Claire Lewis-Norman

Teenage Cancer Trust Clinical Nurse Specialist

[No Barriers Here©️ @NoBarriersHere]

“As people get ill, identity gets wiped.”

‘It’s more than rainbows in receptions’ - Working with LGBTQ+ People in Palliative and End-of-Life Care. New resource coming soon… 📖

#palliativecare #LGBTQ+ #eolc 🏳️‍⚧️ 🏳️‍🌈

Illustration: Cass Humphries-Massey
Funded by: Marie Curie

[Dr Maria Cable RN, DAHP💙 @MariaCable2]

Great to see this get some attention from mainstream media. Teen cancer survivor: 'The radiographer started crying during my scan' https://t.co/8oUBBuEG8v

[Nicola Walker @EnvyRow]

Today a group of young Scottish cancer patients launched a podcast with the support and guidance of @thisisgoradio - please share their voices far & wide. You never know who might benefit from tuning in!

#CancerAwareness #cancerpatient #TYAcancer

https://t.co/HJAIbbNMaK

[Debbie Critoph @critoph_debbie]

***New Publication*** https://t.co/uYaBHjhMxP
We share a conceptual model to represent the complexities of communication with AYAC.
Triadic communication is central.
HCP must proactively empower young people's involvement.
Assess communication preferences.
Offer time alone.

[Teenage Cancer Trust @TeenageCancer]

We’re excited to share that we’re finalists in the @SmileyCFA Charity Film Awards - for our film Lulu: Forever 19.
Voting is now open for the ‘People’s Choice’ category, which is decided entirely by YOUR public votes.
Vote now 💙👇
https://t.co/4pO4tjPbUC

[Ursula Sansom-Daly, PhD @usansomdaly]

In 2024 as #cancer treatments evolve, we need to integrate palliative care in better, more agile ways. Thrilled to share that our stellar #ClinicianResearcher team has received #MRFF @nhmrc funds to trial a model integrated pall care + cancer care for children & #AYA🙌🏻
#PedPC 1/

[Dr. Emily Drake @EK_Drake]

🚨 New paper 🚨

🌏What evidence exists concerning the delivery of #palliative & end-of-life care to #AYACancer patients?

👇Here's what we found out!
https://t.co/Tl4cbh4lkt

#AYACSM #MedTwitter #RadOnc #PallOnc #BTSM #BCSM #GlobOnc #PedOnc

[The Lancet Youth @LancetYouth]

🌍 Exciting opportunity! The Second Lancet Commission on Adolescent Health & Wellbeing is conducting a study on youth advisory councils worldwide. Share your experiences & help shape the future of youth engagement. Take the survey now: https://t.co/U3Ub5jG20s. #YouthLeadership

[What Works Centre for Wellbeing @WhatWorksWB]

It's the start of #DyingMattersAwarenessWeek (8-14 May), we're hosting a webinar - Working with terminal illness, Fri 12 May, 12.00

This free event explores our project with @mariecurieuk to understand experiences, & identify policies & practice

Join us https://t.co/HkvjLBBkwu

[Claire Lewis-Norman @curlypost]

@ClareFuller17 Hi Clare, do you know if it’s being recorded? I’m booked in but might not be able to stay on for the full hour

[Claire Lewis-Norman @curlypost]

@HolysseusFly Naturally dry, of course (unless I’m about to go to bed OR it’s super cold weather, then it’s diffused) 😘

[Claire Lewis-Norman @curlypost]

Check out this fab resource that highlights the effect of cancer related fatigue on young people’s experience and how we can help! @UniofBath @uhbwNHS @TeenageCancer @YLvsCancer #TYACAM
https://t.co/RFxFMDWFZe

[Claire Lewis-Norman @curlypost]

@EK_Drake Emily I’m so sorry, sending lots of love and hugs to you

[Claire Lewis-Norman @curlypost]

Would help if I’d posted the photo 😬

[Claire Lewis-Norman @curlypost]

Happy Easter! Massive thanks to @CancerRugby for our delivery of Easter eggs and treats. @TeenageCancer @uhbwbhoc @uhbwNHS @banterwithbats

[Claire Lewis-Norman @curlypost]

Happy Easter! Massive thanks to @CancerRugby for our delivery of Easter eggs and treats. @TeenageCancer @uhbwbhoc @uhbwNHS @banterwithbats

[Claire Lewis-Norman @curlypost]

Happiest of Birthdays Hanna 🎉

[Hanna @HannaTYAnurse]

Woohoo it’s my birthday!! I am having the very best birthday weekend 💗🎂

[Cathy Cook @cpea88]

A cancer diagnosis at any age is tough, but TYA’s may be facing many other challenges on top of their health. Support from a specialist team can make all the difference ❤️

[Claire Lewis-Norman @curlypost]

Join in if you can @PALSIG_TYAC

[Dr. Emily Drake @EK_Drake]

🌍 Next week is global #AYACSM awareness week!

📱Join us on Tuesday, April 4th to discuss what advocates can do to support young adults transitioning to #PalliativeCare

⭐️This chat will be conducted as a research study for my doctoral dissertation
#BTSM #BCSM #HPM #AYACancer

[Claire Lewis-Norman @curlypost]

@BethanSIngram

[Bethan Edwards @bethanedwards_]

❗After some help from my followers with clinical contacts in Wales - please share if you can❗

On April 6 at 9am, I'll be holding a roundtable with health and social care professionals in Wales who have contact with patients nearing the end of life - in whatever capacity.

[Claire Lewis-Norman @curlypost]

Hi Oisin, can I DM you?

[Oisín Power @oisinliampower]

I am collecting stories about children's palliative care in the UK. From staff/volunteers/patients/families.

These stories will inform two exciting art and animation projects

Please get in touch if you would like to contribute