New England Hemophilia Association

Serving the New England bleeding disorders community since 1957.

[New England Hemophilia Association @NewEnglandHemo]

Health insurance shouldn’t work like this.
@SenSanders @ChrisMurphyCT @SenMarkey @SenatorCollins @SenatorHassan https://t.co/2HU6QfHRdF

[New England Hemophilia Association @NewEnglandHemo]

When insurers control #PBMs, pharmacies, and even the providers who write prescriptions, they steer patients and dollars to their own pockets. We appreciate @SenWarren taking on this important issue. https://t.co/OMRAr1BSED #InsuranceConsolidation #HealthCareCompetition

[New England Hemophilia Association @NewEnglandHemo]

Recently passed #PBMreform legislation is a crucial step to correct the broken incentives in our prescription drug system and improve drug affordability.

We hope @POTUS keeps up the pressure on the large insurance companies and their PBMs.

[New England Hemophilia Association @NewEnglandHemo]

Behind rising healthcare costs are powerful industry forces that shift costs onto patients. New England families deserve better transparency, competition, and oversight. Our health can’t wait. @VoteJulieMiles https://t.co/11XFfOaF8N

[New England Hemophilia Association @NewEnglandHemo]

Insurance costs have outpaced wage growth by a wide margin, leaving many New England families and #patients vulnerable. Big-insurance is becoming a big problem. https://t.co/qUs6pHhoJM

[Hunterbrook @hntrbrkmedia]

NEW: Insurance giants are hiding billions meant to lower Americans’ drug costs.

Our year-long investigation details how CVS, UnitedHealth, and Cigna created shell companies to evade reform efforts and hide payments received from drugmakers.

Cc: @mcuban

[New England Hemophilia Association @NewEnglandHemo]

A new bipartisan bill in Congress, led by @SenatorHassan @SenWhitehouse & @SenPeterWelch would implement reforms to PBMs that increase transparency, curb harmful practices and bring meaningful relief to families across New England. Read the op-ed below. https://t.co/kgqCvFgnaD

[New England Hemophilia Association @NewEnglandHemo]

“For the hemophilia community, consistent and affordable access to specialized medication is not optional — it is essential for survival.”

In an op-ed in @NHBR, NEHA's ED, Rich Pezzillo, highlights how #PBMs drive up costs and limit access to lifesaving treatments for patients.

[New England Hemophilia Association @NewEnglandHemo]

The new Crapo/Wyden #PBM reform bill is a smart, bipartisan solution to help patients. We want to thank @SenatorHassan @SenWhitehouse @SenPeterWelch for their leadership and encourage the rest of the New England Senate delegation support this bill. https://t.co/j4PrjSWJyP

[New England Hemophilia Association @NewEnglandHemo]

The New England delegation serving on the Senate HELP Committee should champion #PBM reform and demand it be added to any healthcare package. #Patients all across the northeast could use a win this year! @SenSanders @ChrisMurphyCT @SenMarkey @SenatorCollins @SenatorHassan

[New England Hemophilia Association @NewEnglandHemo]

The #340BAccessAct helps restore the program’s original intent: making sure discounts benefit the communities and patients who need them most.

What do NH leaders, patient advocates, and national experts have to say? @RepGoodlander @RepChrisPappas. https://t.co/mBGRFu2hcx

[New England Hemophilia Association @NewEnglandHemo]

PBMs are part of the problem and take 50% of every dollar spent on medicines and, #MFN is not the solution b/c importing foreign prices means less treatments and cures for New England patients. @SenatorHassan @SenatorShaheen https://t.co/dF5HkgPHTM

[New England Hemophilia Association @NewEnglandHemo]

PBMs are part of the problem and take 50% of every dollar spent on medicines and, #MFN is not the solution b/c importing foreign prices means less treatments and cures for New England patients. @SenatorHassan @SenatorShaheen https://t.co/dF5HkgPa4e

[New England Hemophilia Association @NewEnglandHemo]

Please take up H. 6209 before the end of session. This nonpartisan bill would save patients lives. @sdonovanbristol

[New England Hemophilia Association @NewEnglandHemo]

The MFN pricing model for Medicaid will result in significant negative consequences across various markets, and would limit access to essential medications that save lives. @SenatorHassan @SenatorShaheen @SenJackReed @SenMarkey @ChrisMurphyCT @SenWarren

https://t.co/lOuZ6r00l5

[We Work for Health Massachusetts @WWFH_MA]

This month, we recognize the strength of those living with bleeding disorders. Early diagnosis, access to treatment, and research advancements are key to improving lives. Join us in spreading awareness! @NewEnglandHemo @nbd_foundation #BleedingDisordersAwarenessMonth

[New England Hemophilia Association @NewEnglandHemo]

The EO issued by @POTUS to eliminate the #PillPenalty represents an important step toward preserving access to, and encouraging the discovery and development of new, undiscovered treatments. Our community has always believed that #InnovationMatters! https://t.co/eWFXFMMB4q

[New England Hemophilia Association @NewEnglandHemo]

Thank you for meeting with us, @Rep_Magaziner!

We’re looking forward to partnering with you to protect Medicaid and the patients and families who rely on it every day for the care and treatment they need.

[Congressman Seth Magaziner @Rep_Magaziner]

Great meeting with the National Bleeding Disorders Foundation to talk about protecting access to life-saving care.

Every Rhode Islander deserves the treatment they need, and I’m working to make sure those with bleeding disorders aren’t left behind.

[New England Hemophilia Association @NewEnglandHemo]

Thank you for meeting with us today, @Rep_Magaziner. Please support the HELP Copays Act!

[New England Hemophilia Association @NewEnglandHemo]

The #IRA disincentivizes R&D and decreases access to critical #patient treatments. Please #FixIRA
@RepGoodlander @RepChrisPappas @RepJahanaHayes @RepMcGovern @Rep_Magaziner @RepGolden @RepBeccaB @chelliepingree @RepRichardNeal @WhipKClark @rosadelauro https://t.co/WTL9PolV0X

[Lupus Foundation NE @LupusNE]

Now is the time to pass #PBM reform! @SenatorHassan @RepChrisPappas @SenatorShaheen @RepAnnieKuster

https://t.co/rwD5YK6cPO