National Lymphoedema Partnership

NLP is a multi-stakeholder group including clinical, educational and research experts from various professional groups and people with lymphoedema

[UofGLymphoedema @UofGLymphoedema]

Actress Kathy Bates to testify about lymphedema ⁦@BritishLymph⁩ ⁦@lymphsupport⁩ ⁦@bmj_latest⁩ ⁦@rcgp⁩ undergraduate #doctors get so little training on the #lymphatic system how can they realise how many #pathologies if affects? https://t.co/hDtkl2WXob

[National Lymphoedema Partnership @PartnersLymph]

@doppydawg Sorry you had this experience. This reinforces the need to keep working for better understanding to ensure appropriate treatment is accessible for people with Lymphoedema. There will be follow up actions and communication with the DoH but you make a good point.

[National Lymphoedema Partnership @PartnersLymph]

You may be interested to see the key points sheet that we gave out to MPs during the parliamentary reception. We will also be using this during our ongoing work with the NLP, it can be viewed on the LSN and BLS websites.https://t.co/UvY6IaeBEe https://t.co/ORSvokSJra

[National Lymphoedema Partnership @PartnersLymph]

Take A Look at the Members of Parliament who were able to join us for the NLP commissioning guidance launch https://t.co/S17UROtX5L
#lymphpartnership @BritishLymph @lymphsupport

[BLS @BritishLymph]

Educational Grant Booking, Go Live on 1st April @BritishLymph

[OLP @OxfordOLP]

A important reminder that you need to address both the physical symptoms of your swelling but also the emotional issues that arise from having a chronic condition. #lymphoedema

[LSN @lymphsupport]

Here are the Members of Parliament who were able to join us for the NLP Commissioning Guidance launch at Westminster @PartnersLymph @BritishLymph https://t.co/j9Lq1HXCIf

[BLS @BritishLymph]

We are delighted to have shared posts from other groups around the world who share our passion for ensuring everyone with Lymphoedema has access to care and will continue to post these throughout March. Follow us on Twitter, Facebook & Instagram @BritishLymph

[L-W-O Community @LWOCommunity]

Our second poster of the day from Pernille & @gaynor_leech. I think you could add bone broths and veggie stocks that are low or salt free to the list. @NHWeek @BritishLymph @lymphsupport @MCSneddon1 @janecoateswcc

[National Lymphoedema Partnership @PartnersLymph]

Thanks for all the support re the Westminster launch event & for sharing MP responses. We now plan to focus work with some CCGs with poor/no services and endeavour to ensure that MPs have more accurate information on Lymphoedema.@PartnersLymph @BritishLymph @lymphsupport

[Margaret Sneddon @MCSneddon1]

👏👏👏 well done everyone @BritishLymph too. It was good fun as well as sending serious messages. @MCSneddon1 Followers will get regular updates on more to come @Cheryl @gaynor_leech @MrsBosanquet

[Rebecca Elwell @Rebeccaelwell3]

Lymphoedema is a common side effect after surgery for melanoma. For more information follow @BritishLymph

[LegsMatter @LegsMatter]

It's going to be a GREAT BIG WEEK FOR LEGS AND FEET! There are lots of ways you can get involved with the first ever Legs Matter Week. Check out our website for THREE things you can start planning now. https://t.co/fGfVegsQNu

[Margaret Sneddon @MCSneddon1]

Cellulitis - both a cause and complication of Lymphoedema, requires non standard treatment see guidance at https://t.co/0iiXHP4Lxs @BritishLymph @UofGMedicine @WeNurses @EmmaRob69595857 @MCSneddon1

[National Lymphoedema Partnership @PartnersLymph]

The NLP is a collaborative of organisations and consequently unable to offer advice to individuals. If you are affected by lymphoedema and have questions please visit the LSN https://t.co/QFfHY62DuS or telephone their support line on 020 7351 4480.
@lymphsupport @BritishLymph

[BLS @BritishLymph]

Brand new Lymphoedema Tariff Guide now available from @BritishLymph at https://t.co/xIMCC9FPu5 to support Commissioning & planning of services - cost calculator tool also available https://t.co/BR0s6KCO9L @rcni @HSJnews

[Margaret Sneddon @MCSneddon1]

Great Info post @OxfordOLP for #LymphoedemaAwareness Week @BritishLymph @PartnersLymph @lymphsupport

[National Lymphoedema Partnership @PartnersLymph]

Lymphoedema (chronic oedema) affects all ages for many reasons - find out more: https://t.co/7p16uh6XmK @BritishLymph @lymphsupport

[BJCN @BJCommunityNurs]

It's lymphoedema awareness week! @BritishLymph #LymphoedemaAwareness #sockit

[Margaret Sneddon @MCSneddon1]

Thanks Karen great to see success of @TCST_London initiative and reduction of cellulitis and hospitalisation @AccelerateCIC See guidance on websites of @BritishLymph and @lymphsupport @PartnersLymph @bbchealth @PHE_uk #LymhoedemaAwareness