TYAC Palliative and End of Life Care SIG

Network of TYA HCPs with an interest in Palliative and End of Life Care. Sharing best practice working with @TYACancerPro

[Commission on Palliative and End-of-Life Care @pallcarecom]

The Commission on Palliative and End-of-Life Care has recently published its report with key recommendations to improve access to high-quality palliative care. You can find the report (Volume 1) here: https://t.co/KjoLawI0Mf

But what is Specialist Palliative Care?

[TYAC Palliative and End of Life Care SIG @PALSIG_TYAC]

Giving young people time and space for unscripted conversations on their own terms is essential for ensuring they feel heard and understood

[CCLG @cclguk]

In our latest blog, Youth Support Coordinators and CCLG members Tom and Lois share why having open, honest conversations about end-of-life wishes is so important, especially for young people facing cancer 💛

Find out what they had to say at https://t.co/AuJb9cFS7Y

[Clare Fuller RGN MSc @ClareFuller17]

✔️Direct link to complete survey for the Palliative & EoLC Commission
✔️The survey is quick & easy to do
✔️You can list 3 things you think could make a real difference
https://t.co/DC1h96rYot
@pallcarecom
#PEoLC

[jen vidrine @drjenscaife]

So excited for this! We have some amazing international speakers in the field of supp onc, oncology and haemato-oncology-and It’s not too late to sign up.

[Cicely Saunders Institute at King's @CSI_KCL]

Important systematic review & meta-analysis @CicelySaunders1 Annual Lecture: https://t.co/u1cXN4aDKw
“Duration of palliative care is much shorter than the 3-4 months of input by a multidisciplinary team necessary for the full benefits of PC care to be realised.”- @DrDavidHui

[Cicely Saunders Institute at King's @CSI_KCL]

Michal Galazka Study Day
Wednesday 6th November 2024 13:00-16:30
Palliative care for children and young people
The event will be taking place online and in-person.
Register here:
https://t.co/JvAHGhDoqB

[Nursing, Midwifery & Palliative Care at King's 💙 @kingsnmpc]

Have you booked your ticket yet? 🎫

The Cicely Saunders International Annual Lecture is nearly here, so make sure you're registered for what is sure to be an excellent evening with Dr David Hui of MD Anderson Cancer Center in Texas.

Register now 👇 https://t.co/kBMRnhLXCc

[Ashley Ball-Gamble @ashleysgamble]

Abstract submission is open for the UK’s leading/main/BEST conference for #CYPcancer professionals - share your work with our community. Deadline 26/11. Bigger venue = more presentation slots and posters. Plus prestigious CCLG Research Awards to be won…

[The Christie Institute for Cancer Education @CICEManchester]

📢The UKASCC Supportive Oncology Conference 24 agenda is out now! Don't miss this opportunity to join esteemed speakers from around the world including @bermandr2 @ash375 @drjenscaife.

Grab your early bird tickets today https://t.co/s4qCooRpb2

@UKASCC #supportiveoncology

[TYAC Palliative and End of Life Care SIG @PALSIG_TYAC]

Emily this is the most excellent news! Congratulations! Very much looking forward to hearing more about your thesis work

[Dr. Emily Drake @EK_Drake]

Today I officially became Dr. Drake!

✅ Passed unanimously without revisions!

🙌 Thank you to my supervisor (Dr. Lori Weeks), my committee (Dr. Michael van Manen, @JCurran_lab), my citizen partners (@Ian_Ricci, @danimarietaylor), my participants, family, colleagues, friends, external examiner (@JohnMSalsmanPhD) and #AYACSM community!!!

#AYACancer #BTSM #BCSM #LCSM #GYNCSM @PhDVoice

[jen vidrine @drjenscaife]

Such a great resource-check it out! Also lovely to see some wonderful young people featured ❤️ @PALSIG_TYAC @curlypost

[Liz Purnell @Rubypenn83]

Second conference of the week, highlighting the importance of psychological support for TYA Cancer Teams
#STHNMC24 #TYACancerPro #SheffieldTYATeam

[Debbie Critoph @critoph_debbie]

***NEW- Evidence based guideline***

Thank you to @TYACancerPro for funding this work, national expert collaborators and young people who completed the questionnaires.

https://t.co/GP8zGTYRm8

Publication underpinning this work:
https://t.co/uYaBHjhMxP

[TYAC Palliative and End of Life Care SIG @PALSIG_TYAC]

Very much looking forward to this, and to also have the opportunity to raise the profile of the work of PALSIG in improving PEOLC for our teenagers and young adults #TYACAM @TeenageCancer @YLvsCancer

[Ashley Ball-Gamble @ashleysgamble]

Final countdown to #CCLG2024! Manic office morning in readiness for welcoming almost 680 delegates to our Annual Conference from Sunday - Tuesday (a new record by some margin!)

[CCLG @cclguk]

Ever wondered what cancer care looks like for teens and young adults? 💛 This #TYACAM, we're inviting you to join our new webinar with @JoStark40711424, 'What is cancer care like for TYAs?,' on 16 April at 7 pm to find out. Register for free at: https://t.co/KzTOsSI87M

[PCRS @PCRScommittee]

Join us for our next Event...
Paediatric Palliative Care Research: Working with families
🗓️30 April 2024
⏰13:00 - 14:00
Speakers: Dr Lucy Coombes and Dr Julia Hackett Session Chairs: Prof Lorna Fraser and Prof Julia Downing

Book your place 👇
https://t.co/zsAUDyge6P

[No Barriers Here©️ @NoBarriersHere]

“As people get ill, identity gets wiped.”

‘It’s more than rainbows in receptions’ - Working with LGBTQ+ People in Palliative and End-of-Life Care. New resource coming soon… 📖

#palliativecare #LGBTQ+ #eolc 🏳️‍⚧️ 🏳️‍🌈

Illustration: Cass Humphries-Massey
Funded by: Marie Curie

[PCRS @PCRScommittee]

Next Event: Paediatric Palliative Care Research: Working with families
🗓️30 April 2024
⏰13:00 - 14:00

Speakers: Dr Lucy Coombes and Dr Julia Hackett Session Chairs: Prof Lorna Fraser and Prof Julia Downing

🎟️https://t.co/zsAUDyge6P

[Teenagers and Young Adults with Cancer @TYACancerPro]

Today on #WorldHealthDay, @JoStark40711424, CCLG and TYAC Chief Nurse, shares some top tips on how to make the most of your GP appointments to ensure you're getting the care you need! 👩‍⚕️ 💛 Find out more at: https://t.co/JNte348I70 #TYACAM #EarlyDiagnosis

[Debbie Critoph @critoph_debbie]

***New Publication*** https://t.co/uYaBHjhMxP
We share a conceptual model to represent the complexities of communication with AYAC.
Triadic communication is central.
HCP must proactively empower young people's involvement.
Assess communication preferences.
Offer time alone.