Don't miss our webinar this Friday in recognition of Rare Disease Day! Registration is still open here: https://t.co/qYopmEX7kr
English subtitles will be available during the transmission. The webinar will be recorded and published on our YouTube Channel "I Need a Cure".
RIP Marie Drew 1942-2025 an early NF2 warrior, an advocate through her work with NF2ADVOCURE and tireless support for others through various support groups inc. the NF2 Crew .. and a true friend. ๐
The Geoffrey Jefferson Brain Research Centre in Manchester has secured a ยฃ700,000 grant to accelerate NF2 research, funding studies into the mechanisms of brain tumours and inflammation pathways in vestibular schwannomas and related tumours.
Article here: https://t.co/HF3d52Y0N3
So as the eminent Prof DG Evans finally retires all we can do is wish him well in his much reserved retirement and say thank you - You Made a Difference .. ๐
Intraoperative behavioral audiometry during #CochlearImplant surgery with patient feedback during electrode insertion is feasible under local anesthesia. #Otology https://t.co/KnBl443zKP
Did you know that NF2-SWN is caused by a pathogenic variant in a gene located on chromosome 22? This #NFAwarenessMonth, we need your help to spread the knowledge! ๐๐ Share this infographic to spread the word and visit https://t.co/nmJuZ2yKET to learn more.
#EndNF#MakeNFVisible
Devastating news: NF research funding through the CDMRP has been eliminated for FY2025. Other disease areas were also affected, but this is a huge loss for our community. Read our full statement: https://t.co/rC6HRCXa1E
Classification of schwannomas and the new naming convention for "neurofibromatosis-2": Genetic updates and international consensus recommendation
https://t.co/mn224pgKmI