RikhariNeha

[RikhariNeha @RikhariNeha]

@Airtel_Presence I would have wished the same.. setting up a new connection is always smoother, and the comes the reality- numerous connection disruptions, resistance to close the connection from airtel side,, expecting consumer to suffer forever

[RikhariNeha @RikhariNeha]

@airtelindia please pick your piece of crap from my apartment. I have placed a request for wifi connection closing fe days back.. yet I am still getting charged and noone seem to be assigned for device pick up.. your internet services are pathetic, I dont want to continue further

[RikhariNeha @RikhariNeha]

@flybigairlines - is this airline reliable enough? Flight connecting from dehradun to pithoragarh are cancelled without any reason. Is it a scam happening in the name of connectivity @ukcmo @ANINewsUP @UTDBofficial

[PNH Global Alliance @GlobalPnh]

This month, we celebrated Universal Health Coverage Day. We believe that every person living with PNH deserves equal access to quality healthcare, no matter where they live. Let’s advocate for stronger health systems and ensure that no one is left behind.

[RikhariNeha @RikhariNeha]

@GlobalPnh I am deeply grateful for the opportunity to be part of this program and for the invaluable learning experiences it has provided. The knowledge and skills gained have been truly beneficial, and I look forward to applying them moving forward.

[PNH Global Alliance @GlobalPnh]

If you are #TreatingPNH, please explain that PNH it is not an inherited disorder and it cannot be passed down to children from their parents #PNHAwareness2024

[PNH India Alliance @PNHIndia]

@MoHFW_INDIA @moayush @JPNadda @PGI_HematOnc @aiims_newdelhi @AustinKulasekar @RahulDoc2 @DrPMPGI please join us in creating #PNHAwareness2024 in India and need to part of NPRD, so patients could get the treatments they deserve, we are #RARE.

[PNH Global Alliance @GlobalPnh]

Join our PNH Awareness Campaign! 🌟 From Sept 6 to Oct 12, let's raise awareness about Paroxysmal Nocturnal Hemoglobinuria. Share our posts with #PNHAwareness2024, join discussions, and support those affected. Together, we can make a difference! 💪 #DidYouKnow #TreatingPNH

[RikhariNeha @RikhariNeha]

@amazonIN really disappointed with the support you are giving on the defective product received from you,even after technician visit its been more than 24hrs,you are not able to provide resolution.Nvr ever recommending to buy big amount product from amazon

[RikhariNeha @RikhariNeha]

Airtel network sucks in Mundhwa @airtelindia @Airt_Presence @Airtel

[Austin Kulasekararaj @AustinKulasekar]

@PigginMaria at #EHA2024 @EHA_Hematology doing an amazing job and making a case for fair price of drugs. Global access to effective drugs is critical, not just for #PNH @GlobalPnh @PNHSupport

[PNH Global Alliance @GlobalPnh]

What does an “unmet medical need” mean to you? Do you need to know what a “met need” is to answer this question? @eurordis #EHA2024

[RikhariNeha @RikhariNeha]

@PGi @aiims_newdelhi @ICMRDELHI @MoHFW_INDIA @rashtrapatibhvn @PMOIndia @ArvindKejriwal - India in need of access to treatment for PNH patients. It’s not even in Rare Disease Policy. something to think about, #EHA2024 gives a platform to connect with world.

[RikhariNeha @RikhariNeha]

@MoHFW_INDIA @JPNadda @PMOIndia @AnupriyaSPatel @PIB_India @MIB_India @airnewsalerts @DDNewslive @mygovindia Happy to see new ministers.. hoping to get reply from you #PNH is a serious blood disorder needs immediate attention in India, please let me know how can I connect to request for access of treatment in India #HealthForAll @GlobalPnh

[PNH Global Alliance @GlobalPnh]

Our secretary Pascale Burmester presenting important results about the disparity in #access in #Europe to effective #PNH treatments #EHA2024

[RikhariNeha @RikhariNeha]

@GlobalPnh @MoHFW_INDIA @ICMRDELHI @aiims_newdelhi @Gov_of_india -food for thought #HealthForAll

[PNH Global Alliance @GlobalPnh]

Encouraging results for an oral #PNH monotherapy but how many #PNHpatients will actually be able to access this treatment? How many countries will be able to afford this treatment? There is no #innovation without #access #EHA2024 #healthisahumanright

[PNH Support @PNHSupport]

We are thrilled to be part of this training programme to upskill and educate #PNH patient advocates of the future! #EHA2024 #nothingaboutuswithoutus

[PNH Global Alliance @GlobalPnh]

Approximately 80% of #pnh patients globally have no access to licensed treatments due to price and face life threatening complications. This needs to change. #fairpricing #nothingaboutuswithoutus #EHA2024 @ERNEuroBloodNet

[PNH Global Alliance @GlobalPnh]

Inequality of #access to #PNH effective treatments across #Europe from survey of 20/27 #memberstates. Availability does not equal access #healthisahumanright #EHA2024