NGO SLAP Macedonia

Non-profit organization "Save Liver Association of Patients" Macedonia.
-Raising awareness for patients suffering from liver diseases and dysfunctions.

[Robert Mitchell-Thain💙💛 @PBCRobert]

An interesting day... we have permission to host a @PBCFoundation protest in Brussels re the ridiculous decision to recommend OCA license revoke in #PBC
Anyone want to join us?? Details to follow if you are interested... historic day for PBC patients.

[PSC Support @PSCSupportUK]

Good news! The 1st patient for the ASP-PSC study has been recruited 👏 This ground-breaking clinical trial funded by @CR_UK aims to see if the risk of cancer for people with primary sclerosing cholangitis (#PSC) can be reduced ➡️ https://t.co/EHrCio78MF #LetsBeatPSC #PSCStudy

[Martine Walmsley @F8Martine]

If you or anyone in your followers has PSC, please share the patient survey below. This is phase 1 of an international collaboration between PSC patient groups and our long term goal is to develop a regulatory standard instrument to measure acute/bacterial cholangitis in PSC 🙏

[Robert Mitchell-Thain💙💛 @PBCRobert]

A great video explaining some of the basics...

[Rare Disease Day @rarediseaseday]

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

[Robert Mitchell-Thain💙💛 @PBCRobert]

I absolutely LOVE these. Here's a great one to start the New Year- just one action, just one day at a time...

[Liver Patients International (LPI) @LiverPatients]

If there are local free screening facilities available, do something good for yourself today - check your HBV and HVC status. #WorldHepаtitisDay

[NGO SLAP Macedonia @NgoSlap]

@eupatients @ECCRT How to register ?

[WHO/Europe @WHO_Europe]

23-29 April is European Immunization Week!

▶️ Why is vaccination so important?
▶️ What diseases can we effectively prevent with vaccination?
▶️ How are we tracking vaccine-preventable diseases?

Follow us through the week.

#EveryDoseCounts #VaccinesWork

[NGO SLAP Macedonia @NgoSlap]

Our final video from walking in wood for #NASHDay #StopNASHNow Big thanks to @GlobalLiver for their support @BibaSlap @LiverPatients @ERN_RARE_LIVER

https://t.co/I0Qxtr4V1G

[NGO SLAP Macedonia @NgoSlap]

National media are talking about #NASHday so let our activities contiue till development of National register in #Macedonia for #NASH #StopNASHNow @BibaSlap @GlobalLiver @intNASHday
https://t.co/p3U86PN9nj

[NGO SLAP Macedonia @NgoSlap]

Local government (mayor) was included in our celebration of #NASHday with promises to help us with future activities about #NASH #StopNASHNow @BibaSlap @GlobalLiver @PBCFoundation @ERN_RARE_LIVER

[NGO SLAP Macedonia @NgoSlap]

Happy #NASHday 2022, raising awareness for healthy life style #StopNASHNow @BibaSlap @GlobalLiver @ERN_RARE_LIVER

[NGO SLAP Macedonia @NgoSlap]

The best session till now on #diaeurope2022 conference early #patients #engagement in #drug #development and #decision #making @eupatients @eurordis @GlobalLiver @BibaSlap

[EURORDIS-Rare Diseases Europe @eurordis]

This #RareDiseaseDay, @Europe2022FR held a high-level conference to discuss European action on rare diseases. We would like to thank the EU Member States and the @Europarl_EN for your unwavering support and call on @EU_Commission to take action, today.

👉https://t.co/62h3Dlyh8x

[Rare Disease Day @rarediseaseday]

Are you raising awareness for Rare Disease Day this year?

Using #RareDiseaseDay helps members of the rare disease community find each other, build solidarity, and get involved in Rare Disease Day.

Find out how you can get involved: https://t.co/dOjYVhSUYX

[EURORDIS-Rare Diseases Europe @eurordis]

"Because of the rarity of diseases, we can only be stronger by collaborating together. We need a collective, comprehensive and goals-based approach that goes across EU policy areas," says @yann_eurordis at today’s @euronews debate on Innovation in rare diseases. #EUAction4rare

[EURORDIS-Rare Diseases Europe @eurordis]

Are you a patient advocate who wants to see reduced inequality, better health, well-being and innovation in the future of rare diseases?

Today's your last chance to apply to join the #ECRD2022 for free and join in shaping future rare disease policies! https://t.co/2yjPusxFKH

[Robert Mitchell-Thain💙💛 @PBCRobert]

I am a patient advocate. My job includes fighting for best, equitable care possible for patients and also taking best info possible to help independently inform patients’ decisions. I am vaxxed and boosted. I trust the many clinicians I’ve spoken to.
(I was unsure at the start)

[EURORDIS-Rare Diseases Europe @eurordis]

Did you hear the EURORDIS Photo Award is back?📸

Submit your favourite photos depicting life with a rare disease now and be in for the chance to win!🏆

Submit your photo now: https://t.co/23on0P5Krf