Pouchitis

Page no longer active. Follow @RaremarkHealthfor #pouchitis
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[Pouchitis @Pouchitis]

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[Pouchitis @Pouchitis]

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This page is no longer making any active posts, but please hop over to @RaremarkHealth for continued rare disease news, updates - including posts on #pouchitis!

[Pouchitis @Pouchitis]

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This page will no longer making any active posts so follow @RaremarkHealth for continued rare disease news, updates and more - including posts on #pouchitis!

[IBDrelief @ibdrelief]

Pan-proctocolectomy surgery removes the colon, anal canal & rectum. Either a #stoma or #jpouch are then formed.

https://t.co/OsmQuTlSg7

[Marisa Troy @JournalingIBD]

Embarrassing noises can impact my daily habits. It's embarrassing to eat and drink around other people.
💜Anyone else?

https://t.co/GXJbvHwsqY

#IBD #crohns #ulcerativecolitis #ostomy #Jpouch

[Gastroenterology Learning Network @Gastro_Network]

In this #podcast, Dr Barnes (@EdBarnesMD from @UNCGastro) discusses his recent #research into the prevalence of #pouchitis among patients who have undergone ileal pouch-anal anastamosis surgery.

>> https://t.co/Yv7alpg5eg <<

#gastrotwitter

[Pouchitis @Pouchitis]

How can I communicate better with my healthcare providers?
* Be descriptive
* Be straightforward and honest
* Don’t go alone
* Write it down
* Make use of digital

Read more in our article.

#pouchitis #jpouch #IBD #colitis #crohns https://t.co/LQNfJFr4x8

[Pouchitis @Pouchitis]

Which pouchitis symptoms need medical help right away? We look at some warning signs to watch for, based on the most common reasons for hospitalization among people with pouchitis.
#pouchitis #jpouch #IBD #colitis #crohns https://t.co/WLGT9WTMRr

[Pouchitis @Pouchitis]

“Set realistic expectations. Know that the first year is the biggest period of adjustment. Connect with other patients for support. Remember not everything you read online is accurate. Know that most of us are happy to have had the surgery and life improved.”
#pouchitis #jpouch

[Pouchitis @Pouchitis]

We’re Raremark, and we’re building an online platform for rare disease patients and caregivers. To make sure it’s useful, we’re running a survey to find out what content patients and caregivers would like to see on our site. Let us know! #pouchitis #jpouch https://t.co/pdDmw4tI97

[Pouchitis @Pouchitis]

What is gene therapy?
Around 80% of rare diseases have a genetic link. Many of these diseases don’t have any good treatment options, but gene therapy might help. So what is gene therapy, and how does it work? https://t.co/NExaz2Zkna

[Pouchitis @Pouchitis]

What does 'patient voice' mean to you?
#pouchitis #jpouch #IBD #colitis #crohns

[Pouchitis @Pouchitis]

Talking to co-workers about your condition. It’s your choice what to say about your illness and how much to share. But if you have an emergency at work and your co-workers already know about your condition, they may be able to help you get through it. https://t.co/MvCDmeS6xa

[Pouchitis @Pouchitis]

Asking for emotional support when things get tough. If you’re not asking your friends and family for help, you’re missing out on important sources of support.
#pouchitis #jpouch #IBD #colitis #crohns https://t.co/H8jrKFKa8e

[Pouchitis @Pouchitis]

“Set realistic expectations. Know that the first year is the biggest period of adjustment. Connect with other patients for support. Remember not everything you read online is accurate. Know that most of us are happy to have had the surgery and life improved.”
#pouchitis #jpouch

[Pouchitis @Pouchitis]

We’re running a survey to find out what patients and caregivers would like to see on Raremark. Let us know what’s important to you, including any topics you haven’t had the courage to ask about yet.
Take our survey today!
#pouchitis #jpouch https://t.co/pdDmw4tI97

[Pouchitis @Pouchitis]

Communicating with doctors and other health professionals isn’t always easy. We look at a few things you can do on your end that can help improve communication.
#pouchitis #jpouch #IBD #colitis #crohns

[Pouchitis @Pouchitis]

What causes a J-pouch to flare up with pouchitis?
Have you had a sudden flare-up of your J-pouch for no obvious reason? Learn some reasons why you might have pouchitis.
#pouchitis #jpouch #IBD #colitis #crohns https://t.co/dRUZnUKVGN

[Pouchitis @Pouchitis]

Asking for emotional support when things get tough. If you’re not asking your friends and family for help, you’re missing out on important sources of support.
#pouchitis #jpouch #IBD #colitis #crohns https://t.co/RTCLf5FmFT

[Pouchitis @Pouchitis]

Ben’s story: Staying positive with pouchitis
Ben, a father and rugby coach, underwent surgery for ulcerative colitis when he was 19 years old.
#pouchitis #jpouch #IBD #colitis https://t.co/m7Z6hmLocz