Perception Restoration Foundation

A non-profit focused on ending the stigma, low awareness, poor treatments and ill-understanding associated with #HPPD.

Harm reduction + research

[Perception Restoration Foundation @PerceptionFdn]

@Eisor800526472 Wouldn't hurt to include! Thank you

[Perception Restoration Foundation @PerceptionFdn]

Check out this really good in-depth questionnaire, which asks about what helps, accompanying conditions, patterns of drug use with HPPD, etc.!

[Natalie Gukasyan, MD @N_Gukasyan]

Our new survey study of hallucinogen persisting perception disorder (HPPD) experiences is now open. We hope this will help us glean new insights about phenomenology, risk factors, and treatment options for this condition. Please share/RT! https://t.co/bTy8a9rcM7

[Perception Restoration Foundation @PerceptionFdn]

"[V]eteran retreat centres like Esalen have traditionally said people should not make major life-decisions for at least two weeks after a spiritual retreat".

The same applies also to self-diagnoses people come to, inc. HPPD. A lot of rabbit-holed false positives come to us

[Perception Restoration Foundation @PerceptionFdn]

@therealbrom Psychedelic addiction, HPPD, depersonalisation-derealisation

[Perception Restoration Foundation @PerceptionFdn]

And this has to some extent to be an under-count, because it is subject to survivorship bias. A certain degree of health is required to keep going after a psychedelic crisis, let alone to fill in a survey.

[Perception Restoration Foundation @PerceptionFdn]

A cool reproduction of HPPD 'after image' effects and visual static

[Perception Restoration Foundation @PerceptionFdn]

@trpwolff Good point, we should probably have said 'psychedelic users'. This refers to the sample of 2500 users in the 2011 study, the last one done on prevalence: https://t.co/U5g42Ah9e7

[Perception Restoration Foundation @PerceptionFdn]

Around 3.7% of a representative sample of the UK population reported symptoms compatible with Visual Snow; estimated prevalence of HPPD in the psychedelic community is 4.2%. HPPD may affect those with pre-existing visual aberrations.

https://t.co/XqoxDOxfv2

[Perception Restoration Foundation @PerceptionFdn]

2. @ThomasKnuijver: an addiction physician who specialises in treating opioid addiction with ibogaine, and has published a case report of ibogaine-induced HPPD!

[Perception Restoration Foundation @PerceptionFdn]

Two new members of the Directory this month. We host specialist professionals from around the world with previous experience and expertise in HPPD: a first for a condition that many people struggled to get diagnosed or adequately treated.

https://t.co/NVix87c5Ai

[Perception Restoration Foundation @PerceptionFdn]

1. @HolBjo: a Norwegian psychologist working in public health care and Psykolyse, a clinic specializing on psychedelic integration therapy.

[Perception Restoration Foundation @PerceptionFdn]

And what the hell is 'HERBAL XTC'? Sold from the Buddha's lap upstairs at the shop!

[Perception Restoration Foundation @PerceptionFdn]

Check out @EdPrideaux's talk on HPPD to the Psychedelic Society of the Netherlands... Live from an Amsterdam smart shop last month!

https://t.co/ybQbInNxvP

[Perception Restoration Foundation @PerceptionFdn]

@EdPrideaux has written a new article on HPPD and its links to anxiety and Visual Snow Syndrome for @psysupnet. Check it out: https://t.co/kX0teqqpv7

[Perception Restoration Foundation @PerceptionFdn]

@PointBreak_1983 I'm glad it's feeling better. Indeed, the DR seems to be the worst feature for some people...

[Perception Restoration Foundation @PerceptionFdn]

Curious detail in a paper on Visual Snow Syndrome, of which HPPD has been variously deemed a subtype. Some interpret their 'HPPD' - as with voice-hearing and visions in the traditional psychosis spectrum - as being of mystical origin. The same can apply to VSS!

[Perception Restoration Foundation @PerceptionFdn]

@amyct_ https://t.co/t5unBGwGSi

Here you go. Table 7

[HPPD Awareness Movement @HPPDawareness]

#HPPD people!!
I just got word of a research survey from @EdPrideaux and @PerceptionFdn!
This is the most in-depth research questionnaire on HPPD and post-drug visual changes! This is imperative to getting better numbers; understanding the complexeties of HPPD!
#VisualSnow

[Perception Restoration Foundation @PerceptionFdn]

@neurorebelde That's not exhaustive of how addiction works at all. @EdPrideaux of the Foundation just wrote an article on psychedelic psychological dependency: https://t.co/P8UGfiz0Jm

Also, the study of the thread considered perceived risk in general, not just addiction.

[Perception Restoration Foundation @PerceptionFdn]

In 2014, just under 30% between 12-17 believed there was no significant risk from taking LSD 1-2 x a week: a strong increase from 2002 w/out the current 'renaissance'.

What would it be now, ten years on, when they're told the drugs are 'safe', 'non-addictive' and 'healing'?

[Perception Restoration Foundation @PerceptionFdn]

@HolBjo @EdPrideaux @JulesEvans11 Absolutely, yes. I think that the way is acknowledge the possibility of visual changes, but also acknowledging that most people with this are fine and it's normal. Would mean that catastrophising to HPPD would be less likely.

[Perception Restoration Foundation @PerceptionFdn]

A new piece on HPPD by @EdPrideaux of the Foundation and @JulesEvans11' Challenging Psychedelic Experiences Project.