
UK: https://t.co/dPeo9mn9j3
Canada: https://t.co/ASM5sCohuK

[Cure NF2 Foundation @NF2BioSolutions]

Lyren passed away in 2019, but her courage, strength, and spirit continue to inspire our community and our mission to find a cure for NF2.

Her story is a reminder that behind every diagnosis is a person deeply loved by family and friends, and why this fight matters so much.

[Cure NF2 Foundation @NF2BioSolutions]

Donate today:

US: https://t.co/XaRnKr6jcS
Facebook: https://t.co/0IUoFEQDIg
PayPal: https://t.co/iLSmDBQqZh
UK: https://t.co/dPeo9mn9j3
Canada: https://t.co/ASM5sCohuK
Europe: https://t.co/ij905Z06DJ
Mail: Cure NF2 Foundation, P.O. Box 859, West Chester, PA 19381

[Cure NF2 Foundation @NF2BioSolutions]

Behind every diagnosis is a person. A family. A fight.

NF2 is not just a condition: it’s a daily reality for children, parents, and loved ones navigating uncertainty, treatment, and hope.

Their stories are why we exist.
Their strength is why we keep going.

[Cure NF2 Foundation @NF2BioSolutions]

Donate today:
US: https://t.co/XaRnKr6jcS
Facebook: https://t.co/0IUoFEQDIg
PayPal: https://t.co/iLSmDBQqZh
UK: https://t.co/dPeo9mn9j3
Canada: https://t.co/ASM5sCohuK
Europe: https://t.co/ij905Z06DJ

Or mail a check:
Cure NF2 Foundation
P.O. Box 859
West Chester, PA 19381

[Cure NF2 Foundation @NF2BioSolutions]

Behind every NF2 diagnosis is a story, and a child, a family, a future.

Tucker’s journey began with small changes that led to a life-changing diagnosis. Stories like his remind us why this fight matters so much.

Help us turn stories like Tucker’s into hope.

[Cure NF2 Foundation @NF2BioSolutions]

Donate today:
US: https://t.co/XaRnKr6jcS
Facebook: (https://t.co/0IUoFEQDIg
PayPal: https://t.co/iLSmDBQqZh
UK: https://t.co/dPeo9mn9j3
Canada: https://t.co/ASM5sCohuK
Europe: https://t.co/ij905Z06DJ
Mail: Cure NF2 Foundation, P.O. Box 859, West Chester, PA 19381

[Cure NF2 Foundation @NF2BioSolutions]

NF2 is rare, but it affects real people in every community.
Most are diagnosed young. There is still no approved treatment.

But there is hope.

Gene therapy research is advancing and with your support, we can help move these breakthroughs closer to real treatments for patients.