Virtual #RareDiseaseDay at @NIH 2022 is next Monday, Feb. 28! Register here: https://t.co/u8u3HWTspM #RDDNIH
Check out this thread for information on sessions w/@rarediseasesnet speakers ⬇️
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Rare Disease Day is just around the corner... are you ready to get involved?
Watch our recorded webinar and learn how to prepare your social media communication ahead of Rare Disease Day 2022.
➡️Watch now: https://t.co/paVqkelYOE
#RareDiseaseDay
Spend few minutes to sign up to the #RareDiseaseDay new webinar about ways to introduce rare diseases to young children, taking place on the 17th February 2022
https://t.co/Q2HNuVEugY
#RareDiseasDay2022#RareDiseaseMonth
Spend few minutes to sign up to the #RareDiseaseDay new webinar about ways to introduce rare diseases to young children
📅 17 February 2022
🕑 14:00 CET
https://t.co/est8ZF3iQM
Nada is determined to spread awareness about Epidermolysis Bullosa and fight against social discrimination.
Read Nada's story and share your own: https://t.co/iqa01ROPk0
#RareDiseaseDay2022
22-year-old Nada from Egypt is living with epidermolysis bullosa, a rare disease that affects the skin.
Nada is determined to spread awareness about Epidermolysis Bullosa and fight against social discrimination.
➡️Read Nada's story and share your own: https://t.co/HpSS51G0Cu
Around the world there are 300 million people living with a rare disease. 🌎
Are you one of them?
Share your story today and help raise awareness: https://t.co/LbKfyChrOU
#RareDiseaseDay
Inside the rare disease centre which aims to accelerate biotech growth...
DDW’s Megan Thomas spoke with Thomas Ogorka our Managing Director about the potential of our rare disease centre.
You can read the interview here: https://t.co/UC3uGKJ6On
#raredisease#rarediseasecentre
@EmmesCRO's strategic partnership with MedGenome is aimed at accelerating breakthrough treatments, powered by human genomics, for #raredisease patients.
Click here to read more: https://t.co/NIV8TPZOcP
We have launched a strategic partnership with @MEDGENOME to focus on advancing #raredisease research! This collaboration will support patient recruitment, and create standard control arms for advanced statistical models of treatment effect. #wodc2021 https://t.co/148vngVvib
We are delighted to be exhibiting at World Orphan Drug Congress in Barcelona next week! You can visit us at booth #19 to meet with our experts, and to learn all about our exciting launch as @EmmesCRO's Rare Disease Center.
#WODC#WODCEurope#RareDisease
We are excited to announce Orphan Reach: Emmes' Rare Disease Center! This global specialty center is dedicated to the advancement of #raredisease research by providing specialized clinical trial design & execution capabilities @orphan_reach
Learn more: https://t.co/pq1dlecDOU
#BREAKING: We are excited to announce the launch of Orphan Reach as @EmmesCRO's Rare Disease Center! The center will incorporate Emmes’ world class reputation in public health research, with the expertise of Orphan Reach.
Learn more: https://t.co/R4aEEF5Ltw
Do you have the ability to build strong relationships with a variety of people?
Yes?
Apply to join the team as our new Fundraising Officer!
Read the job description now and apply before 9am on 1st December
Good luck & we look forward to meeting you!
👉https://t.co/19OY4aj2Hy
During World Mitochondrial Disease Week we'd love every single one of our followers to take a few seconds to RT this short animation which gives a simple overview of #mitochondrialdisease
It's time to talk about #mito
Thank You! ❤
We are starting World #MitochondrialDisease Week with this simple statistic. Some might say it's only one, but for families that one is their everything. There are few effective treatments & NO CURE for #mito Please RT to raise awareness. Find out more: https://t.co/MQpNRa7KOJ
🗓 Join the online educational event on Adult Life & Duchenne!
→ Experts share their experience and knowledge on adult life and #Duchenne
→ Duchenne adults from different parts of the world share their experience of living with Duchenne
https://t.co/XjFMCro0Xs #WDAD2021