Rachel Ephgrave

I like and tweet what matters to me, interests me, makes me laugh.

[Farrukh @implausibleblog]

Tim Farron, "The unpleasantness about this debate is only matched by the lack of proper information" #BBCQT

"85% of refugees settle in the country next to where they come from"

"The French take 3x more refugees than we do"

"The Germans take 4x more refugees than we do"

"If you put us back in the European Union, we are 19th in the league table when it comes to the number of refugees we take per capita"

"Do we need deterrents? Yes. The best deterrents is competence. If we assess people when they arrive - and they are not illegal immigrants - they are people seeking asylum.. From Sudan.. Afghanistan.. Iran.. Syria.. 90%+ turn out to be genuine refugees"

"If we have a competent government, and we haven't had one, let's see about this one.. And you assess them quickly.. And return the ones that are not refugees"

"That is your deterrent"

"Rwanda was a waste of money.. If they spent that money on case workers we could have processed these people, returned the ones that weren't refugees in a humane way, and let th eones who are genuine refugees, become British, pay their taxes, be part of our country, and we should be proud to admit them"

Very well said @timfarron 👏

[Karen Hargrave @karenlhargrave.🦋.social @KarenLHargrave]

On #WorldPatientSafetyDay here are six reasons from #ThereForME why we need a transformation in care for people with #ME and #LongCovid.

Cc @wesstreeting @DHSCgovuk @GwynneMP

1️⃣ Over 200 healthcare workers are expressing concerns about patient safety & calling for action

[Dr Duncan Robertson @Dr_D_Robertson]

This is *very impressive*

Hundreds of thousands of people are registering to vote on the last day that we are able to.

Join them here: https://t.co/M7TgbnrL6S

[Lewis Goodall @lewis_goodall]

97%+ of over 65s are registered to vote. Only 2/3s of 18-24 year olds are on the register. If you turn 18 on or before 4th July you can register to vote right now.

Do not lose your democratic birthright! It matters so much.

It only takes 5 minutes.

https://t.co/GwNNxTOaBC

[Rachel Schraer @rachelschraer]

Unproven treatment, the Lightning Process leaves participants feeling "blamed" for being ill, according to former Team GB rower @oonagh_cousins. But some say they completely recovered after using the programme... I went undercover to find out more https://t.co/W1Tf78salj

[Sajid Javid @sajidjavid]

This Sunday, World ME Day is an opportunity to refocus minds on this condition.

By raising awareness, we can all help increase support, but it must be for ministers to now take decisive action.

https://t.co/DaafbzGJPl

[Rachel Ephgrave @RachelEphgrave]

@AlexChalkChelt pw #severeME have major sensitivities inc to light. Exposure makes them so much more ill. The NICE Guideline recognises this. But health care staff are not educated. Suffering caused by the well meaning but ignorant is shown here. We need medical education now.

[Cambridge ME group @CBMEgroup]

Here are the @NICEComms guidelines on #MECFS patient care in hospital:

https://t.co/JDf5PKRPE5

Here is the horrific reality face by patients today in the #NHS #UK

#SaveCarlasLife #expose

[Sarah @SarahLizzyLou]

🧵Imagine going to hospital for a simple procedure & being held for months against your will bc they believe you have a psychological disorder rather than the severe biological illness you’ve actually been diagnosed with.

This is happening to Millie.
https://t.co/bYWmgkGhQK

[George Monbiot @GeorgeMonbiot]

It's time that everyone stopped gaslighting ME and Long Covid patients. These are real and devastating conditions, however politically convenient it might be to deny them (and to deny benefit payments to the patients!).
Those who attack and mock pile suffering upon suffering.

[a_ryback @aryback4]

Female healthy participants needed for ME/CFS study in Sheffield!
Can you take part in our study as a healthy participant? Or if you're an ME/CFS patient, can you share this flyer with a friend (not blood related)?

Find out more at: https://t.co/Zb2O9V3NHA #MEResearch #MECFS

[Department of Health and Social Care @DHSCgovuk]

We're consulting on a delivery plan for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and want to hear from:

🟢 patients

🟢 healthcare professionals

🟢 researchers

Share your views by completing the survey 🔻

#MECFS

[The Lancet Infectious Diseases @TheLancetInfDis]

Read our new editorial for the August issue:

Where are the long COVID trials?

https://t.co/L8ETUAi729

[Channel 4 News @Channel4News]

“The era of global warming has ended, the era of global boiling has arrived.”

July is set to be the world's hottest month on record, according to a new report, as the UN’s secretary-general António Guterres calls for leaders to act on climate change.

[Ed Yong is not here @edyong209]

🛑I wrote about what “fatigue” really means for people with long COVID and ME/CFS, and why this profoundly debilitating symptom is so often misunderstood and trivialized.

(This piece also covers PEM.) 1/

https://t.co/oFWb6Flyh0

[Rachel Ephgrave @RachelEphgrave]

@bmj_latest This is an interesting read. I have cognitive difficulties as a result of #MECFS and #PoTS. After the physical effort of getting to an appointment, I find it difficult to process and remember what is said. I don't think the health care provider usually realises unless I tell them

[Care4Calais @Care4Calais]

People who have escaped from the worst terrors in the world should not be risking their lives once again to claim asylum in the UK.

Agree? Add your name now.

[Rachel Ephgrave @RachelEphgrave]

Reform of marriage laws is long overdue. It is >25 yrs since our humanist marriage ceremony. Having a ceremony that reflected our beliefs was of huge importance to us. Ceremonies like ours should be legally recognised; no world-view should be privileged when it comes to marriage.

[National Secular Society @NatSecSoc]

A senior bishop has criticised plans to reform wedding laws for greater freedom and fairness as 'undignified'. But what the Church may truly fear is competition, says our head of campaigns, Megan Manson. https://t.co/Bd7Ujvz5aO

[Rachel Ephgrave @RachelEphgrave]

Anyone else scrolling Twitter and Threads simultaneously, adding those they follow to Threads as they find them? When all the interesting people are on #Threads I won't need to go back to Twitter!

[Rachel Ephgrave @RachelEphgrave]

@amazing_physics 8118

[Rachel Ephgrave @RachelEphgrave]

@Daltmann10 @gezmedinger Thank you both, + Daze + @claudiahammond, for an excellent talk today. Great to see the "ME/CFS type" #LongCovid being acknowledged. So sad to hear @gezmedinger and Daze describing so vividly having symptoms that as a #pwME I am very familiar with. More research is badly needed.