Siri Skorgen 🇧🇻 in 🇪🇦

@siriskorgen.bsky.social

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene Wtaf? 🤯😳😔😢 Helt hinsides at dette kan anses som underholdning!!

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

#MEAwarenessMonth

[Adam @ABrokenBattery]

Post exertional malaise (PEM) is the hallmark symptom of #MECFS

It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms.

Short video explainer - triggers, symptoms, and management.

Repost for the last day of #MEAwarenessMonth

[Adam @ABrokenBattery]

Post exertional malaise (PEM) is the hallmark symptom of #MECFS

It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms.

Short video explainer - triggers, symptoms, and management.

Repost for the last day of #MEAwarenessMonth

[Adam @ABrokenBattery]

“I don’t think I can think of another condition that would be treated this way.”

Dr Anna Brooks, Liggins Institute.

A powerful opening to Zoe Madden-Smith’s award-winning RE:News documentary on #MECFS

Also featuring @rhirhiarhii

[Adam @ABrokenBattery]

“It made me much worse… Most people I know with ME have exactly the same experience with it.”

Annette Barclay, a patient with #MEcfs, describing her deterioration following Graded Exercise Therapy.

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene 100% enig!

[Adam @ABrokenBattery]

“They’re in a darkened room, they can’t tolerate light or sound… some are even tube fed. They’re so unwell, you almost can’t fathom it”

Former Team GB rower @oonagh_cousins on people with very severe #MECFS and #LongCovid and the importance to advocate for those who can’t.

[Adam @ABrokenBattery]

“They’ve had their lives completely demolished by this illness.”

Millions are living with #LongCovid while society has moved on.

Former Team GB rower @oonagh_cousins developed #MECFS following Covid and had to retire.

[#ThereForME @ThereForME_UK]

“Very severe ME is quite a unique condition in that there is effectively no NHS specialist services that are available for someone in James’ position.”

Our co-founder @KarenLHargrave speaks to @theipaper about the financial cost of supporting a loved one with very severe ME.

[Adam @ABrokenBattery]

“The injustice of it, I couldn’t believe it”

Former Team GB rower @oonagh_cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT

It is the “opposite of what they needed” & that legacy still runs “super deep”

[Katy B @KatyBruce108]

There's a power imbalance which isn't being acknowledged, we currently have seriously ill #pwME in
@NHSuk hospital who're being denied life saving healthcare because of a deliberate misinformation campaign targeting #ME
All Drs have a responsibility to educate themselves about ME

[Katy B @KatyBruce108]

@ompsychiatrist There's a power imbalance which isn't being acknowledged, we currently have seriously ill #pwME in @NHSuk hospital who're being denied life saving healthcare because of a deliberate misinformation campaign targeting #ME All Drs have a responsibility to educate themselves about ME

[Tom Kindlon @TomKindlon]

Delighted to get this coverage in the Sunday World, one of the newspapers with the largest readership in Ireland

#MEcfs #PwME

[Timo Strotmann @TweetingTimo]

After years of severe ME/CFS, I was lucky enough to spend the last few weeks being "mildly" affected.

Compared to severe ME, mild ME feels almost like a dream.

Compared to the healthy body I had before ME/CFS, it is still deeply disabling and devastating.

[EndMalnutritioninME @MalnutritionME]

Please sign this petition. Many people with #ME are too ill to attend GPs' surgeries, outpatient appointments, or A&E.
https://t.co/CuNunRotr4

[Brian Fog @useless_priest]

The whole of Germany is lying down for people who have ME/CFS.

This is called the Liegenddemo and has been happening for the last several years.

It’s been going from strength to strength.

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene 😂😂

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene Vi har et lite bordflagg fremme og ser litt på TV fra rundt om i landet.... ellers er det business as usual her 😅🇧🇻🎉

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene Det samme her 🤪 Så da googlet jeg og fikk opp spillelista. Flere av de spesialkomponerte låtene har navn som jeg antar viser direkte til karakterer/handlinger i sekvensene der de spilles, så kanskje det kan korte ned lista? 🤔🤞🤞

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene Det var mye fint her, men har ikke energi til å høre på så mye musikk 🙈 Håper du finner den du var på jakt etter 🤞 Og, god 17.mai! 🥰

[Siri Skorgen 🇧🇻 in 🇪🇦 @SSkorgen]

@BenedicteLene https://t.co/hH5WNOShEt