Please, assist with this important request. It only takes a few minutes and it will aid our wonderful Parkinson advocates further their discoveries through clinical trials!
Together we can make a difference. Thanks!
The Parkinson's Drug Trial: A Miracle Cure? airs Thurs 28 Feb @9pm on @BBCTwo - and once you've seen ep1, you will be counting down the days until ep2 airs (7 March) to find out what happens to the incredibly brave volunteers who took part #Parkinsons https://t.co/F3EY1fZKrE
Please, assist with this important request. It only takes a few minutes and it will aid our wonderful Parkinson advocates further their discoveries through clinical trials!
Together we can make a difference. Thanks!
We urgently need another 50 PwP responders to complete this short survey, which will help us inform outcomes in clinical trials. We are so grateful for your support ! https://t.co/a1Zij8pQ4V
Fellow advocate, Steve Dewitte and I discuss what advocacy means to us, the many ways to get involved and the importance of clinical trial participation. https://t.co/5wPXoyCbjg
Together, you and Soania make an awesome advocacy team. I know that there is meaning appreciation and respect for each other. Thank you both and the girls!
A series of brilliant articles from Sara Riggare that strike at the question - Can we rely on the system as is to care for us or is up to each of us to figure out how best to care for ourselves?
https://t.co/HeBUZGdyJl
A lovely tribute to Tom Isaacs by @SoaniaMathur on the power of the #Parkinsons patient: A Call to Action. "It is in our best interests to ensure that our voices as a community are heard, that we have input into the clinical trial process"
https://t.co/DACH2YMMML
Related to this post - Parkinson's News Daily @parkinsonstory has just posted a great write up about the Linked Clinical Trials Initiative boosting the number of #Parkinsons clinical trials #tomsvision
https://t.co/3BsIgRisx2
I find it strange that everyone in clinical trials gets paid for their time except patients, as if ours is less valuable. We should get treated as partners in more than just name. Thank you @emily_a_largent @jasonkarlawish for shining a light on this.
https://t.co/SKtMzaMD2P
It’s great to see so many articles coming online for the @EJNeuroscience Special Issue dedicated to the memory of Tom Isaacs, founder of the Cure Parkinson’s Trust @cure_parkinsons. See more here: https://t.co/HyRccjGs1R
Prof Baastian Bloem and Dr Simon Stott receive this years 'Tom Isaacs Award' for their inclusive work and extensive outreach helping shrink the gap between scientists and patients #TomsVision@VAInstitute https://t.co/A6jjd4DKFT
The 2018 international #LinkedClinicalTrials meeting - 12 outstanding neuroscientists and neurologists with over 30 highly-skilled patient advocates, charity workers, funders and others - a truly global effort to find a cure for #Parkinsons#TomsVision https://t.co/uqQhRwaJrN
Rallying to the Challenge gets underway today - led by people with Parkinson's and created by @PDMovement; @CureparkinsonsT and @VAInstitute - all about non motor symptoms
‘Mindfulness for Parkinson’s’ is a free online toolkit created by @ParkinsonsUK to help reduce common mental health symptoms in people living with the condition. https://t.co/5sKZOoofZU