RGN/RSCN Macmillan Clinical Nurse Specialist long term follow up childhood cancer survivors@NUH Wife & Mother to sons❤️lifelong Duranie; Triathlete & Ballerina
This somewhat complex map as the backdrop to our @cclguk nursing stand at #CCLG2025 shows just how many groups and networks we support - and this is just from nursing - providing support, networking, education and collaboration opportunities for our members
Our reminder to Rachel Reeves ahead of the UK Government Spring Statement tomorrow 👇
71% of children and young people with cancer struggle with the cost of travelling to treatment, and one in 10 miss or delay treatment because they can't afford to get there.
We’re here at #CCLG2025 conference and looking forward to sharing our work and discussing important topics with professionals working in children and young people’s cancer.
We’re excited to present our sector research at #CCLG2025. Starting at 1.15pm in hall 8, we’ll be sharing our North Star Vision and Collective Impact Initiative, followed by an oral abstract exploring the long term wellbeing of young cancer survivors at 1.45pm 👇
We’re thrilled to be starting our second day here at the annual @cclguk conference here in Birmingham! 🔬
We’re looking forward to catching up with so many wonderful delegates to talk all things research, and to contribute to a better & kinder future for children and young people with cancer 💜👑
🚨 Big news at #CCLG2025! @Kevin_Fong, medical doctor, broadcaster and space medicine expert, is sharing his fascinating insights on how to fail and learn from mistakes. With experience at @NASA’s Human Adaptation and Countermeasures Office at Johnson Space Center✨🔬
Congratulations to all our #CCLGMemberAwards winners! 🥳👏
Thank you to all our members for working tirelessly to make a real difference to the lives of children and young people with cancer and their families, both now and in the future.
#CCLG2025
We’ll be presenting our spotlight talk at 1:15 on Tuesday at #CCLG2025. Come along to hear more about our research into long term wellbeing, our North Star Vision and Collective Impact Initiative.
At #CCLG2025 we’re learning about integrating quality improvement with service development and how to do it well! Joined by speakers @GreatOrmondSt, @DrAmymitchell2, Sam Luk and Davina Hartley for a session on improving patient experience 👩⚕️💛 #CCLG2025 @cclgnursing
So excited to be part of this fabulous community and looking forward to the next 2 days! Always an incredible meeting and a wonderful opportunity to catch up with colleagues & friends from across the country ❤️
We're thrilled to welcome delegates to our biggest-ever #CCLG2025! With a packed programme of talks, workshops and discussions, there’s so much to learn and share 💛 Together, we can create a brighter future for CYP with cancer.
Tag @cclguk and #CCLG2025 to share your day!
It’s the biggest load of bollocks when I hear they need to go harder .. they need to release the shackles .. High level sport isn’t won by the teams that go hard it’s the teams that play SMART .. #ChampionsTrophy2025
During menopause, women can experience an increase in body inflammation which is primarily due to the decline in oestrogen, progesterone and testosterone levels.
Over time, if the inflammation isn’t addressed, it can damage our arteries, organs and joints, and increase our risk for chronic disease like heart disease, arthritis, dementia, diabetes, osteoporosis and other conditions.
In this clip, I talk about the science behind why this happens. When you understand the role our hormones play in relation to inflammation in the body, it makes much more sense why hormone replacement can offer anti-inflammatory benefits.
"To save his life, he’d need to have his eye removed.”
Teddy was diagnosed with #retinoblastoma, a type of eye cancer, in September 2024 when he was just two-and-a-half years old.
Order or download our free retinoblastoma factsheet: https://t.co/fsHu94MmFg
📢 Breaking news on #WorldCancerDay: The UK Government has announced that children and young people will be included in the upcoming Cancer Plan for England.
@ashleysgamble and @RachelKirbyR@YLvsCancer share our joint response https://t.co/xiBCdGxp10
Our study has just been published in Menopause journal which is a peer reviewed academic journal. This study is based in clinical data from over 1,500 women who were perimenopausal or menopausal.
It showed that absorption of oestradiol through the skin through a patch or gel really varies with around a quarter of women requiring higher doses of oestradiol to absorb adequate amounts through their skin.
Almost one in three women using standard doses of oestradiol had low levels of oestradiol in their blood.
There has been so much confusion in recent months about doses of oestradiol which has led to many women being told to reduce their dose or even stop HRT. However this study highlights the importance of having the right dose for the right person as absorption can really vary between women.
Some women need higher and off-label doses of oestradiol to absorb thr same amounts as other women using lower doses.
https://t.co/7my8qMcQVN
@MenopauseJrnl
Updated NICE menopause guidelines published today.
While it’s welcome to see HRT as the preferred treatment for the menopause, this is a disappointing update overall. The focus remains primarily on vasomotor symptoms – hot flushes and night sweats – which are, for many women, not the main symptoms of perimenopause and menopause. Most women experience brain symptoms – brain fog, low mood, anxiety, poor concentration, sleep disturbances, memory problems and fatigue – and these are things we know are unlikely to be alleviated in the long term by CBT, as suggested.
The guidelines also do not differentiate between older, synthetic HRT and the natural (body identical) hormones now more commonly prescribed – while the word “risk” is mentioned three times as often than the word “benefit”, these newer forms offer more benefit than risks.
The true risk comes in NOT taking HRT at all, with good quality evidence showing that low hormones during menopause increases the risk of heart disease, osteoporosis, type 2 diabetes, dementia, neurodegenerative diseases, clincial depression, autoimmune diseases and an earlier death. These diseases reduce in women taking hormones and life expectancy increases.
Women deserve to be fully informed and involved at every step of their healthcare consultation to make an informed decision on the right treatment or combination of treatments for them. While we have seen a rise in recent years in access to evidence-based treatments like HRT, a postcode lottery still exists, particularly for those from lower socio-economic backgrounds. Too many women are still struggling to receive HRT, and these guidelines will be confusing for both healthcare professionals and women.
Perimenopause and menopause is sorely under-researched and under-funded, and this must change. In the meantime, women deserve to have a choice, and those who want to take HRT should be able to have it prescribed. That HRT is now the frontline treatment is refreshing, but future documents and consultations must go further to ensure women get the treatment they deserve.
https://t.co/9tut2nB1SO