Nf2UK

Dog-eared advocates still hoping for a cure for NF2 related Schwannomatosis

[Nf2UK @Nf2UK]

Cancer jab shown to eradicate whole tumours in patients in promising new trial
https://t.co/cqa0CtVct0

[Nf2UK @Nf2UK]

The evolving landscape of NF gene therapy: Hurdles and opportunities
https://t.co/swIPyH4hll

[Nf2UK @Nf2UK]

Role of NF2 Mutation in the Development of Eleven Different Cancers
https://t.co/jlXGHfRvmF

[Cure NF2 Foundation @NF2BioSolutions]

Don't miss our webinar this Friday in recognition of Rare Disease Day! Registration is still open here: https://t.co/qYopmEX7kr

English subtitles will be available during the transmission. The webinar will be recorded and published on our YouTube Channel "I Need a Cure".

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Calling NF2ers in the UK
Are you eligible for this study?
Please get in touch with Plymouth or Manchester if so.
Just 3 more participants needed.

[Nf2UK @Nf2UK]

Spatial mapping of immune cell environments in NF2-related schwannomatosis vestibular schwannoma
https://t.co/rnOIKhO881

[Nf2UK @Nf2UK]

New Research Points to Shared Treatment Possibilities for NF2-SWN Tumors
https://t.co/wuxHae4YUV

[Nf2UK @Nf2UK]

History and clinical epidemiology of NF2-related schwannomatosis
https://t.co/WsTmMzz5UO

[Nf2UK @Nf2UK]

RIP Marie Drew 1942-2025 an early NF2 warrior, an advocate through her work with NF2ADVOCURE and tireless support for others through various support groups inc. the NF2 Crew .. and a true friend. 💔

[Cure NF2 Foundation @NF2BioSolutions]

The Geoffrey Jefferson Brain Research Centre in Manchester has secured a £700,000 grant to accelerate NF2 research, funding studies into the mechanisms of brain tumours and inflammation pathways in vestibular schwannomas and related tumours.
Article here: https://t.co/HF3d52Y0N3

[Nf2UK @Nf2UK]

So as the eminent Prof DG Evans finally retires all we can do is wish him well in his much reserved retirement and say thank you - You Made a Difference .. 👏

[Nf2UK @Nf2UK]

A new cell model to advance research into NF2-related schwannomatosis
https://t.co/gtILJBDYJ9

[Nf2UK @Nf2UK]

Gene therapy and genome-editing for schwannoma in NF2-related schwannomatosis: current understanding and future directions
https://t.co/6gT15idbPZ

[Otology&Neurotology @OandNonline]

Intraoperative behavioral audiometry during #CochlearImplant surgery with patient feedback during electrode insertion is feasible under local anesthesia. #Otology https://t.co/KnBl443zKP

[Children's Tumor Fdn @ChildrensTumor]

Did you know that NF2-SWN is caused by a pathogenic variant in a gene located on chromosome 22? This #NFAwarenessMonth, we need your help to spread the knowledge! 💙💚 Share this infographic to spread the word and visit https://t.co/nmJuZ2yKET to learn more.
#EndNF #MakeNFVisible

[Children's Tumor Fdn @ChildrensTumor]

Devastating news: NF research funding through the CDMRP has been eliminated for FY2025. Other disease areas were also affected, but this is a huge loss for our community. Read our full statement: https://t.co/rC6HRCXa1E

[Nf2UK @Nf2UK]

Update on Cancer and Central Nervous System Tumor Surveillance in Pediatric NF2-, SMARCB1-, and LZTR1-Related Schwannomatosis
https://t.co/QwV3aXgcm5

[Nf2UK @Nf2UK]

Efficacy and Toxicity of Bevacizumab in Children with NF2-Related Schwannomatosis: A Systematic Review
https://t.co/9TCFkO2mHF

[Nf2UK @Nf2UK]

Current molecular understanding of central nervous system schwannomas
https://t.co/HcybVdajdw

[Nf2UK @Nf2UK]

Classification of schwannomas and the new naming convention for "neurofibromatosis-2": Genetic updates and international consensus recommendation
https://t.co/mn224pgKmI