RheumACTionCouncil

Established to track the past & future patient engagement in rheumatology research to improve initiatives & strengthen the patient voice.

[RheumACTionCouncil @RheumCouncil]

What’s your biggest #autoimmune #autoinflammatory #arthritis disease related pet peeve? #rheum #RheumTwitter

[Young Patients' AREA @yp_area]

Check out the #PathwayTool to improve patient included #rheumatology research projects https://t.co/dSqJTovqiK #ACR22

[Maarten de Wit @MartinusPTdeWit]

Saturday next week we will have a unique patient initiated session at #ACR2022 about the #PathwayTool!

[Dr Rheum @rheumdoctor]

Check out the #PathwayTool to improve patient included #rheumatology research project https://t.co/xShslGgWtr #ACR22

[RheumACTionCouncil @RheumCouncil]

Check out the #PathwayTool to improve patient engagement in rheum research at @IFAiArthritis booth 1106 - first 50 to tweet special gift! #acr22

[RheumACTionCouncil @RheumCouncil]

In person at #ACR22? Come see us at booth #1106 #PathwayTool

[AiArthritis @IFAiArthritis]

So nice to meet more of our friends from @LADAOrg, @LIsabethIglesia! #PathwayTool #ACR22

[JointHealth @ACEJointHealth]

Pathways to Patient Engagement #ARC22 #Pathwaytool @RhuemCouncil:

1."We don't know what we don't know" @TiffWRobertson

2. "Power differentials lead to tokensitic engagement" @martinusdewit

3. "The people sitting around you (patients) are intelligent" @CherylKoehn

[JointHealth @ACEJointHealth]

We're happy to be sharing updates from #ACR22 via our JointHealth™ express newsletter. Sign up for this free e-newsletter to receive the latest arthritis news: https://t.co/ItJAjIR2GK

@DrKanikaMonga @ACRheum @RheumNow @Arthritis_ARC @CreakyJoints @kristenyoung @RheumCouncil

[AiArthritis @IFAiArthritis]

Early start at #ACR22 to see @chroniceileen and @realcc session - what does your “bad day” with RA look like? #gowithus

[JointHealth @ACEJointHealth]

JointHealth™ express - Patients Share the Stage at #ACR22. Check out the latest updates from this year's conference. https://t.co/3xobW0LvLZ

#ACEJHEd
@CherylKoehn @KT_trainee @Arthritis_ARC @RheumCouncil @chroniceileen @RheumAb @CAPA_Arthritis @IFAiArthritis @ACRheum @LLi_1

[Stephanie Aleite @theYoungFace_RA]

Patients in the room who have participated in research said:

We contribute to the research through our:
✨Diversity
✨Expertise
✨Creativity
✨Intersectionality
✨Experience

Patients, what else?? What do you think? @IFAiArthritis @ACRheum @CreakyJoints #ACR22 @RheumCouncil

[Cheryl Koehn @CherylKoehn]

@theYoungFace_RA @CreakyJoints @IFAiArthritis @ACRheum @RheumCouncil And @ACEJointHealth and @martinusdewit ☺️❤️🙌🏼 #ACR22

[RheumACTionCouncil @RheumCouncil]

Check out the #PathwayTool to improve patient engagement in rheum research at @IFAiArthritis booth 1106 - first 50 to tweet special gift! #acr22

[Cheryl Crow, Arthritis Life @realcc]

A meeting of the Cheryl minds at last! @ACEJointHealth @CherylKoehn #acr22

[Cheryl Crow, Arthritis Life @realcc]

Love this slide, theory then practice then theory informed practice - the messy stage is normal and necessary! @CherylKoehn @ACEJointHealth @IFAiArthritis @RheumCouncil #acr22 #pathwaytool @TiffWRobertson

[Stephanie Aleite @theYoungFace_RA]

“By including patient research partners, we’re going to make the research more precise.. Congratulations for choosing our session over the precision medicine session. By doing so, you have covered BOTH.”
@ACRheum @IFAiArthritis @CreakyJoints
@RheumCouncil #pathwaytool #ACR22