International PCD Physio Network

A network for physiotherapists, physical therapists and respiratory therapists working with people with Primary Ciliary Dyskinesia. #IPCDPN

[International PCD Physio Network @PcdPhysio]

One week to go until our webinar. Hot topics in PCD research for our super physio community. We're looking forward to seeing you!
Tue 5th March 13:00-15:00 GMT
Full details and register here 👇
https://t.co/g94s5eNJ1e…

[International PCD Physio Network @PcdPhysio]

Please share @PCD_UK @beatpcd @pcdcyprus @PCDFoundation @PCDAustralia @PCD_Scotland @TheACPRC @ErsPhysios

[International PCD Physio Network @PcdPhysio]

It's time to sign up for our webinar on current research projects. It's on Tue 5th March, 1-3pm GMT.
Here's the all important link to sign up:
https://t.co/yqd8yKFGQP

[International PCD Physio Network @PcdPhysio]

@beatpcd @PCD_UK @PCDFoundation @pcdcyprus @PCD_Scotland @TheACPRC @ErsPhysios

[International PCD Physio Network @PcdPhysio]

Time to save a date in your new calendar...the next IPCDPN webinar will be on Tuesday 5th March 13:00-15:00 GMT focussing on hot research topics. Watch this space for more info!

[PCRS @PCRSUK]

We have published our updated position statement - 'Inhaler Switching: Making safe and clinically appropriate changes for patients with respiratory disease'.

Read the statement, which details PCRS's position 🔗https://t.co/znkDHCjeLU

[James D Chalmers @ProfJDChalmers]

Abstract submission is now open for the World Bronchiectasis Conference being held in Scotland in 2024.
Please join us! We have reserved a large number of slots on the program for spoken sessions abstracts, and awards for early career investigators
#bronchiectasis
@dundeeuni

[International PCD Physio Network @PcdPhysio]

Can you help raise awareness of PCD this month? Follow and retweet @PCD_UK

[PCD Support UK @PCD_UK]

It's PCD Awareness month!

We'll be celebrating all month long with regular updates and sharing LOADS of information about PCD.

Join us by retweeting our posts and spreading the word!

#PrimaryCiliaryDyskinesia #PCDAwarenessmonth2023 #PCD #GetInvolved #Raredisease

[International PCD Physio Network @PcdPhysio]

Hyperpolarised 129Xe MRI can be used to visualise changes following airway clearance.

[International PCD Physio Network @PcdPhysio]

#ERS2023 may be over but we have one last flurry of posters from the final session still to share with you...inspiratory muscle strength is associated with 6MWT distance in PCD.

[International PCD Physio Network @PcdPhysio]

Hyperpolarised 129 Xe MRI is feasible in pediatric PCD and looks at different disease aspects compared to FEV1

[International PCD Physio Network @PcdPhysio]

Night time cough frequency is higher in adults with CF than PCD, but higher in childre with PCD than those with CF.

[International PCD Physio Network @PcdPhysio]

Time to share a few more posters from ERS...
E-cigarette use in young people with PCD is higher those with CF.

[International PCD Physio Network @PcdPhysio]

The genetics of haemophilus influenza in PCD.

[BEAT-PCD (ERS CRC) @beatpcd]

Our @EuroRespSoc Clinical Research Collaboration Management meeting is under way in Milan at #ERSCongress
Exciting plans for the next 3 years in every of the work packages. More info on our website: https://t.co/fwHpTxklXK

[International PCD Physio Network @PcdPhysio]

Genotype phenotype links in PCD

[International PCD Physio Network @PcdPhysio]

A PCD packed poster session. 👊
Kicking off this thread, exercise in PCD. Higher activity associated with sputum clearance, more physio and feeling better but most people don't do enough.

[International PCD Physio Network @PcdPhysio]

Seeking patient feedback is useful, here the team found out more education was needed, including about news and airway clearance.

[International PCD Physio Network @PcdPhysio]

A preview of the English adult pcd physiotherapy standards of care, recommendations here. More evidence is needed across all areas.

[International PCD Physio Network @PcdPhysio]

What outcomes should be reported in PCD studies? 👇 a consensus statement from @beatpcd

[International PCD Physio Network @PcdPhysio]

Lower FEV1 is associated with pseudomonas growth in PCD

[International PCD Physio Network @PcdPhysio]

Genotype phenotype links in PCD