SaltedIceCream

We are the Rochon family, our 12-year-old daughter has Cystic Fibrosis. This is our fundraising team name.

[CF Get Loud @CFgetloud]

A moving story of transformation and hope!
Amanda, thank you for sharing.

RT and tag your MLA/MPP and provincial Health Minister.

Canadians with #cysticfibrosis can't and shouldn't have to wait any longer for a healthier life.
#CFCantWait
#TrikaftaCantWait
#CFGetLoud

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Listen to the people @fordnation. #cysticfibrosis patients have been waiting 1,012 days for @celliottability to deliver on her promise to provide access to life-saving medicines. You can end the needless suffering and death. Please act now. #CFcantwait #onpoli #onhealth

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Listen to the people @fordnation. You have the power to end this suffering. Tell @celliottability she needs to deliver on her promise to give #cysticfibrosis patients access to life-saving medicines. Tell @ONThealth to act now to make this right. #CFcantwait #onpoli #onhealth

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

For 1,000 days, @celliottability has refused to deliver on her promise to provide access to life-saving #cysticfibrosis medicines. @fordnation, please end this needless suffering & death. Tell @ONThealth to provide access now. Protect our vulnerable. #CFcantwait #onpoli #onhealth

[Susana Scott 🇨🇦 @AdvocateCEO]

What's going on @JustinTrudeau that this is allowed to happen in Canada??!! You have failed Canadians with #cysticfibrosis!!!

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

In the words of The Clash, "you didn't stand by me, no, not at all." Canadians are dying from #cysticfibrosis while other countries provide life-saving medicines. This must stop @JustinTrudeau. Tell @PattyHajdu & the @PMPRB_CEPMB to save lives now. #CFcantwait #cdnpoli #cdnhealth

[Adrian 🇨🇦🇭🇷🇺🇦 @adrianmk]

I am not sure what it will take. Why are the feds (and all provinces) dragging their heels on supporting #cysticfibrosis patients. There are at least 20 other countries publicly insuring modulators, and a number that have reached deals on #trikafta #cdnpoli #onpoli

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

A question, @JustinTrudeau. How many deaths of #cysticfibrosis patients are acceptable to your government before you take action? It's time to deliver on your words that "where you live shouldn't determine whether you live." Tell the @PMPRB_CEPMB to save lives now. #CFcantwait

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Dear @RachelBendayan, it's time to create a safety net for #cysticfibrosis patients in Canada. Ask @JustinTrudeau to deliver on his word. More than 20 countries provide access to life-saving CF medicines. Tell @PattyHajdu & the @PMPRB_CEPMB to save lives now. #CFcantwait #cdnpoli

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Tears of joy for #cysticfibrosis patients in the UK. In Canada, tears for the suffering and lives lost. @JustinTrudeau, deliver on your words that "where you live shouldn't determine whether you live." Tell @PattyHajdu and the @PMPRB_CEPMB to save lives now. #CFcantwait #cdnpoli

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Dear @JulieDzerowicz, we need a safety net for #cysticfibrosis patients in Canada. Ask @JustinTrudeau to deliver on @CPHO_Canada's word. More than 20 countries provide access to life-saving CF medicines. Tell @PattyHajdu & the @PMPRB_CEPMB to save lives now. #CFcantwait #cdnpoli

[lisagrono 🇨🇦 @lisagrono]

@CFAdvocacynow @flowerfaeries1 @liberal_party @JustinTrudeau @PattyHajdu @PMPRB_CEPMB @beynate 💜please talk to @PattyHajdu and @JustinTrudeau! We need you!

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Our hearts break. Are you listening @liberal_party MPs? Ask @JustinTrudeau to deliver on his words that "where you live shouldn't determine whether you live." The cabinet retreat is the time to tell @PattyHajdu & the @PMPRB_CEPMB to join the other countries saving #CF lives now.

[𝐁𝐊 ♑︎ @bmkpelletier]

@JustinTrudeau I would be DEAD if it weren’t for Trikafta and being granted compassionate care. It shouldn’t take someone to be near death to get a proper chance at life!!